| Re: Sufffered so badly from Sensory Neuropathy,but have found my solution!
I have Sensory Axonal PN.
I am taking Gabapentin (generic Neurontin).
Be very aware there are some serious horror stories associated with taking too much for your own system. This is a great med for some and a serious danger for others.
I take a BARE MINIMUM.
An unbelievably low doseage of 200 mg in morning, 100mg 4 hours later, another 100mg 4 hours after that and 200 mg at bedtime. That makes my total only 600mg total per day.
Yes, my capsules are in 100mg doses and I can chose to take either 1 or 2.
They way I do it, as described above, holds off the hot cold electrical burning just fine as well as controlling a major amount of creepy crawlies, although sometimes it feels worse so I only wait 3 hours instead of 4 between the 100 mg doses.
My Dr says I should take 200 mg each does but when I tired that much day after day I found myself very parinoid about any car in back of me when driving. So I cut back to the 600 total, as described above, instead.
Although all that horrid main pain is controlled, I do still get "some" of the creepy crawly tinglies all the time, not a lot, but enough to say they are always there. That's a small problem I'd rather have instead of that additional car driving parinoia.
For many years I took Carbamazepherin. (My PN started in winter 93-94) That got rid of all the pain nicely. But after many years I began having trouble with it making me very very VERY sleepy all day so my neuro switched me to Neurontin maybe 6 or 7 years ago or something like that.
I must say with Neurontin some of my muscle "numbness" disappeared. I CAN move all my toes now and with Carbamazepherine I could not. I still have no decent balance on the right side of one foot and leg, but I am thrilled to be able to actually control and move my toes!
I can also feel the floor and car petals under the ball of my foot and I could not do so with Carbamazepherine. True, it feels rather like tingly marshmellow on the right half of the the foot but at least it's a feeling that the foot is physically touching something, an awareness that I didn't have with the prior med.
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I'm certainly no Dr. AND I'm not always right so if I say something someone disagres with..that's fine.
When correcting me you are setting me straight and it's appreciated.
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