It appears you have not yet registered with our community. To register please click here...


 Home Message Boards Videos Join for Free User Blogs Board Index
Search
 
Forgot your username or password?


Neuropathy Message Board
Post New Thread   Reply Reply
Share
 
 
LinkBack Thread Tools Search this Thread Display Modes
Old 09-14-2009, 12:07 PM   #1
Newbie
(female)
 
Join Date: Sep 2009
Posts: 2
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
sick n tired HB User
Question NEUROPATHY Pins n Needles and RA joint pain with stinging hands n feet

I was a normal 30 year old woman with 1 child when I found out I was pregnant. Pregnancy was normal for a few months, then I started experiencing terrible aching hips, shoulders, foot tenderness and fatigue. I attributed all of these symtoms to pregnancy and figured the would all subside after delivery. I was wrong.
After the birth of my child my symptoms intensified. My legs began to swell with edema for a few weeks. when the edema suddenly went away my legs began to go numb in several places. My doctor had no answers for this and referred my to neurologist. While waiting to see him I developed terrible burning, stinging pain and hyper sensitivity in my feet and hands. Like being stung by fire ants all oner feet. Neurologist ran tests confirming nerve damage and neuropathy with no explanation (idiopathic) and told me I would have it FOREVER. He prescribed meds that did not work like gabapentin, tramadol, vicodin, motrin, these meds did not worlk so the pain drove me to triple the doses, this was and is dangerous but offered me minimal relief and any relief was better than none. Finally I switched to Lyrica and that works great on the nerve pain and stinging pain but I began to notice a different pain developing.
There was a pain in the balls of my feet that feels like I am walking on a sharp rock with every step or even just standing. It got so bad that I quit wearing shoes because the sensitivity and that rock in my feet was to much for me to bear. I now have an extensive collection of house slippers with memory foam soles and padded insert to help with the pain but ultimately I am bound to a reclining chair with my feet up for most of the day. I can not go and do normal things like shopping or runand play with my kids. My pain has taken over my life.
Recently pain in my hands began to get worse finger joints and wrists aching and sharp pains in wrist and hands and tenderness in my scalp. Also tightness in calves, ankles , aching knees and ankles. Rheumatologist told now I have Rheumatoid Arthritis ( lucky me) and wants to start me on Plaquinel. Podiatrist said I have tarsel tunnel (yipe) and wants to put me on steroids and shots, pain management wants to inject nerves in my feet to completely block out sensation an load me up with pain meds. I dont know if these kooky doctors have even diagnosed me correctly and I don't really trust them especially since they are now treating my like a drug seeker I'ts like they are sick of me hounding for answers and different meds. I just know that there has to be a med out there that will help?

I was a normal person 3 years ago. What happened to my body ? Why did this happen? Was it the pregnancy? Why am I the only only one in my family with this? Why do doctors fail to aknowledge my pain and fatigue? Why do doctors treat me like a drug seeker trying to get pills? I have a 2 year old baby and 6 year old with autism and I just want my life back. I am very dicouraged about my future. Thinking about the future makes me wanna give up and just throw in the towel. 3 years of hell has literally broken me. I can not work to support my children, but disability keeps denying my claim so I have no money and have to depend on foodstamps to feed my children.

Is there anyone out there like me? Anyone I can talk to. I feel so alone and noone understands my agony. Please someone respond I need some hope to go on

 
Reply With Quote
Sponsors Lightbulb
   
Old 09-15-2009, 09:10 AM   #2
Senior Veteran
(female)
 
1sunny1's Avatar
 
Join Date: Aug 2006
Posts: 845
Hugs: 3
Hugged 2 Times in 2 Posts
Thanks: 1
Thanked 2 Times in 2 Posts
1sunny1 HB User
Re: NEUROPATHY Pins n Needles and RA joint pain with stinging hands n feet

Are you still taking Lyrica? If so what dosage? I take Lyrica for Fibromyalgia and the burning of the feet, it helps immensely, but I had to wean myself down from 300mg to 75mg, because my feet felt like you describe yours, the Lyrica was causing the problem, although it was taking away some of my other pain. I still take it and it helps still at 75mg, not as much as before, but the feet problem has almost gone away completely. Also, I am thinking you might want to check into Fibromyalgia, it is a real disease,, but the trick is to find a doctor that believes in it.

