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Old 12-12-2009, 08:00 PM   #106
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Re: I have SFN-Do You?

Hi everyone!
Barbara, I am sorry that you aren't feeling too perky. I am in the same boat as you. We have had a stretch of cold temperatures here too which is unusual on our west coast and I am achy all over. I am not feeling well at all, but I am sure mine is related in part to this busy season we are in. I want to bury my head under the covers when I think of all that I want to do to get ready for Christmas. I have cut down on much of the cooking and baking and shopping that I have done in the past, as I don't have very much stamina or strength. And the worst part is that I feel so guilty for not wanting to make more of a fuss with decorating and present buying. I know that this is all of my own making, No one in my family is making me feel badly, it's just me mourning the happy energetic person I used to be.
I hope that you will feel better soon and I am so happy that you check in with all of us here as we care about you. This can be a bad time of year as we all tend to over extend ourselves. Rest when you can, and hopefully you will enjoy some holiday cheer with family and friends!
As I live where we rarely get snow or cold temperatures I have nothing but respect for those of you that battle temperatures in the minus and SFN.
Best wishes as always,
Daisy

 
Old 12-13-2009, 06:03 PM   #107
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will54 HB User
Re: I have SFN-Do You?

Hello To Everybody,

Let's make this the last entry on this thread. The administrator will lock this thread because we have gone so far over about (87) replies. I will start another tonight, so there will be no lag in places to write and read.

To all, fight SFN with all your strength and never,never,never ever quit!

Will

 
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Old 12-16-2009, 09:32 AM   #108
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Holton HB User
Re: I have SFN-Do You?

What I hate about sfn is the cocktail of drugs i have to take. cymbalta neurontine,
tramadol in the highest doses - i feel like a zombie have no emotions and have lost
my sexual drive - what's more my wife is divorcing me and i'm left alone.

 
Old 01-09-2010, 07:51 PM   #109
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suziedarling HB User
Re: I have SFN-Do You?

What does SFN stand for? My husband has peripheral neuropathy of his feet, and I was looking for ideas on the message board, and found the SFN thread. Thanks

 
Old 01-10-2010, 08:29 PM   #110
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will54 HB User
Re: I have SFN-Do You?

Suziedarling,

SFN stands for Small Fiber Neuropathy. Some people have it in just certain locations or body wide.
There are more writings about SFN in past threads and more up to date threads. This thread is an old one. You can go back several pages and find quite a bit of information.
Good luck,

Will

 
Old 08-23-2011, 08:21 AM   #111
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Re: I have SFN-Do You?

I was looking for this thread. I have started to understand, in this last year, what is going on with feet on fire with stabbing shocks. Now whole foot.
Have docs in Boston. Slow progress.
Got EMG recently and SFN dx.
Weird how toes and bottoms of feet became numb after EMG. Now more balance trouble.
Already been on Neurotion for @ 20 years for RLeg.
Take 600 4X day, try to keep 6 hrs between.
Taking 5,000 mug Methyl B12. Think it was helping.
Guess I am in for a journey! :/
Legs, hands and face now joining in.

That's my story and I am sticking to it! :]
Thanking all for this forum!
Peace

 
Old 08-23-2011, 08:29 AM   #112
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Re: I have SFN-Do You?

Will, trying to find new thread for gang of SFN?
Appreciate you, Barbara and everyone's posts and the exchange of symptoms and information is so valuable. :]
peace

 
Old 08-23-2011, 10:28 PM   #113
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Re: I have SFN-Do You?

Hi Capewind - Unfortunately Will no longer posts on this board. His threads, like this one, were invaluable to me when I first had SFN. Wish he and the gang were still around. - Ruby

 
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Old 08-26-2011, 09:39 PM   #114
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Re: I have SFN-Do You?

Hi Capewind,
Ruby is right, we did learn a lot as a group sharing what we knew about neuropathy. I am so sorry you are suffering. Not much seems to have been done in the way of research about this debilitating problem. At least not that I am aware of!
We all just seem to cope as best we can.
I miss the group we had here too. Sometimes it just gets too hard to think about how our lives have changed since neuropathy came to live with us.
I have had it for 6 years now. Mine is auto immune, related to my Rheumatoid arthritis so I am told.
Best wishes to you!
Daisy

 
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