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Old 12-19-2008, 09:40 PM   #1
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Very strange...

So lately I have been having these episodes (well that is what i call them). My right side of my face starts to tingle and feel kind of numb it is my cheek corner of mouth and part of top lip. At the same time my right had finger will start to tingle and cramp up a little bit and my right foot will start to tingle. I also get nausea and dizziness with this. Sometimes it lasts the whole day and other times it lasts for hours at a time and then goes away but it does happen everyday sometimes right when I wake up in the morning. When the tingling and stuff goes away I am left with some dull pain in its place.

I have had an MRI or my brain and cervical with no findings so my neuro is repeating all the tests but dont go until the day after x-mas. Anyone else have these symptoms?

Any ideas what this could be? My neuro mentioned stroke which freaked me out pretty good. I am 27 year old female.

Thanks

 
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Old 12-21-2008, 09:14 AM   #2
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Re: Very strange...

hi "L",i do remember chatting with you on the brain boards a while back. what i am wondering when you mentioned you DID have the MRIs done? did YOU yourself actually read thru your own results or were you simply TOLD that there was nothing found? believe me,it DOES make a difference. some docs,espescially specialists for some reason,do blow of good solid findings from time to time only becasue they "feel" it is not a pertinent finding,when it is or could very well explain alot. i have had this done to me and i know of others too who have been simply "told' everythig was fine but when they obtained their own copies of their results,found out they were never told certain things that DID matter. if you don;t actually have your own copies of your results or never saw them yourself,get them and go thru them yourself,just to make sure.

i know youhave been having one sided symptoms for quite some time now. something has to be causing this in you,ya know? marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 12-21-2008, 01:20 PM   #3
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Re: Very strange...

Feelbad...so glad to hear from you again. Your right I have been having this for a long time!!! Seems to be worse right now though for some reason. I went and saw the neuro finally and he scared me...his exact words were "If you were 50 years old I would say you had a stroke, but since your only 27 we will just repeat all the MRIs and see what we find." He thinks something has happened between then and now. I have been freaked out ever since I went to see him.

However, I would think if he was THAT concerned he would not let me wait a week and a half to get the MRI done. Right?

I did not see any of my MRIs from before but I did read the reports with the doctors. They said normal everything.

Now I feel like I need to go to the ER everytime I have these tingly feelings because what if I am having a stroke?

Thanks
Laurin

 
Old 12-21-2008, 07:05 PM   #4
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Re: Very strange...

hi laurin,
i'm pretty sure that your neuro scared you unneccessarily. i have been having the same feelings you have described (and then some) for the past six months and no one has ever mentioned stroke to me. i have had all the tests done as well, mri's, nerve conduction, etc etc. - all normal. would a stroke keep happening again and again, as your recurring symptoms have? probably not. the only thing your doctor said that makes any sense is that you are 27 (making a stroke highly unlikely). i think it would be wise for you to find another neuro. have you injured or stressed your back or neck recently? do you have any other symptoms of pain, or in your muscles? i have learned over the many months of my pain and unusual unexplained symptoms that the human body is absolutely complex, and symptoms don't necessarily fit into one category (stroke, ms, arthritis, etc.) symptoms can also be so very painful, but not "harmful" or because of a disease or catastrophic event. please don't let this doctor alarm you. see someone else who will get to the bottom of your pain for you. i hope this helps a little. wishing you peace, lily.

Last edited by ruzalily; 12-21-2008 at 08:08 PM. Reason: used incorrect term

 
Old 12-21-2008, 07:38 PM   #5
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Re: Very strange...

A lot of your symptoms are familiar to me, I have a numbness and electrical sensations that predominately dominate my right side (arm, leg, and side of face). I even get tingles above my lip on the left side (they don't last though). I was diagnosed with small fiber sensory neuropathy, which I am by no means saying you have, but just to give you hope that there will be an answer for you out there to put all these pieces together. It's tough but be persistent in finding an answer. I went through several tentative diagnosis before I got here. Stay strong in your diligence.

 
Old 12-22-2008, 06:40 AM   #6
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Re: Very strange...

ruzalily - I know I think he did not realize how bad it would freak me out. My neuro is at the Mayo Clinic and the nurse told me he is awesome and probably one of the best doctors they have. I think that is another reason I was so scared because he obviously knows what he is doing. He did say it could be from my cervical spine or some kind of inflammatory process going on.

