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Old 03-09-2012, 05:48 PM   #1
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Frozen toes

I have neuropathy, being tested for SFN with a sural nerve biopsy 2 weeks ago. My toes do not move. I cannot wiggle them, or move them up & down. This has been going on for 1 year and my neuropathy for 2 years.
Is this a symptom of neuropathy?
Thanks June

 
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Old 03-09-2012, 10:25 PM   #2
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Re: Frozen toes

Hi, I would love to know the answer to this too! Mine have become more and more immobile but no one can answer me why. I have RA and SFN, and see both a neurologist and a rheumatologist. But no one want to tackle that question. I think it is because they don't really know!!!
Some days are better than others with regards to how much I can move my toes. Are yours like that too? Some days I can actually wiggle a toe or two, but then the next day, I can't move them at all! So weird!
I hope you get some answers!!!
Best wishes, Daisy

 
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Old 03-10-2012, 09:02 AM   #3
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Re: Frozen toes

thanks daisymaegrl, Sometimes my left big toe moves up & down without me doing it. My grandchildren call this my crazy toe. When my toes wouldn't move I was so scared, Iwent to ER right away. The DR there took the sharpest thing & ran under my heel to my toes. She said you can move them and left. I thought she was coming back to see me & a nurse comes in & says to go & see your family DR. I felt so stupid & that they were laughing at me. So humiliating. I wish I could of reversed the roles. Lets hope someone can figure it out! Thanks, June

 
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Old 03-10-2012, 10:20 PM   #4
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Re: Frozen toes

Hi June
It is that attitude the appalls me!! There is nothing funny about the suffering of those of us with neuropathy!! And I would have done exactly as you did, gone to the ER!
I have Rheumatoid arthritis, so I am not new to the joint problems, but if it hadn't happened before, I can see exactly why you were concerned!!
I really hope that you don't encounter any other careless and heartless healthcare workers, but because our disease is "invisible", I guess it could happen again.
Because we look well, our disease is often dismissed. And we don't get the treatment that we deserve!
I am sorry that it happened to you!
Best wishes, Daisy

 
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Old 03-11-2012, 09:12 PM   #5
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Re: Frozen toes

Thanks daisymaegrl. That incident really depressed me.
That is the best way to discribe our disease as "invisible."
Once I started using a cane people changed towards me. They kind of hesitated then said "can I help u in any way". My grandchildren said "grama u don't look like an old lady" Priceless!! I hope to find out tomorrow results of my biopsy, I hope it was worth it.
Take care & any info I get I'll share . June

 
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