Very strange... - Neuropathy Message Board

lsmith1 · 12-19-2008, 09:40 PM

So lately I have been having these episodes (well that is what i call them). My right side of my face starts to tingle and feel kind of numb it is my cheek corner of mouth and part of top lip. At the same time my right had finger will start to tingle and cramp up a little bit and my right foot will start to tingle. I also get nausea and dizziness with this. Sometimes it lasts the whole day and other times it lasts for hours at a time and then goes away but it does happen everyday sometimes right when I wake up in the morning. When the tingling and stuff goes away I am left with some dull pain in its place.

I have had an MRI or my brain and cervical with no findings so my neuro is repeating all the tests but dont go until the day after x-mas. Anyone else have these symptoms?

Any ideas what this could be? My neuro mentioned stroke which freaked me out pretty good. I am 27 year old female.

Thanks

feelbad · 12-21-2008, 09:14 AM

hi "L",i do remember chatting with you on the brain boards a while back. what i am wondering when you mentioned you DID have the MRIs done? did YOU yourself actually read thru your own results or were you simply TOLD that there was nothing found? believe me,it DOES make a difference. some docs,espescially specialists for some reason,do blow of good solid findings from time to time only becasue they "feel" it is not a pertinent finding,when it is or could very well explain alot. i have had this done to me and i know of others too who have been simply "told' everythig was fine but when they obtained their own copies of their results,found out they were never told certain things that DID matter. if you don;t actually have your own copies of your results or never saw them yourself,get them and go thru them yourself,just to make sure.

i know youhave been having one sided symptoms for quite some time now. something has to be causing this in you,ya know? marcia

lsmith1 · 12-21-2008, 01:20 PM

Feelbad...so glad to hear from you again. Your right I have been having this for a long time!!! Seems to be worse right now though for some reason. I went and saw the neuro finally and he scared me...his exact words were "If you were 50 years old I would say you had a stroke, but since your only 27 we will just repeat all the MRIs and see what we find." He thinks something has happened between then and now. I have been freaked out ever since I went to see him.

However, I would think if he was THAT concerned he would not let me wait a week and a half to get the MRI done. Right?

I did not see any of my MRIs from before but I did read the reports with the doctors. They said normal everything.

Now I feel like I need to go to the ER everytime I have these tingly feelings because what if I am having a stroke?

Thanks
Laurin

ruzalily · 12-21-2008, 07:05 PM

hi laurin,
i'm pretty sure that your neuro scared you unneccessarily. i have been having the same feelings you have described (and then some) for the past six months and no one has ever mentioned stroke to me. i have had all the tests done as well, mri's, nerve conduction, etc etc. - all normal. would a stroke keep happening again and again, as your recurring symptoms have? probably not. the only thing your doctor said that makes any sense is that you are 27 (making a stroke highly unlikely). i think it would be wise for you to find another neuro. have you injured or stressed your back or neck recently? do you have any other symptoms of pain, or in your muscles? i have learned over the many months of my pain and unusual unexplained symptoms that the human body is absolutely complex, and symptoms don't necessarily fit into one category (stroke, ms, arthritis, etc.) symptoms can also be so very painful, but not "harmful" or because of a disease or catastrophic event. please don't let this doctor alarm you. see someone else who will get to the bottom of your pain for you. i hope this helps a little. wishing you peace, lily.

bethvt · 12-21-2008, 07:38 PM

A lot of your symptoms are familiar to me, I have a numbness and electrical sensations that predominately dominate my right side (arm, leg, and side of face). I even get tingles above my lip on the left side (they don't last though). I was diagnosed with small fiber sensory neuropathy, which I am by no means saying you have, but just to give you hope that there will be an answer for you out there to put all these pieces together. It's tough but be persistent in finding an answer. I went through several tentative diagnosis before I got here. Stay strong in your diligence.