Yes I do have muscle pain and neck and back pain but no injuries.

Thanks Lily!!
Laurin

 
Old 12-22-2008, 06:42 AM   #7
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Re: Very strange...

bethvt - I am glad to hear that yours was nothing serious. Hopefully mine will be the same. I think I am just anxious about the MRI and wish I could just do it so I would not have to worry about it anymore.

Thanks
Laurin

 
Old 12-22-2008, 11:22 AM   #8
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Re: Very strange...

Feelbad - I had something weird last night...I was on my back porch and my leg and arm and face was tingling (as usual) when all of a sudden I felt really hot like a burning feeling. It started in both arms and my back and went up the back or my neck and into my head. Only lasted about a minute but really freaked me out. I just read another post on here and you said it happened to you too. Should I tell my doctor about this?

Thanks
Laurin

 
Old 12-23-2008, 09:14 AM   #9
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Re: Very strange...

i actually had this START in the middle of the top of my head and go DOWN,just the opposite. honestly? this was one of the very first signs of my brain aneurysm being there. this ONLY happened to me when i had it,not after it was coiled. i had no head pain at all, just some really "off' feelings in my head and that dang heat flushing. it always just went down the back of my head and dissipated into my c spine area and upper back. i could have also had other symptoms too but since my cord injury occured i am kind of used to having really wierd bizzarre things just happen for no apparent reason,so i really cannot say what else there may have been.

you did have that brain MRI right? did they use a contrast agent? it wouldn't hurt at this point to obtain whats called an MRA? this is like an MRI but they only pick up the arteries within the brain itself,thats it,no soft tissue structures to get in the way? my aneurysm did not actually really show upon the MRI i had,only the MRA. it was at a wierd bend in one of the arteries so it was much harder to actually see. it showed quite well upon the MRA.

you DO have 'something" that is causing your continued symptoms,that much we do know. its just a matter of testing all possible culprits and ruling them out and going on to the next possibility. this could also just be a big amount of muscle involvement too. muscles,when irritated/inflammed can create alot of huge problems since everything tightens up around them,including the outter covering of all organs and muscles and blood vessels called 'fascia"(this literally runs from around our brains on down to our toes)? i personally have to get a therepy called myofascial release just to relieve the over stimulation i have that really effects all my muscles,mostly the neck,base of skull and upper back. i have a spinal cord injury that just created alot of spastiscity problems for me to have to deal with. i also have had three surgeries done on my c spine area,with one directly into my cord. it caused alot of muscle damage and problems. just those muscle issues alone have created alot of pain and insane symptoms too. this is just one other possibility for you to consider.

at this point "L",i would really ask about the MRA. just getting that really good solid look at your arterial structures within the brain would either rule something in or out. its just something,considering your latest symptoms, that should be looked into. just another suggestion at this point. you just need to actually "find' that 'something" that is triggerig all this crap. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 12-23-2008, 09:44 AM   #10
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Re: Very strange...

Marcia - Thanks for your reply. I did have an MRI and they did use contrast....they found nothing. I am having another MRI with contrast on Friday so I guess if they dont find anything on that I will ask about the MRA.

My neuro will probably call me Friday afternoon to give me the results of the MRI (They are really fast at the mayo clinic. So I will talk to him about this then.)

Or maybe I should call and see if I can get the MRA at the same time? I will call today and see what they say.

Thanks again!!!
Laurin

 
Old 12-24-2008, 08:42 AM   #11
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Re: Very strange...

yep,see if they can just simply do this at the very same time. it would be much easier and probably a bit cheaper for you too. all you do is simply lie there like with the MRI. any changes come at the tech end so it would be very very simple for them to do both while you have that MRI. i really would push this at this point L. you just NEED some answers here and since that MRI alone didn't seem to actually show much,that MRA really is very important to have. the soft tissue structures within our brains can very easily hide things from view. you may want to mention that one to your doc. the MRA was the ONLY thing that showed my particular aneurysm,not the MRI. i would speak with your doc before that MRI gets done. having a contrasted MRI,while good,is NOT the same as having the MRA. two totally different things. you just need to really 'see' all the arteries,which even with contrast,you cannot always see with just that MRI. good luck hon and please keep me posted. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 12-26-2008, 05:51 PM   #12
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Re: Very strange...

