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Old 04-28-2011, 12:13 AM   #1
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Smile Using higer dose of B12

I always maintained a good nutritional life style. Since advent of neuropathy tried to improve on it. However in the last three months I've been using B12 as lozenges in the area of 5 or 6, 000 mcgs. It was not a supplement I used before. I was doing PP every three weeks and fell to two. It was then that I increased my B12 to 10, 000 mcgs daily and that's when my improvement started to take off after a month. Perhaps this is nothing more than a short recovery from a relapse, an improvemnt that will not last. I'm ready for that. But I wonder if my use of B12 at 10,000 mcgs for the last month may not have played a role. It was here that I read about the necessity of B12 vis-a-vis neuropathy and started to use it. In any case, I am notifying my neurologist that I feel so well I would like to extend treatment with PP for a month. That has not been possible for a year. Would greatly appreciate any and all input. Awlright.

 
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Old 04-28-2011, 04:04 PM   #2
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Re: Using higer dose of B12

Hi, i am glad to read your doing well, are you using B12 methylcobalamin or B12 cynocobalamin ?
The reason why i ask is that when using cyno b12 supplements you only get about 2% of the active form of b12 [methyl] out of each supplement once metabolized, were as the methylcobalamin is already in the active form and goes to work straight away.
If it is methyl your taking that amount will certainly not hurt you as i believe the japaneze neuropathy experts use up to 60 mg daily on their patients.
I say whatever works go for it, I wish you continued improvement.

good luck
Aussie

 
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Old 04-28-2011, 06:08 PM   #3
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Smile Re: Using higer dose of B12

Hi Aussie100 and thanks so much for the post. Yes, I'm using Methycobalamin just by chance. I really never knew the difference. The reason I'm suggesting that the B12 may be (and we always have to be careful about things like that) the reason behind my improvement is that it's the only change I've made in my diet of late. I haven't mentioned it to my doctor yet since she never addressed any kind of supplement. It was PP from the start and nothing else. She's not very confident about meds, even for pain, where I'm concerned or in general. I don't know. She says little. I've done most of the research on my PN. We had a rocky start when I refused one of her colleagues treatment plans and insisted that she go back and read her clinical notes. I wasn't being sarcastic just looking after my life. Later the doctor who overseas the lab where I receive my PP told me (and was I surprised) that the treatment plan I turned down might have killed me! I've never heard a doctor speak that way about another one. Anyway that's another story. By the way may I go higher, say 15,000 mcgs?

All the luck and thanks a million

 
Old 04-29-2011, 11:42 PM   #4
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Re: Using higer dose of B12

Thanks for the information here. I must say that in diabetics patients have to take care enough for his imbalance activity.

 
Old 05-09-2011, 09:46 PM   #5
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Re: Using higer dose of B12

Quote:
Originally Posted by Aussie100 View Post
Hi, i am glad to read your doing well, are you using B12 methylcobalamin or B12 cynocobalamin ?
The reason why i ask is that when using cyno b12 supplements you only get about 2% of the active form of b12 [methyl] out of each supplement once metabolized, were as the methylcobalamin is already in the active form and goes to work straight away.
If it is methyl your taking that amount will certainly not hurt you as i believe the japaneze neuropathy experts use up to 60 mg daily on their patients.
I say whatever works go for it, I wish you continued improvement.

good luck
Aussie
Thanks. You have good feedback. I am going to start the B12 while awaiting neuro testing. I used to get B12 shots years ago. My symptoms are getting unbearable and progressing rapidly. Good to have you here!

 
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Old 05-09-2011, 09:47 PM   #6
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Re: Using higer dose of B12

What is PP? I hope you find continued relief.

 
Old 05-12-2011, 07:50 PM   #7
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Re: Using higer dose of B12

Hi Capewind, thanks for saying so. Hope the B12 works for you too. I cannot see why it shouldn't. All the best, Awlright.

 
Old 06-04-2011, 09:46 PM   #8
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Question Re: Using higer dose of B12

[QUOTE=Capewind;4750663]Thanks. You have good feedback. I am going to start the B12 while awaiting neuro testing. I used to get B12 shots years ago. My symptoms are getting unbearable and progressing rapidly. Good to have you here!

Update, I got lots blood work and my B12 came back as 250. My PCP of course said this was normal! I am pretty sure it is low considering the range. Have waited to start B12 for tests. Seeing neuro for tests soon. How low is this #? Should I just start the B12 now? Any ideas appreciated. Also getting stomache and system checked as have had unusual problems for @ 4years. Could I have a virus affecting my stomache and thus absorption of nutrients? Sorry lots of questions. ; ). Peace.

 
Old 06-05-2011, 12:02 AM   #9
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Smile Re: Using higer dose of B12

You can start B12 at any time and what your body doesn't use is washed out. I had a rate of 1200, that's high, but my primary didn't blink and eye. I was using 15mg a day for many months. I have tapered a bit, but I keep it high. Only your doctor can answer those question and you should feel satisfied only when she/he does. I've yet to hear from a specialist on any of these boards. All the very best of luck.

 
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