I have had 4 neuroma surgeries and still getting burning pain. I thought another was growing inside but my foot doctor decided to send me to a neurologist. Said the burning pain may actually be caused by the nerves.
I have seen a neurologist. He took a few different kind of test, even a skin biopsy and everything came back normal. Since burning is a sign of nerve problems, he thought maybe I may have nerve iritation. So he put me on Cymbalta, 30mg a day starting a week ago Friday. By Monday my feet started to burn more than usual. Tuesday it was a little worse and even more worse come Wednesday. Then I started to get pinching feelings, stabs of pain, and even this feeling that someone is lightly brushing their finger over me. These symptoms are all new to me. I have never felt them before taking this medicine. They told me to stop the drug come Wednesday. The lightly touching feeling spread to all over my body come Saturday. I was feeling it on my legs and then a minute later on my arm. And then a minute later somewhere else.
The doctor on call, not knowing what I was actually feeling and not liking that it had spread to my arms, made me go to the ER on Saturday. No heartattack or strokes coming on. Knew it wasn't but they had to check to be sure. Obviously they had no clue what was wrong with me and told me to call my neurologist today.
I hated the Cymbalta and it only made me worse with new symptoms. Today my feet are burning more than it has in years. I can only imagine what my neurologist will suggest when he calls me today. Probably will say to try another drug. I dont' want any more drugs if this isn't really nerve iritation. Yes, the drug did cause some nerve iritation. All the new symptoms scream that but what is the problem I have underneath all these new symptoms, no one knows.
How did everyone find out that they did indeed have neuropathy? I wonder if this guy will be filling me with drugs that I shouldn't be taking.
Since no one can tells me how they were diagnosed, do I assume that doctors hear what your symptoms are and just assume what you have? Then start prescribing all these drugs, experimenting on you. Is that how it works? Has anyone here been given proof that you have neuropathy problems?
Hi, normally neuro's do a nerve conduction test & an EMG to test the large nerves condition, to test the small nerves which is are reponsible for pain & temperture are done by either quanitive sensory testing or the gold standard test is one you have already had, the skin punch biopsy, but sometimes when the neuropathy is patchy, the site of the skin punch may not have been excactly were the actual nerve damage is and can come back negative, rare but can happen.
Aussie, I think I may have had all of those tests. The test he did already was the skin biopsy. He also did the EMG, which if I have the name right, is the one they zap you with electric currents. He also did the one that pokes you will the needles. And then I took the test that they test you if you can feel the cold and hot and the test if you can feel the vibration sensation or not. He had a slight doubt on the cold/hot and vibration test but that might have been because i wasn't good at testing. But he took the EMG and needle test afterwards. Everything came back normal.
Does MRI show anything when it comes to nerves?
But he is still wanting to try drugs on me because he says burning is a symptom of nerve problems. He says my nerves may be iritated but not damaged. I had the lousy side effect on the last drug. One part of me says to go for it, if it is the nerves, then it will help. Another part of me says what if it only hurts me again. He is now treating me because he is guessing. I still haven't recovered from the last drug. My feet are burning much more than it has in years. What if a new drug iritates my feet even more. I hate this guessing game he is playing!
My dr. did that zap test on me it was awfull and made everything worse. He never actualy told me results on that I don't know what the positive negitige result is for anyway. But I'd never do that test again it felt like it never stopped and the doc had to put me on steriods to stop it.
In my case the medicine Cymbalta gave me all these new symptoms. It must have iritated my nerves. I'm still not back to how I was before taking the drug. It is pretty bad when the doctors only cause you more pain!
The Prednazone really seems to make it go away after just a few days, but stariods do have side effects that really suck like weight gain and mood swings so you can't stay on them too long and have to be weaned off of them. My dr. was treating me with nerotin (gabapectin)3 times a day and then prednazone just when it acted up , although mine seems to be persistant even though I know the nerotin works, because I have more problems when I fortget a pill, every 3 or 4 months the pn would start to flare up and I'd need a course of prednazone again. He wants to put me on an iv treatment, but it hasn't gone through my insurance yet so I'd been on a steady 1 a day of the prednazone, but I guess after 6 mo. of that my pn overcame that too and I"m haveing a nasty flare up now, last night I finaly got him on the phone and he's uping the prednazone at least till the symptoms calm down or the other meds come through. I really think that will help. The cymbalta sound horrible after all the things I've read on here, I hope he never wants to put me on that because I don't think I'll ever try it.
Ravenfey, I have only used steriods and prednisalone when I have had iritis eye infections but never for the nerves. Good luck. I hope it works for you.
I'm still having pain thanks to the Cymbalta. It may effect some people different than others, but for me it is a nightmare. I go into the neurologist and come out with more pain than I started. And my nerve test came back normal. The whole thing just disgust me! I see my orthopedic specialist in September. Let see what he can do.