when I lay on my sides it feels like my but and legs are going numb - Neuropathy Message Board

aimeek · 11-08-2008, 06:01 AM

when I lay on my sides it feels like my but and legs are going numb and tingley, I have to move my body every 5 min or it hurts so bad

cream9518 · 11-08-2008, 08:18 AM

I have the same feeling with burning sensations in buttocks when laying down, also when sitting. I have idiopathic PN and tried all medications with no relief. My neurologist said laughingly, "you have restless buttocks syndrome". I am taking 300mgs of lyrica daily and have to take ambien nightly or will not be able to sleep. Are you seeing a neurologist? If you do I would like to know what his diagosis will be. Please keep in touch.

cream78

pjustice · 11-12-2008, 11:03 PM

Hi,
I have been diagnosed with small fiber neuropathy, and my legs and arms go to sleep also. I have the burning sensation all the time in my left trunk, both hands, buttocks, groin, and left thigh down to my knee. My arms, legs and feet get week, and my feet burn too. I am on 600 mg of lyrica a day, cymbalta 90 mg, and the burning is now at least acceptable; the weakness is much less. I also went to OSU clinic. I saw Dr. Freimer. I also see a Rheumatologists who says it's Fibromyalgia. I am now going to the Cleveland Clinic, Dr. Zyat, who has given the same diagnosis as OSU. They have referred me to a neuromuscular doctor who I haven't seen yet. Dr. Zyat couldn't find anything wrong with me after MRI's, EMGs, all the other nerve tests and blood tests????? Aspercream seems to calm the burning some too.
PAJ, Washington C.H., OH