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Old 08-17-2011, 01:35 PM   #16
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Re: New Help for Neuropathy

gme I just want to thank you again for sharing your story. I cant tell you how important it is sharing this story as it goes along with us no matter how it turns out but it looks pretty positive to me so far. I hope you get 100% relief but please please keep us posted, it is a BIG DEAL.

 
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Old 08-17-2011, 02:16 PM   #17
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Re: New Help for Neuropathy

I will continue to post until I feel I have gone as far as possible with the laser. But even if I don't improve any more than I already have, I am so much happier than I was just a few weeks ago.

 
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Old 08-27-2011, 05:37 PM   #18
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Re: New Help for Neuropathy

GME

I had 3 cold laser therapy treatments for the nerve problem in the ball of my foot but I am sorry to say they did not help me. Thanks anyway for sharing and I hope you continue to find improvement. I guess it's back to the drawing board for me. Problem is I have about exhausted all my options. You'd think that there would be one smart doctor out there that could help me, but so far I've had zero success.

All my so called "top doc" foot surgeon could tell me was to go to a pain clinic. Just what I want...being doped up on drugs. If anyone has any more suggestions for me I would love to hear them. Any success stories from anyone who found help with a nerve problem in foot following neuroma surgery would also be welcome.

 
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Old 08-27-2011, 08:37 PM   #19
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Re: New Help for Neuropathy

Dancin' I'm sorry the laser didn't work for you. I really breaks my heart because I know the pain you are feeling. I was hoping when I posted my story that I would hear back from a lot of people who were also helped.

I hope one day that like you said, some doctor will find the magic cure. Keep your hopes up, after all, only a few months ago, I didn't think there was any hope for me either. Maybe you'll find your help soon.

xox

 
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Old 11-16-2011, 11:41 AM   #20
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Re: New Help for Neuropathy

I just tried Class IV laser here locally in Longisland. Its a K-Laser. The same as over there in WI. My issue is I have allodynia like pain on my upper back, back of neck, and sholders. Treatment was about 15 mins. He told me we will start out two treatments first week Mon and Fri and then goto three. My burning seemed better the next day but got worse that night. the Following day which is today it feel worse as well. Can this treatment irrate the nerves?

 
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Old 11-16-2011, 12:13 PM   #21
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Re: New Help for Neuropathy

Quote:
Originally Posted by gpinzone View Post
I just tried Class IV laser here locally in Longisland. Its a K-Laser. The same as over there in WI. My issue is I have allodynia like pain on my upper back, back of neck, and sholders. Treatment was about 15 mins. He told me we will start out two treatments first week Mon and Fri and then goto three. My burning seemed better the next day but got worse that night. the Following day which is today it feel worse as well. Can this treatment irrate the nerves?
Hi gpinzone

I am not a doctor, but I was told by the laser therapist that since it is only light, there is nothing to do damage. I didn't feel any burning after my treatments, but do mention it to your therapist. He could ease up on the strength of the light if its too much for you. I hope once the burning goes away that you get some relief.

 
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Old 11-16-2011, 02:13 PM   #22
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Re: New Help for Neuropathy

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Hi gpinzone

I am not a doctor, but I was told by the laser therapist that since it is only light, there is nothing to do damage. I didn't feel any burning after my treatments, but do mention it to your therapist. He could ease up on the strength of the light if its too much for you. I hope once the burning goes away that you get some relief.

I think he started out at 10W. or 10,000 Joules. I cant remeber.

 
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Old 11-16-2011, 05:18 PM   #23
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Re: New Help for Neuropathy

I'm so sorry, but I don't know anything about joules and such. My laser guy did explain to me how it worked, and how he would adjust different "depths" for the light etc. But it was all Greek to me.

He might also be able to answer your question about burning. Since he obviously has many clients, he has probably heard most complaints that people would have.

Last edited by moderator2; 11-16-2011 at 06:57 PM. Reason: please do not post a commercial website, for any reason.

