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Old 12-09-2010, 11:22 AM   #1
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ppage58 HB User
New to sfn

I know there are alot of people out there with sfn.and i really hate to know that we all have to go through this pain.i drove a big rig since 2001.my neuopathy got so bad i started having panic attacks.truck driving and sfn and panic attacks because of burning pain just dont mix very well so i quit driving in feb 2010.sfn has spread from feet and hands.now its in arms,leggs,back,and of couse my butt.50mg amitriptyline helps me sleep at night.600mg gabapentin three tims a day and 50mg tramadol1 or 2 pills three times barely takes the edge off during the day.all we can do is keep our heads up.my neuo wanted me to file for ssi.he said he would help me with this.so i filed last month.paper work oh my gosh it drives me nuts.does anyone know what meds may help me during the day.mine dont seem to work.thanks for being here for me.

 
Old 12-09-2010, 05:00 PM   #2
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marybailey HB Usermarybailey HB User
Re: New to sfn

sorry you have to experience this pain. i find comfort in the fact that there are many medications out there and even more being developed all the time. sorry you are unable to work. i am also. i am 30 and hope to have some type of career again in the future.

 
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Old 12-09-2010, 07:32 PM   #3
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daisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB Userdaisymaegrl HB User
Re: New to sfn

Hi ppage58
Welcome to our little group of SFN'ers! I have had it for over 6 years now. I have tried all of the medications you have listed and many, many more. I am now on Dilaudid for the pain, the Tramadol didn't provide enough pain relief and none of the usual meds for peripheral neuropathy made any difference at all. I am also trying out acupuncture with success.
My husband has been a semi driver for over 35 years and I know how much he loves his job, so I can sympathize with you having to give this up. I hope that you can receive a disability pension or find something that doesn't play havoc with the neuropathy.
Best wishes and I hope you find something that helps you.
Daisy

 
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Old 12-10-2010, 03:46 PM   #4
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Holton HB User
Re: New to sfn

Hi
I feel for you. I have had sfn in my feet and face for 3 years. I am on 120 Duloxetine,
600 Tramadol, 300 Lyrica and that JUST makes the feet tolerable but my face plagues me.

Could I suggest you see about upping your meds - you can take Gabapentin up to 3600
and might help the panic attacks as does duloxetine. Of course you are a pro driver
and may have licence problems - I don't know if you are permanently retired.

Try and hang in there - keep pestering the medics! Thats what they are paid for; to help
you!

Best wishes Holton - it's Midnight and I can't sleep!!

Last edited by Holton; 12-10-2010 at 03:49 PM. Reason: Typo

 
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