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Old 06-17-2009, 09:05 PM   #1
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Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!



For over 4 years I have consulted numerous doctors, neurologists, podiatrists, a rehabilitation hospital, the emergency room of a major hospital and a pain management clinic, in and out of my health network.

The pain persists between the metatarsals of the first and second toe of my right foot. I have tried L5 back surgery, neurontin, lyrica and morphine.

Right now I take lyrica at night. During the day I go between advil and tylenol. I've tried so many pain medications only to settle down with this regimen.

I am frustrated and angry with my medical providers. In addition to an MRI of the foot, an xray of the same foot, neurological studies and recommendations from podiatrists no relief is forthcoming.

I do not do well with drugs such as morphine. Morphine makes me sick. I have an addictive personality. Such meds would not serve me well in the long run.

The very latest from my pain management doctor is as follows:

1. The pain in not psychological

2. Use a drug such as morphine as it provides relief

3. Use an electronic signal device which masks the pain.
It is surgically implanted.

There has to be better options out there!

If I could afford to go the Mayo Clinic or the Cleveland Clinic, I would do so.

I am not convinced that all investigative options have been tried!

YOUR THOUGHTS WOULD BE GRATEFULLY APPRECIATED !

 
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Old 06-21-2009, 06:09 PM   #2
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Re: Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!

Is the pain from a nerve entrapment? Did you have a nerve conduction study? If so, where is the nerve entrapped? Has anyone spoken to you about nerve release surgery?

I have Anterior Tarsal Tunnel - an entrapped nerve in my ankle due to several ankle surgeries. My orthopaedic surgeon has injected me twice with fairly good success. If you respond to the injections then you are a candidate for nerve release. I have chosen a "wait and see" and see how I do with injections only as I do not want another ankle surgery.

I still have pain and am on Lyrica at night and pain meds during the day, but the pain is MUCH better since the injection. My pain was also between the first and second toe which is where I have a fairly large area of numbness as well.

emmie

 
Old 06-23-2009, 08:02 AM   #3
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Thumbs up Re: Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!

emmie54

THANK YOU FOR YOUR KINDNESS IN RESPONDING.

Nerve entrapment or a neuroma have been recently given as the problem. However, after an MRI of the foot, the doctor suggested only a) morphine or something similar AND b)neurostimulation therapy. He further stated that if the neuroma is removed it only creates another neuroma.

I had 2 prior nerve conduction studies.

The nerve is entrapped between the first and second toe of the right foot, between the two metarsals. There is the empty space between those toes, and then for about 4 inches back is where the center of the pain begins.

I'm not familiar with "nerve release surgery". Does that mean the nerve is cut or damaged in some way?

I have a kind neighbor and occupational medicine physician who has offered to come over to my home one evening this week. I have emailed him a more detailed email with the history of the problem.

PLEASE TELL ME MORE ABOUT THE INJECTION!

 
Old 06-24-2009, 01:44 PM   #4
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Re: Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!

Tarsal tunnel nerve release is usually done by an orthopaedic foot and ankle surgeon or a podiatrist that is also a surgeon. I only use a foot and ankle ortho for my foot issues. He is the one who has done the injections. They make an incision on the top of your foot and release the nerve from whatever is entrapping it, usually scar tissue. The recovery is about six weeks. My entrapment is at the ankle but the pain goes to the big toe. He did a nerve block injection a couple of inches above the ankle in the front/lower leg. It felt better immediately.

I would see an orthopaedic foot and ankle specialist for an evaluation. Let me know how it goes for you or if you have any other questions I can help you with.

emmie

 
Old 08-30-2010, 05:01 PM   #5
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Re: Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!

Quote:
Originally Posted by Kento View Post
emmie54

THANK YOU FOR YOUR KINDNESS IN RESPONDING.

Nerve entrapment or a neuroma have been recently given as the problem. However, after an MRI of the foot, the doctor suggested only a) morphine or something similar AND b)neurostimulation therapy. He further stated that if the neuroma is removed it only creates another neuroma.

I had 2 prior nerve conduction studies.

The nerve is entrapped between the first and second toe of the right foot, between the two metarsals. There is the empty space between those toes, and then for about 4 inches back is where the center of the pain begins.

I'm not familiar with "nerve release surgery". Does that mean the nerve is cut or damaged in some way?

I have a kind neighbor and occupational medicine physician who has offered to come over to my home one evening this week. I have emailed him a more detailed email with the history of the problem.

PLEASE TELL ME MORE ABOUT THE INJECTION!
I'm late getting into this post but thought my opinion as a
ADVANCED EXPERT FOOT PATIENT might enlighten you as to what your stuck with.

Quote:
I'm not familiar with "nerve release surgery". Does that mean the nerve is cut or damaged in some way?
YES, it means SEVERING the nerve and you DO NOT WANT THIS...pull up a chair, Here's my nightmare;

I had this so called "Nerve Release" or as my Ortho mildly put it, "Nerve Clipping".

