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Old 10-09-2008, 11:45 AM   #1
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Any advice on Specialists and/or Hospitals

I was diagnosed with peripheral neuropathy about 6 months ago. It started with numbness and tingling in toes on both feet. Referred to a Neurologist and saw him 6 weeks later. Went through a bunch of tests, including test for Diabetes which was borderline but not considered the problem. Long story short after many tests which most of you probably have had I was told I fell into the 40% of people who have PN and without knowing what causes it, nothing can be done for it.
The numbness has progressed up to about half of both feet now.
I guess what I'm asking is has anyone had any luck with other hosbitals such as the University of Chicago, University of Kansas Medical Center or Mayo Clinic? Mayo Clinic told me they had a wait of 6 months to a year.
I need a 2nd opinion but I want to get it from the best Doctor or Hospital.
Any help or advice is appreciated.
Mike

 
Old 10-09-2008, 01:50 PM   #2
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Re: Any advice on Specialists and/or Hospitals

Quote:
Originally Posted by scubajib View Post
I was diagnosed with peripheral neuropathy about 6 months ago. It started with numbness and tingling in toes on both feet. Referred to a Neurologist and saw him 6 weeks later. Went through a bunch of tests, including test for Diabetes which was borderline but not considered the problem. Long story short after many tests which most of you probably have had I was told I fell into the 40% of people who have PN and without knowing what causes it, nothing can be done for it.
The numbness has progressed up to about half of both feet now.
I guess what I'm asking is has anyone had any luck with other hosbitals such as the University of Chicago, University of Kansas Medical Center or Mayo Clinic? Mayo Clinic told me they had a wait of 6 months to a year.
I need a 2nd opinion but I want to get it from the best Doctor or Hospital.
Any help or advice is appreciated.
Mike
Hi Mike, did you have a 3 hour glucose tolerance test for diabetes ? if your blood sugars fell into a prediabetic level then that can certainly course nerve damage and should not be ignored.
Unfortunatly there are still doc's out there that go by stone age research and think you have to have full blown diabetes for years to get any nerve damage, this is not true in all cases.

Aussie

 
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Old 10-10-2008, 05:19 AM   #3
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Re: Any advice on Specialists and/or Hospitals

I had a 4 hour blood test like you described and I will have to find out the exact details but the doctor did tell me I was borderline diabetic although the level was below what its supposed to be. I'm sorry I sound like an idiot. I am overweight. Where can I read about a diet that might help my PN?
And again, has anyone tried any good hospitals that specialize in PN?

 
Old 10-10-2008, 12:55 PM   #4
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Re: Any advice on Specialists and/or Hospitals

I know some Americans with PN, they say Johns Hopkins, The Jack Miller Center, Cornell-Weill, & i believe the Mayo Clinic comes in as their last choice.
My PN was caused through Prediabetes, i lost all my excess weight through diet and exercise and it took 5 years to heal the nerves completely.
If your PN is caused by higher than normal blood sugars then a low carb diet is the best choice for you, just stay away from sugary carbs, white bread, rice, pasta, potatoes, just eat like a diabetic 2 would .
best of luck
Aussie

 
Old 10-10-2008, 01:11 PM   #5
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Re: Any advice on Specialists and/or Hospitals

Mike,

Are you on any medications for high blood pressure or high cholesterol? Sometimes these drugs can cause neuropathy. I wish you well.

 
Old 10-10-2008, 01:51 PM   #6
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Re: Any advice on Specialists and/or Hospitals

Yes, some drugs can cause neuropathy like these ones-
# Heart or blood pressure medications - Amiodarone, Hydralazine ,Perhexiline
# Drugs to lower cholesterol- Lovastatin (Mevacor), Indapamid (Lozol], Gemfibrozil (Lopid)
# Drugs used to fight cancer- Vincristine, Cisplatin
# Drugs used to fight infections- Metronidazole (Flagyl), Nitrofurantoin, Thalidomide (used to fight leprosy) INH (isoniazid) -- used against tuberculosis
# Drugs used to treat skin conditions (Dapsone)
# Anticonvulsants (Phenytoin)
# Anti-alcohol drugs (Disulfiram)
# Drugs to fight HIV- Zidovudine (Retrovir, formerly AZT) Didanosine (Videx)
Stavudine (Zerit) Zalcitabine (Hivid) Ritonavir (Norvir) Amprenavir (Agenerase)

Aussie

 
Old 10-11-2008, 12:46 PM   #7
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Re: Any advice on Specialists and/or Hospitals

I'm taking Benicar for blood pressure and Crestor for cholesterol. I was taking Vytorin for quite a while. I had an allergic reaction to something one night and had to go to the hospital. The only thing they could come up with for the cause was Vytorin. They told me to stop taking it and I didnt take anything for 3 months and it went up again so my Doctor put me on the Crestor. Can an allergic reaction have anything to do with Neuropothy?

Last edited by scubajib; 10-11-2008 at 12:47 PM.

 
Old 10-11-2008, 04:31 PM   #8
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Re: Any advice on Specialists and/or Hospitals

Crestor is another statin drug that has been known to cause neuropathy in some people, trouble is with PN it has many, many possible causes, finding the exact cause isn't always real easy, all one can do is eliminate the known possibilities one by one, i was told by a few GP's and one professor of neurology that Prediabetes isn't a cause of nerve damage but how wrong they all were, it wasn't till i found a neuro that specialized in neuropathy that told me the Prediabetes or borderline diabetes over time can cause nerve damage and he was spot on.

I am not sure about an allergic reaction causing nerve damage, you would have to speak to a neuro that specializes in neuropathy about that, but i do know that Prediabetes will eventually progress into frank diabetes 2, if the cause is not addressed which is usually excess body weight especially around the stomache area, normally by loosing any excess weight by diet and exercise should improve LDL cholestrol & blood pressure, hopefully eliminating the need for questionable drugs.

Aussie

 
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