Sunny

 
Reply With Quote
Old 09-15-2009, 08:59 PM   #3
Newbie
(female)
 
Join Date: Sep 2009
Posts: 2
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
sick n tired HB User
Re: NEUROPATHY Pins n Needles and RA joint pain with stinging hands n feet

Quote:
Originally Posted by 1sunny1 View Post
Are you still taking Lyrica? If so what dosage? I take Lyrica for Fibromyalgia and the burning of the feet, it helps immensely, but I had to wean myself down from 300mg to 75mg, because my feet felt like you describe yours, the Lyrica was causing the problem, although it was taking away some of my other pain. I still take it and it helps still at 75mg, not as much as before, but the feet problem has almost gone away completely. Also, I am thinking you might want to check into Fibromyalgia, it is a real disease,, but the trick is to find a doctor that believes in it.

Sunny
thamks for replying. I don't know what disease is attacking my body. I just got back from the rhuematologist and after getting all my test results back he told me that I have psoriatic arthritis and idiopthic neuropathy. I don't even know if he is right. I just keep getting pills shoved down my throat and I don't feel like they have the right diagnosis. I am just in so much pain in my joints and my feet hurt and burn sooo bad that I feel like screaming sometimes. I have to keep telling myself "you can do this", but at the same time I just want to give up. Please tell me about fibromyalgia and what you are experiencing with it. I would like to know what it is and what the symtoms are. I am taking Dilantin, tramadol, vicodin, plaquenel, prednisone, methylprednisone, lyrica, ibuprofin, naproxin, celebrex and more. Even with all that I am still in agony, I think God is punishing me sometimes. Oh well, please tell me about your pain. thanks.

 
Reply With Quote
Old 09-15-2009, 09:58 PM   #4
Senior Veteran
(female)
 
1sunny1's Avatar
 
Join Date: Aug 2006
Posts: 845
Hugs: 3
Hugged 2 Times in 2 Posts
Thanks: 1
Thanked 2 Times in 2 Posts
1sunny1 HB User
Re: NEUROPATHY Pins n Needles and RA joint pain with stinging hands n feet

Fibromyalgia affects everyone differently. There is a sticky note on this board and tells all about fibromyalgia. I get joint aches at different places at different times. cold weather can make it worse, and hot weather can make it worse. The burning of the feet was horrible, I used to get up in the middle of the night and put my feet in cold water. I started on Neurontin, which worked for a while then quit working at 600mg. I went to a Pain Management doctor that put me on Lyrica and Cymbalta, the two together works wonders. You can tell me to butt out, but it seems you are taking way too many pills. Plaquenel works in place of Prednisone or vice versa. I have taken both without any success, I should say the prednisone worked a little. but I did not want to be on it forever and there were too many side affects.

Maybe you can ask your doc to refer you to a good pain management doc. Hope you get to feeling better, and remember, you are not alone out there.

Sunny

Last edited by 1sunny1; 09-15-2009 at 09:59 PM.

 
Reply With Quote
Old 02-02-2010, 10:49 PM   #5
Junior Member
(female)
 
Join Date: Feb 2010
Posts: 17
Hugs: 0
Hugged 0 Times in 0 Posts
Thanks: 0
Thanked 0 Times in 0 Posts
ajosli HB User
Re: NEUROPATHY Pins n Needles and RA joint pain with stinging hands n feet

I swear I felt like u were telling my story! I am so sorry u r going thru this and I understand the feeling that no one understands what ur going thru. it is not something that one can see therefore most people cannot belive in it. It is so hard living with chronic pain and I wish I had some answers for u! however I am on here looking for the same thing you r...answers! It is good to know there is someone out there who understans this struggle but I am so sorry u have to go thru this. I wish u all the best! Get a pain management Dr.

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Pins & Needles or skin stinging pain or radiating heat? lori120 Fibromyalgia 9 05-16-2009 12:44 AM
Small Fiber Neuropathy will54 Reflex Sympathetic Dystrophy 18 05-03-2009 02:20 AM
Diabetic Neuropathy? ebrena Diabetes 3 10-07-2007 02:05 PM
Question about pins and needles in hands/feet Max'sMom Multiple Sclerosis 2 08-21-2006 05:23 PM
Is this neuropathy? NotFadeAway Neuropathy 1 02-24-2006 05:21 AM




Bookmarks

Thread Tools Search this Thread
Search this Thread:

Advanced Search
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off













TOP THANKED CONTRIBUTORS

Neuropathy

RisingParrot (33), Aussie100 (18), captinsane1 (14), Ruby8 (12), awlright (9), tingles (6), jverive (6), daisymaegrif (6), Ihate2w8 (6), cocoa100 (4)

Site Wide Totals

thanbey (581), janewhite1 (528), BlueSkies14 (511), SpineAZ (484), DGabriel10 (470), mscat40 (424), tetonteri66 (421), jennybyc (405), sammy64 (392), jgrangran (364)

All times are GMT -7. The time now is 12:30 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2012 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!


SEO by vBSEO ©2011, Crawlability, Inc.