Feelbad - I had my 2nd MRI today of my brain and cervical spine and the doctor called me and told me everything looked normal on both. He said next step is spinal tap to check for inflammation. I am really scared to have that done...should I be scared? Should I say no? I asked him about the MRA and he said I did not need that. He said next step after the spinal tap will be to go back to my stomach doctor since I have ulcerative colitis and see if I am getting inflammation my some stomach issue.

Any thoughts?

Thanks
Laurin

 
Old 12-30-2008, 08:44 AM   #13
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Re: Very strange...

ya know,since you are IN the very basic 'diagnostic mode' here i cannot fathom just why,since you were already going to be stuffed into that machine that he would not simply do that one more test that would just really look at only arteries inside your brain. you are looking for the generator of 'something' here,it just seems pretty stupid to me, seriously.

you may very well find out some info from that spinal tap,since everything else seems to be comming up normal,maybe it could reveal a problem of some kind. i have never actually had to have one myself so i really don;t know just what they can detect or actually find,but they do check out or rule out some possibilities with them. i just really wish he had let them do that MRA,at least you would know for certain as to whether or not there is anything vascular there that could explain symptoms ya know? this just seems a bit crazy to me since you are in that dx mode and looking for answers, to not allow that.

just one other thing you could possibly take a good look at as far as this being some level of inflammatory response? would be to actually seek out a rheumatologist and have him do their form of blood workup. believe me, when i got sent to one becasue of very heavy inflanmmation and alot of heat being generated within my knee,i got the MOST in depth and comprehensive types of testing done on me there that was about four long pages of tests that checked for ANYTHING inflammatory that it would be possible to have. amazingly thorough. this even checks for lyme disease too. this was all done thru that rheumy doc. just one other option for you at this point. i have never ever in my life had sooo many different things actually tested all at one time. some of the blood had to be sent to labs like all over the US as they only do certain types of testing at certain labs geared for it? but this ruled out a TON of possible generators and did finally give me my RSD dx in my knee. i seriously would speak to your doc about seeing that rheumy doc for just even this testing aspect. it IS very very in depth L. since you are still looking for answers,this one time testing/blood draw,certainly would rule out one heck of alot of possibilities and allow you and your doc to move onto other possibilites here. just a suggestion that may help find the culprit. good luck again,and please keep me posted hon. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 12-30-2008, 01:43 PM   #14
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k2626 HB User
Re: Very strange...

I am going through a similiar issue- numbness, twitching, nerve pains-no answers that are definitive. Not sure if mine is brain related though as another sx is EXTREME joint cracking all over.

 
Old 03-07-2011, 05:52 PM   #15
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Re: Very strange...

L...

I have been dealing with alot of the same problem for a few years..I have had MRI & MRA with/without contrast, CT Scan, Cervical XRAYS, Full BODY Scans, EMG, Chiropractors, Neurologist, Physical therapist etc..very frustrating..The most frustrating thing is when they tell you that everything looks normal..Happy that you are okay, but still in the dark about what th eheck is causing these bizarre symptoms..I have had all right sided pain for almost 4 years, terrible neck pain, pressure at the base of y skull on the right side...the side of my neck down to my shoulder is extremely sore like someone has kicked me over & over, same pain around my shoulder blade and in my armpit...I saw in a previous post..you mentioned feelings of your sinuses opening up..I thought I would fall off my chair when I read that..I have been telling everyone who will listen of that same sensation and they think I am nuts. I am presently having Phenol injections done by a pain doctor...I have had botox injections in my muscles in the past.

I am with FEELBAD all the way about Fascia & muscle pain..You would be amazed how much pain you can be in and how it starts to affect your whole body...Its like you have to peel the onion layers piece by piece. A Spinal Tap was also recommended to me but I have not had that yet...however I did have a Blood Patch...which is where they take your own blood and inject it into your spinal cord..needless to say this procedure did not work and left me with pain at the injection site for almost a year.

I will let you know if there is ANY new information I hear of and I would hope you can do the same for me. I hope you find answers soon.


 
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