Peripheral Neuropathy with Benign Spinal Cord Tumor - Neuropathy Message Board

mcarver · 06-15-2001, 01:07 PM

I have had problems with my lower back since the age of 12. Started in my left leg. By the time I was 16, I would get out of breath, my legs and back would tighten up so bad I had to stop and rest walking up stairs or any incline. At age 43, I had a posterior/anterior spinal fusion (L4-L5 with BAC cages and screws) to take care of the pain from spondylolisthesis, and a congenital deformity. (That being L5 fused to the sacrum on the right side.) The pain got worse after surgery and I had to stop working. A year & 1/2 ago, my Dr. was getting pretty ****ed at me because he could not make sence of my new and ever improving symptoms of pain. So he ordered a thorasic MRI. He said it was rare, but some times you can have something in that area that may be causing my symptoms. Well, It turned out,I have an inoperable, intracord lipoma. Boy, was the Dr shocked. So now I sit and wonder what will happen to me as the tumor in my spinal cord grows. More pain as it grows or will I wake up one day with no feeling in part of my leg or better still will the bed be wet? LOL!
It would be a great help to correspond with some one who knows.
Thanks, mcarver@fuse.net

imdcms · 06-24-2001, 10:25 PM

If I were you, I would get more opinions about what it is and if it is definitely inoperable. Sorry I can't be of anymore help. This is a new one for me, but it has peaked my interest and I may research it further. You might want to ask the same questions on the web site [url="http://www.spine-dr.com"]www.spine-dr.com[/url] Good luck to you and keep me posted. If I find out anything of interest, I'll do the same.

imdcms · 06-24-2001, 10:33 PM

If I were you, I would get more opinions about what it is and if it is definitely inoperable. Sorry I can't be of anymore help. This is a new one for me, but it has peaked my interest and I may research it further. You might want to ask the same questions on the web site [url="http://www.spine-dr.com."]www.spine-dr.com.[/url] Good luck to you and keep me posted. If I find out anything of interest, I'll do the same.

mcarver · 06-26-2001, 08:08 PM

Thank you for your thoughts IMDCMS. I have been to many Dr's and all say If the tumor doesn't paralyze, the surgery will. It is in a very bad place. I will check the page out you recommended.
Thanks again