why does the pain in my feet get worse after I am off them for awhile - Neuropathy Message Board

Sidekick01 · 11-19-2008, 08:04 PM

why does the pain in my feet get worse after I am off them for awhile?Ihave been diagnosed with PN which they say is due to undiagnosed diabetes type 2. At times I can barely walk due to the numbness and pain.

cream9518 · 11-20-2008, 11:49 AM

Dear sidekick01, being not diabetic, like me, you have idiopathic neuropathy. Have been like this for a couple of years with numbness and burning in my feet going up my legs. The burning is now in buttocks, especially when sitting and sleeping. Neurologist jokingly said I have restless butt syndrome. I am taking 300mgs of lyrica and also percocet for pain. I take ambien because I would never be able to sleep because the pain is worse at night What medications are you taking. Please let me know hou you are coping with this,
Cream78

Sidekick01 · 11-20-2008, 12:48 PM

Quote:

Originally Posted by cream9518

Dear sidekick01, being not diabetic, like me, you have idiopathic neuropathy. Have been like this for a couple of years with numbness and burning in my feet going up my legs. The burning is now in buttocks, especially when sitting and sleeping. Neurologist jokingly said I have restless butt syndrome. I am taking 300mgs of lyrica and also percocet for pain. I take ambien because I would never be able to sleep because the pain is worse at night What medications are you taking. Please let me know hou you are coping with this,
Cream78

I am sorry, guess I didn't say it right. I am diabetic ( just diagnosed this year) but have had the numbness for years in my feet for about 6 years and never was checked for diabetes. I am on metformin 250mg 3x daily for the diabetes and just this last year since diagnosed also on gabapentin 400 mg 4x daily for the pain in my feet. I find it hard to walk and particularly stand. I have had jabbing pains as well this last year in my feet and sometimes my hands. I feel unbalanced because of the numbness. I am still trying to work as I have 1 year left till early retirement but questionable whether I will make it. My question was regarding the fact that I have noticed when I am not on my feet (sitting or after sleeping ) my feet seem unbearably worse to the point I can hardly bear to stand up or walk. The pain decreases after a few minutes although still very painful. Just wondering if this is the same with others and why? Thanks for your reply

woondog · 11-21-2008, 10:21 PM

Hi there. I've had pn for about 28 years. I have had an argument with the department
head of the Neuropathy Division, Kaiser Hospital who said that while exercise is
important in treating pn, there is no need for any "pressure sensitive " kinds of exercise
such as pounding on the treadmill. While I have little medical knowledge,I disagreed with
him because exercise, exercise that includes pounding, is a very effective tool in
reducing pain.
Listen up...this is very important. Don't look at this as the end of your life. I want
you to declare war on your PN. If your heart, etc., is ok, get on the treadmill or start
walking. At first, go slow and long. After awhile, go fast and long. At the beginning, it will be painful....but keep at it with dedication. After awhile, the pain will go away. Then
your PN pain will go away while on the treadmill and for some time afterwards.
Take as much pain killer as will assuage your pain.If you are offered just percoset and
you still have intense pain, get something stronger. There is no need to live with
lightening strikes of pain. If you watch your blood sugars, reading labels on foods
as if they were life and death items so that you learn that a product can state:
Sugar free but then you read sugar alcohols, corn syrup, Maliton, and many other
ingredients which really are sugars, lose weight if you're obese, and walk then run
for your life. You will beat it. Don't surrender. Treat the PN like a scurvy sucker that
is about to maul you. Confront it. And when you beat it.......be proud. This is your
personal battle and there is nobody out there who will be able to fight it but you.

woondog · 11-21-2008, 10:23 PM

Quote:

Originally Posted by Sidekick01

I am sorry, guess I didn't say it right. I am diabetic ( just diagnosed this year) but have had the numbness for years in my feet for about 6 years and never was checked for diabetes. I am on metformin 250mg 3x daily for the diabetes and just this last year since diagnosed also on gabapentin 400 mg 4x daily for the pain in my feet. I find it hard to walk and particularly stand. I have had jabbing pains as well this last year in my feet and sometimes my hands. I feel unbalanced because of the numbness. I am still trying to work as I have 1 year left till early retirement but questionable whether I will make it. My question was regarding the fact that I have noticed when I am not on my feet (sitting or after sleeping ) my feet seem unbearably worse to the point I can hardly bear to stand up or walk. The pain decreases after a few minutes although still very painful. Just wondering if this is the same with others and why? Thanks for your reply

Hi there. I've had pn for about 28 years. I have had an argument with the department
head of the Neuropathy Division, Kaiser Hospital who said that while exercise is
important in treating pn, there is no need for any "pressure sensitive " kinds of exercise
such as pounding on the treadmill. While I have little medical knowledge,I disagreed with
him because exercise, exercise that includes pounding, is a very effective tool in
reducing pain.
Listen up...this is very important. Don't look at this as the end of your life. I want
you to declare war on your PN. If your heart, etc., is ok, get on the treadmill or start
walking. At first, go slow and long. After awhile, go fast and long. At the beginning, it will be painful....but keep at it with dedication. After awhile, the pain will go away. Then
your PN pain will go away while on the treadmill and for some time afterwards.
Take as much pain killer as will assuage your pain.If you are offered just percoset and
you still have intense pain, get something stronger. There is no need to live with
lightening strikes of pain. If you watch your blood sugars, reading labels on foods
as if they were life and death items so that you learn that a product can state:
Sugar free but then you read sugar alcohols, corn syrup, Maliton, and many other
ingredients which really are sugars, lose weight if you're obese, and walk then run
for your life. You will beat it. Don't surrender. Treat the PN like a scurvy sucker that
is about to maul you. Confront it. And when you beat it.......be proud. This is your
personal battle and there is nobody out there who will be able to fight it but you.