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Old 09-12-2011, 01:43 PM   #21
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Re: Leg Twitching...

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Originally Posted by RisingParrot View Post
Well, been a few weeks now and it seems the pills are helping my legs...BUT still not sleeping very well, I wake up probably 5 -6 times in a 7 hour period. Not sure if I need to see the doctor to see about getting something to help me sleep or just suck it up and deal w/the sleep I do esp since K is getting sleep now w/my legs not freaking out.
J
This was still an issue...so about a week ago I decided I'd try a test....SO I only took 1 Neurontin @ 6:30a(instead of 2)..took my normal 2 @ 11a...and only 1 @3p....then 30mins before bed I took my last 2 Neurontin and my 2 Pramipexole 0.25mg tabs...while watching tv in the main room...K tells me that i usually fall asleep w/in 15/20mins after taking them(I'm not sure how long it takes) but seems to be working good....I did this last night...took them then started a cooking show...was out w/in probably 15mins...woke up around 10:45a went to bed...got up once during the night but was able to wake up....AND for the first time in months I actually got up past my usual time(I set my alarm every night but it hasn't woken me up in probably months if not years since I've usually been up so much)....so it seems to be working at least I seem to be sleeping more.

I see my doctor next monday....SO might ask if I can take 2 more doses of Neurontin so I don't have to skip like I have been..if not I'll suck it up during the day to sleep at night..think they will agree????

J

 
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Old 09-20-2011, 12:13 PM   #22
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Unhappy Re: Leg Twitching...

I had a follow up visit w/my PA since I've been taking the 2 Pramipexole 0.25mg tabs before bed for a few weeks now.....let them know I've also adjusted my Neurontin so that I "save" 2 doses to take w/my Pramipexole but in doing so I'm not getting my full doses @ 6:30a and 3p.

She asked if my RLS is any better and I directed that question to K since she is the one dealing w/it as I sleep through some of it. K told her that it is much better even though some nights I do have some leg issues due to my RLS but all in all it is much better.

So then the talk switched to my Neurontin...talked w/her about not sleeping real well and she agreed it was probably due to the RLS and my PN pain. K asked if I could take OTC Sleep Pill ie Unisom and the PN preferred not..said maybe Benedryl might help...but wanted to add another dose of Neurontin to my prescription so that I wouldn't need to "save" doses like I had been. She talked about adding one dose BUT what I didn't catch till the ride home WAS that she thought I was on 300mg of Neurontin....so her idea was 2 300mg @ 6:30/11a then 3 300mg in the evening....so w/that in mind I'd be taking less then I am now...realized when I got home she didn't see on the piece of paper she gave/in the pt notes my correct dose is 600mg x 3 doses a day which would have me taking the max dose of Neurontin.

I just got off the phone w/her and boy was she confused AND confusing to talk w/....as of now we are keeping my Neurontin the same....not sure how I'm going to adjust...THINKING 1200mg @6 and 11 and 600mg @3p and 9p which I will also take my Pramipexole 0.25mg tabs and maybe a Benedryl and see how it goes. She did mention that if the Benedryl doesn't work we might see about putting me on Cymbalta on top of the Neurontin and Pramipexole.

All I want is a day w/o awful pain and be able to sleep at night.

I'm now a bit frustrated w/the whole damn thing.
J

 
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