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Old 05-27-2011, 04:45 PM   #1
Join Date: May 2011
Location: FL USA
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vicki1027 HB User
Trileptal prescribed for neuropathic pain

I have an inherited neuropathy (CMT) that causes (for some ) significant neuropathic pain. This week the neurologist prescribed yet another drug to try to treat the significant pain in my hands. I am on day 4 of taking Trileptal only 300mg at hour of sleep ( supposed to increase it to 600 mg BID). However, the brain fog is so severe at this dose, I am wondering if it is even worth it to try to find relief from the neuropathy.
Anyone have experience with this drug for treating neuropathic pain?? Any one have insight into how long it will take to acclimate to it?Of course it is a Fridaty eveingof a holiday weekend and I am unable to reach m medical providers. Any feedback or input is greatly appreciated!!

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Old 05-27-2011, 10:00 PM   #2
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Ruby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB UserRuby8 HB User
Re: Trileptal prescribed for neuropathic pain

Hi Vicki - I never tried Trileptal but do take Gabapentin, which is in the same class of drugs, i.e., a anticonvulsant. Gabapentin gave me brain fog in the beginning but after awhile (I don't remember how long as it was a gradual thing), the brain fog cleared. It has been well worth the initial acclimation process for me, but then everyone is different. I started out with 100 mg of Gabapentin 3 times a day, smaller doses spread out over 24 hrs rather than all at once. You may want to ask you doctor about trying to acclimate more slowly. Good luck, Ruby

Old 05-28-2011, 11:06 AM   #3
Join Date: May 2011
Location: FL USA
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vicki1027 HB User
Re: Trileptal prescribed for neuropathic pain

Thanks Ruby for your response. I often have issues with this class of drugs.. So far we have tried neurontin, Lyrica, Tegrtol, Cymbalta, ellavil etc. For me it isn't just the brain fog, but the headache, dizziness and extreme fatigue. Since i was taking the baby dose .. and tried it for a few days, I'm at this point thinking the pain is easier to tolerate than not being able to walk, drive, or think. Wish they understood the issue of neuropathic pain a little more!!
Thanks again for your supportive words!

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cmt, neuropathic pain. trileptal

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