 
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Old 11-17-2011, 04:28 AM   #24
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Re: New Help for Neuropathy

Im in NY. Are you saying I could call him and he would be willing to talk over the phone?

Also, if its a Class IV K-Laser you should feel a warmth when he is guiding the laser over your skin.

Last edited by gpinzone; 11-17-2011 at 05:19 AM.

 
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Old 03-16-2012, 04:24 PM   #25
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Re: New Help for Neuropathy

bump...
I'm currently having cold laser for my MN. I've had 6 treatments. First one worked well, almost immediately, I could feel a strange tingling. I don't feel nauseous when my foot touches the floor anymore. My pain level went from about a 9 to a 6. However, it seemed to top off. Today, during my 6th treatment he upped it to 2000 (frequency) for 15 minutes. He did that twice on the bottom of my foot, then the handheld laser once on the top. Finally I'm feeling that weird almost "cool" feeling in my foot, not the tingling with pain, but a light cool tingling. I'm hoping this might mean a breakthrough.

 
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Old 04-03-2012, 03:59 PM   #26
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Re: New Help for Neuropathy

Quote:
Originally Posted by Dancinboots View Post
GME

I had 3 cold laser therapy treatments for the nerve problem in the ball of my foot but I am sorry to say they did not help me. Thanks anyway for sharing and I hope you continue to find improvement. I guess it's back to the drawing board for me. Problem is I have about exhausted all my options. You'd think that there would be one smart doctor out there that could help me, but so far I've had zero success.

All my so called "top doc" foot surgeon could tell me was to go to a pain clinic. Just what I want...being doped up on drugs. If anyone has any more suggestions for me I would love to hear them. Any success stories from anyone who found help with a nerve problem in foot following neuroma surgery would also be welcome.
I'm sad to hear the laser didn't work for you. Our cases sound very similar.I think laser is one of the only things i have not tried so I might give it a shot. I did however recently get a opinion from one of the top Neuro surgeons in my state, CA. I was having a consultation with him on a possible surgery involving my spinal stimulator and its removal. At the end of the visit he told me something no specialist of any kind over the last 10 years has told me. I guess I was showing my frustration with my trying to understand my case of SFN. I told him I was frustrated because I couldn't figure out why my small nerves that are damaged have not improved over the last 10 years, being that there is nothing I do that might keep hurting them and that there is no issue with sugar or chemo or alcohol or anything else. Then he laid it on me. He cocked his head to the side and said "you mean you really don't know or haven't been told", I said quickly NO!! He said "I cant tell you what caused your nerve damage but your small nerves have long been healed." He explained that the nerves were injured but when they healed they healed wrong and that instead of a healthy nerve signal being sent to your brain the nerves are sending a signal of pain instead. He also said if you could imagine your small nerve fibers being damaged and tiny microscopic scar tissue forming on some of these nerves. He said that many of my nerves were totally destroyed(that's my numbness)and the rest have healed. Unfortunately there is nothing to do with these damaged nerves because they are so small, just figure out what meds give you the most help. That I have heard many times but nobody ever explained it like this and unfortunately it makes perfect sense in my case. Learning this helps with my frustration but also depresses even more. This however did help my wife and me figure what probably happened to my feet. In 2000 I was on a on job where I was required to walk on a very hot hot oven surface for about 3 months straight, only one person(me)had to do this but I thought I could get through it ok. I ended up burning the bottoms of both feet and also getting trench foot. I should of demanded special foot wear but I was a tough guy and didn't need that. The next three years my damaged nerves slowly healed and some died completely and others healed to the painful state their in now. Sorry for the long story but this was news to me as to why the pain is so bad and it never changes. I am sorry for the negative news but I feel it was important to share and this is not to say this Dr's opinion is correct but it does make sense in my case. Not sure what to do next, I guess just try and get through one day at a time but its getting harder with each one. The best of luck to you and your battle.

 
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