Saw an Ortho Foot surgeon for a Fractured Sessamoid that he had to cut out. Upon anestesia and post surgery pain block wore off, I was in a state of new pain I never had before, that on a scale it was at the ceiling, period.
Dr kept saying take the pain meds, see you in a week. See him in a week screaming of pain between first\second metatarsals.
He said give it time.
Go back a week later and this time his Podiatrist just out of school doing her residency with my MD surgeon walks into the treatin groom to take out the stitches and drops this bomb on me that shattered my world...

" How are you feeling, cause my arms and shoulders are sore from spreading your foot open for the doc, he kept saying WIDER, WIDER".

The MD comes in and says;
" Sometimes we have to really spread the incision area open wider to get in and the "DEEP PERONEAL NERVE gets compressed sometimes, but it should be ok soon".


It didnt, I asked for more pain meds. He also tried (2) ankle blocks that he either must have missed the nerve, or didnt use any real pain med.
He then said

" You must have RSD, go find a pain mgmt dr" and sent me on my way.

I found a pain mgmt dr who prescribed and upped me to 3300 mg neurontin, and lyrica, symbalta with ZERO positive effect. Left me with NUMEROUS NEGATIVE effects.

Pain mgmt dr did series of 4-5 nerve blocks to the back. Little RESULTS.
He said;
"I will communicate with your DR, but go back to him and tell your dr you DO NOT have RSD, there is something else going on at the nerve severed area"

The Ortho MD said

" Lets go in and Clip the Nerve between the 1st\2nd toe and you'll be ok, just numb".


I almost cried and said "YES, oh god please yes".

He severed the Deep Peroneal nerve between the 1st\2nd Metatarsals and the outcome left me with the same level of agonizing constant burning cold pain.
Sadly I now think of suicide at least a few times a week and still too chicken to do it, I see it as the only way to be free oneday. I'm out of work unemployed 19 months now with no future, living in LEVEL 10 CONSTANT BURNING, COLD, THROBBING PAIN 2 years and 1 month. I was a ACTIVE 45 year old 6'1 200 lb athlete that was in a gym 5 days a week pushing plates and now I sit here writing this on my 3rd tall boy beer.. I am at lessor pain when sitting with the foot elevated.

The Foot Ortho said;

" I dont know what else to do for you, you need to find and get on pain mgmt", and sent me on my way......

I look back now and wonder
Why didnt he send me to nerve conduction studies, or Nerve MRI study.?
Why did he decide to cut the nerve without consulting other dr's.. I am HAUNTED by this...

I then found another Dr that is a DO that treats pain at the nerve level and not with opiates.
He does RFA - RadioFrequency Abalation where he uses a catheter and burns the nerve area tha tis signaling pain. It lasts a few months and then is back WITH A VENGENCE...
Personally ( In my case) this procedure eventually wore off and the pain came back WITH A VENGENCE due to the burning of a nerve..But my case is more severe as the nerve was ;

Crushed, then severed surgically and yet I still could feel below the severed nerve area which the dr said I SHOULD NOT BE ABLE TO BUT HE TESTED ME AND SAID;

" Yep, you have sensation, I guess I didnt clip the entire nerve or it rolled back doen and re-connected"

I honestly wanted to CHOKE THE LIFE OUT OF HIM AT THE MOMENT AND I EASILY COULD HAVE" But didnt want to spend the rest of my life in agony in a state prison.. Otherwise, he would have been a dead man....

SO,

Allowing someone to cut your nerve you better think twice and get MANY second opinions, ask questions I NEVER DID.....

Questions to ask AND HAVE ANSWERED by a Surgeon
If he\she refuses or is offended, GET RID OF HIM\HER


Q - Have you ever performed this procedure before
Q - How many times
Q - What was the success rate
Q - What were the complications
Q - Would you undergo this procedure for this complaint.


Damn these money hungry, surgery calendar filling doctors who only think of us as "A PROCEDURE" and not
"How is what I am about to do going to effect this person the rest of their life

DO NOT LET ANYONE.....ANYONE CUT A NERVE IN YOUR FOOT OR YOUR LIFE, LIKE MINE WILL BE OVER AS YOU ONCE KNEW IT.

Last edited by RJ2009; 08-30-2010 at 05:04 PM.

 
Old 08-30-2010, 05:13 PM   #6
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Re: Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!

I had the mortons neuroma surgery between my second and third toes back in dec 2009,
I have only gotten worse since. I now have rsd in my left foot left leg and left arm and hand, I read somewhere online after this happened to me that mortons neuroma surgery runs high risk of getting rsd, be very careful and good luck
kelly

 
Old 08-23-2011, 09:31 PM   #7
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Re: Chronic peroneal nerve pain between 1st and 2nd toe right foot !!!

I hope to find your post again. I am researching relief for a similar issue. Should I find a cure, I will inform you. God bless.

 
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