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Old 06-19-2009, 11:42 AM   #1
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Transverse myelitis.

Hi,

I have finally been given a diagnosis of Transverse Myelitis from a Neurologist. ( Just in case anyone reads my posts and wonders what the outcome was) Im not sure whether this comes under Neuropathy or back issues now.

I find it strange how he came to this conclusion as in my opinion the examination he gave me on my appointment with him was no where near as good or a thourough as the doctors in the emergency room. He even said that my MRI spine scan showed up nothing abnormal. So how he came to this diagnosis I do not know as everything I have read says that Transverse Myelitis, inflamation of the spinal chord, shows up as white areas on an MRI scan. However all the symptoms and problems I had are mentioned in symptoms of TM information i have read. He did send me for a MRI brain scan, which I had yesterday 18.06.09. I have to wait to see him on the 4th August for the results.

Apparently my TM symptoms should improve greatly in weeks 2 - 12. (Currently on week 8) What has not however improved at six months in unlikely to ever improve. However slight improvements are sometimes made in two years !!!
Currently I still have issues in the bottom area, plus my feet swing from being freezing cold to tingly and hot and my toes feel as if something is permanantely wedged between them. My legs are still buzzing/vibrating when I walk for more than 5 minutes and gets more intense the longer I walk. However the numbness I originally experienced in both my legs has improved significantly.

I constantly searched the net for info since i have been unwell and i hope my postings may be helpful to others in similar circumstances now and in the future.

Last edited by UK SUSIE; 06-19-2009 at 11:42 AM.

 
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Old 06-19-2009, 01:46 PM   #2
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daisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB User
Re: Transverse myelitis.

Hi UK Suzy! I am at a loss as to how Dr's come to these conclusions as well, but at least you may have a starting point for treatment.
I have all of the same issues with my feet as you and have had no success with treatments of any kind. I have suffered with symptoms for 3 years so I am getting discouraged.
You had the MRI in June and can't get in to get results until August? Wow, I thought we had long waits in Canada!!!
I really wish you success! I am hopeful for you!
Keep us posted to your progress and if you find any help for the neuropathy, please let us know! We have to share and help each other! I have learned so much from these boards!
best wishes Daisy

 
Old 06-20-2009, 07:08 AM   #3
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Re: Transverse myelitis.

hi susie
my wife had been diagnosed with tm in 2002 and had had many similiar problems. I wish you the best and strongly encourage you to constantly get second opinions and question the doctors. some are very good and others act like the know what they are doing but really dont. everyones case is different and that doesn't help in the treatment. stay active and be positive it will help you alot. take care...steve

 
Old 06-21-2009, 10:46 AM   #4
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Re: Transverse myelitis.

Well to be fair I had my first spine MRI on the 24th april and an appointment with the neurologist came for the 2nd June. The next appiontment to see him came for the 4th August before the appointment for the brain MRI on the 18th June came.
The way I'm looking at it is if theres nothing wrong with my brain scan then they won't bring the appointment forward and if there is they might. Im just glad it didn't cost me anything unlike alot of people who post on here. Mind you I've probably more than paid for it in taxes over the last 28 years!

I'm still of the opinion that I could have damage to the Pudendal nerve as all my symptoms fit with what I have read about it. My own GP said to mention it again when I see the Neurologist. I do realise he is the expert but I also think alot of their diagnosis is guessing and I'm not convinced of the transverse myelitis.

Last edited by UK SUSIE; 06-21-2009 at 10:47 AM.

 
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