It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 10-19-2011, 01:38 PM   #1
Junior Member
(female)
 
Wade's Avatar
 
Join Date: Mar 2011
Location: Arizona
Posts: 17
Wade HB User
Neuropathy

I'm new to the boards here, but glad to be here. I was suffering alone and not too many people understand what it means to be in chronic pain. I have read several stories and can relate to them all. I'm learning that my pain isn't just imaginary because others are experiecing the same symtoms. I want to thank all who share their stories because it helps people like me. I thought that I was going crazy with all the pain occuring in different areas. I have new knowledge since my visit here. My pain started with two surgeries and the last one landed me with Neuropathy. I have pain in my knees, leg, foot, first toe, right hand, shoulders, and my back. I have appointments lined up to solve the issues, but glad to see that others are speaking out. Looking at the other posts I have a thought that Neuropathy must be able to spread to different areas, but why doesn't the doctors acknowledge this?

 
Reply With Quote
Old 10-19-2011, 02:47 PM   #2
Veteran
(male)
 
Join Date: Apr 2011
Location: Phoenix, AZ
Posts: 386
RisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB User
Re: Neuropathy

It for sure does take some time to find the right doctor for you..I'm on #4 and have seen him off and on for the past 3 or so years...I've done all he wanted to test me so that he can find out why I have PN ie spinal tap/removal of the ankle nerve for a biopsy....sadly there is not an answer yet so might be looking for #5.

It for sure is something that can bring you to your knees both physically and mentally....BUT we must try and keep positive...stay strong and do our best to NOT let PN beat us...believe me I know it is tough and have my bad days where I don't want to talk or deal w/anyone...but know we too deserve to live good lives...go out and have fun not sit at home and stare at walls.

Hang in there and KNOW you are not alone...and us all talking here is for sure a positive thing.

Hope you have a pain free day.
J

 
Reply With Quote
The following user gives a hug of support to RisingParrot:
Wade (10-19-2011)
The Following User Says Thank You to RisingParrot For This Useful Post:
Wade (10-19-2011)
Sponsors Lightbulb
   
Old 10-19-2011, 04:31 PM   #3
Junior Member
(female)
 
Wade's Avatar
 
Join Date: Mar 2011
Location: Arizona
Posts: 17
Wade HB User
Re: Neuropathy

I agree,
The best thing is to not give up like you said!! Thanks for your response!! Sometimes I think these doctors order all these tests for other reasons unknown, but I have some idea. Keep looking until the right doctor is found. Hey live in Arizona as you can see so we're close. Hope you feel better!!

 
Reply With Quote
Old 10-24-2011, 07:46 AM   #4
Veteran
(male)
 
Join Date: Apr 2011
Location: Phoenix, AZ
Posts: 386
RisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB User
Re: Neuropathy

GREAT attitude!!!

I'll tell ya...I hate going to the doctors like most...BUT get so depressed going to the Neurologist...I'm tired of them making me push w/my hands and feet..walk around the office...FOCUS Dr...doing all of those things are STILL hard...and getting told they can't do anything more for me and what pills do I want.

We all MUST continue to find answers we want and try to be as positive as possible...KNOWING we will sadly all have those "bad" days.

I didn't notice that...I live in NE Phx but work in Mesa...the drive sucks LOL

I hope you had a great weekend and have a pain free week.
J

Last edited by mod85; 10-24-2011 at 05:43 PM.

 
Reply With Quote
Old 10-24-2011, 05:36 PM   #5
Junior Member
(female)
 
Wade's Avatar
 
Join Date: Mar 2011
Location: Arizona
Posts: 17
Wade HB User
Re: Neuropathy

Hi RisingParrot,
You're right, trying to stay positive is not always so easy and we can only do the best we can, especially when in pain. Coming to the boards makes me feel better, but at the same time, sad to see what people have to go through in order to get the help needed. I'm trying not to lose it because I feel the system is failing so many people and myself included. How are you feeling today? I live in Phoenix too, but lived in Mesa when I moved here in 2005. Small world!!

Last edited by mod85; 10-24-2011 at 05:43 PM.

 
Reply With Quote
Old 10-25-2011, 07:24 AM   #6
Veteran
(male)
 
Join Date: Apr 2011
Location: Phoenix, AZ
Posts: 386
RisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB User
Re: Neuropathy

We for sure can only do what we can...some days are better then others but on those bad we must just take it more easy even if we don't want to. Don't risk making the condition worse or trying to do something you know your body won't be able to do...for me on my "ok" days walking up stairs is VERY hard..on my "bad" days I don't even try...don't need me taking a tumble.

WE have to try and work the system the best we can. That said do NOT settle...fight for yourself to get the best possible care we can.

Hope your Tuesday is good and the rest of the week is better.
J

Last edited by mod85; 10-25-2011 at 02:17 PM.

 
Reply With Quote
Old 10-25-2011, 10:42 AM   #7
Junior Member
(female)
 
Wade's Avatar
 
Join Date: Mar 2011
Location: Arizona
Posts: 17
Wade HB User
Re: Neuropathy

Hi RisingParrot,
I'm not sure what you mean by work the system? Can you clairify for me so myself and other members don't get the wrong idea? I'm sure it's just a choice of words, but we need to have a clear understanding, please explain!!

Last edited by Wade; 10-25-2011 at 10:43 AM.

 
Reply With Quote
Old 10-25-2011, 12:10 PM   #8
Veteran
(male)
 
Join Date: Apr 2011
Location: Phoenix, AZ
Posts: 386
RisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB User
Re: Neuropathy

Healthcare System...I wasn't happy w/my first Neurologist...so I'm up to #4 now...won't settle w/just anyone treating me...want the best I can get.

Sorry to confuse you or any members.
J

Last edited by mod85; 10-25-2011 at 02:15 PM.

 
Reply With Quote
The following user gives a hug of support to RisingParrot:
Wade (10-25-2011)
Old 10-25-2011, 02:01 PM   #9
Junior Member
(female)
 
Wade's Avatar
 
Join Date: Mar 2011
Location: Arizona
Posts: 17
Wade HB User
Re: Neuropathy

Oh! I understand you better now!! My referal came from my Primary care Doc. If you like any of your doctors and feel they have your best interest at hand then ask for a referal because sometimes finding a good specialist is challenging. Have a good day!

 
Reply With Quote
Old 10-25-2011, 02:05 PM   #10
Veteran
(male)
 
Join Date: Apr 2011
Location: Phoenix, AZ
Posts: 386
RisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB UserRisingParrot HB User
Re: Neuropathy

Thankfully w/my Ins I don't need a Referral...so it is pretty easy on me.

I agree it is difficult to find that right doctor.

J

Last edited by mod85; 10-25-2011 at 02:16 PM.

 
Reply With Quote
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Neuropathy boopbetty Neuropathy 9 10-31-2011 03:18 PM
knee pain with neuropathy cocoa100 Neuropathy 5 10-24-2011 06:07 PM
Neuropathy or something new? Ihate2w8 Neuropathy 14 10-24-2011 10:47 AM
Autonomic Small Fiber Neuropathy h2bh Neuropathy 25 08-04-2011 04:49 PM
do I have peripheral neuropathy? machine Neuropathy 11 05-24-2011 06:50 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



tingles (48), Aussie100 (34), RisingParrot (34), daisymaegrl (33), Ruby8 (27), captinsane1 (25), June89 (22), LasVegasgirl (10), awlright (10), jverive (9)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (855), janewhite1 (823), Titchou (769), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (654), BlueSkies14 (610)



All times are GMT -7. The time now is 03:52 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!