peripheral neuropathy feet and lower legs - Neuropathy Message Board

deedee2020 · 11-13-2008, 05:37 PM

Hi, I am new to this site, I am a 58 year old female with severe neuropathy from the knees down, at present... Diagnosed ten years ago with a disease called Castleman's-which is an extremely rare disease...

The treatments to date are, Rituxan, Plasmapheresis, Cytoxan, now taking steroids...

My question is , is there anyone else with like symptoms and or similar treatment ?

Thank you for your time,
DeeDee

will54 · 11-13-2008, 08:56 PM

DEEDEE
I haven't your diagnosis as Perpheral Neuropathy, but I do have Small Fiber Neuropathy. I have lower leg, feet, and whole body pains. I don't know what the differences are, but can believe your pains are real and wish you the best.

Will

Aussie100 · 11-15-2008, 11:00 PM

Hi, is surgery not an option in your case ?

Aussie

deedee2020 · 11-16-2008, 12:52 AM

No, there is no surgery available to help me... I so wish there was.... Thanks for asking.... DeeDee

pauli44 · 12-10-2008, 12:33 AM

Hi Deedee,You sound like you are really hurting?I understand that with Gabapentin you are only supposed to take 4200 maximum-so maybe you are just taking too much,I often find that with meds.you have to find the right dosage before you see any result-so maybe talk to your Doctor about it-take care Pauline