Originally Posted by jr4855
not aware of a facial pain association - but I will start looking now. Also not fimiliar with decompression surgery - will also look into that. thank you for the information. what was the cause of sisters pain?
The TN was caused by the arterial loop pressing against the trigeminal nerve and rubbing a raw place. Malformation due to injury or a congenital defect (hers) are the usual causes. They drilled a hole in her head behind the ear and tacked the arterial loop up and away from the nerve. They then took the group of nerves (there are several grouped there), separated them and wrapped the trigeminal one with a type of teflon so that nothing could touch it and set it off again. If you do some searching you can find some good articles on it. Also, on an episode of the The Doctors several months ago, they actually showed a clip of this procedure.
I will caution you that many neurologists are not well versed on this condition. She couldn't find one in New Orleans - where she lives - who knew anything about cures. They just kept giving her prescriptions. She went online and found out about the U of Pittsburgh TN Clinic and Dr Genera (sp?) who invented the procedure. My BIL is a dentist so he wrote the referral and off they went.