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Old 01-08-2009, 12:31 PM   #1
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sandy0766 HB User
Rasmussen's Encephalitis

We are pretty sure my step daughter has this. She will have IVIG therapy next week for the first time. She had brain surgery in Nov. and the seizures seemed to stop , but now they are coming back to about 8 a day. Has anyone had IVIG for seizure disorder.

thank you

 
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Old 01-09-2009, 11:26 AM   #2
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ppanther14 HB User
Re: Rasmussen's Encephalitis

Quote:
Originally Posted by sandy0766 View Post
We are pretty sure my step daughter has this. She will have IVIG therapy next week for the first time. She had brain surgery in Nov. and the seizures seemed to stop , but now they are coming back to about 8 a day. Has anyone had IVIG for seizure disorder.

thank you
I dont get IVIG for seizure disorder but get it for small fiber neropathy and have not gotten any releaf from it with Gamunex. I did how ever get some relef from the Grmigard, but I did how ever have a very bad headache reaction from it. If your daughter has problems with headaches I warn your to please watch her for that. Mine where very bad when I was receiving Gamogard and they then switched me to Gamunex which doesn't give me a headache of any kind but I also pretreat myself with tylonel and topomax.
Good luck with the IVIGs and hope all goes well. ppanther14

 
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