It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 05-14-2012, 09:54 PM   #1
Senior Member
(female)
 
Join Date: Feb 2012
Location: ontario,canada
Posts: 112
June89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB User
NSVN, pain is ++++

Hi, feeling very bad today. The pain in my feet is driving me nuts. I have my 3rd IVIG treatment this Friday, so far no good changes. My feet feel like the insides are tied together so tight & now its drawing in my ankles. My feet feel like heavy bricks. It is hard to describe but my right foot feels not like a foot, the identity feels gone. Not sure what to make of it? My breakthrough pain pill is not working so good. (oxicodent) I am still not so sure what NSVN all means, anyone want to help me understand I would appreciate. I'll keep you updated. Thanks June

 
Reply With Quote
The following user gives a hug of support to June89:
tingles (05-15-2012)
Sponsors Lightbulb
   
Old 05-15-2012, 10:52 AM   #2
Veteran
(male)
 
tingles's Avatar
 
Join Date: Jan 2011
Location: Tennessee
Posts: 337
tingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB User
Re: NSVN, pain is ++++

Sorry to hear things are going so rough June. I am really sorry that your pain pills are not working. Have you talked to your doctor about this? Maybe they can get something stronger for you.

Vasculitis occurs when your immune system mistakenly sees blood vessel cells as foreign. The immune system then attacks those cells as if they were an invader, such as a bacteria or virus. It's not always clear why this happens, but an infection, some cancers, certain immune system disorders or an allergic reaction may serve as the trigger.

As I understand NSVN is non-systemic vasculitic neuropathy meaning that you have necrotizing vasculitis of small arterioles. In other words you have vasculitis and it is destroying the small blood vessels that feed your nerves. I had acute vasculitis several times and it is not fun, it hurts. Fortunately for me I was able to undergo a regime of predsnodone and chemo that cleared it up. The good news is that NSVN is not as bad as other forms of vasculitis.

I really hope this helps. Keep us posted.

 
Reply With Quote
The Following User Says Thank You to tingles For This Useful Post:
June89 (05-15-2012)
Sponsors Lightbulb
   
Old 05-15-2012, 11:06 AM   #3
Senior Member
(female)
 
Join Date: Feb 2012
Location: ontario,canada
Posts: 112
June89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB User
Re: NSVN, pain is ++++

Hi Tingles. Thanks for the information. The way u have defined the NSVN is easy to understand & I thank you for that. Today I am not too bad with pain. My Dr. just called & my B6 is low so he wants me on a B-50 pill. I see him Friday so I am going to ask about a stronger pain pill for the evening as this is when the pain flares. I'll keep posting about these IVIG treatments. take care, June

 
Reply With Quote
The Following User Says Thank You to June89 For This Useful Post:
tingles (05-21-2012)
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Helping others understand about chronic pain Aussie100 Neuropathy 42 04-30-2012 06:43 PM
Chronic peroneal nerve pain between 1st and 2nd toe right foot !!! Kento Neuropathy 6 08-23-2011 10:31 PM
Atypical Face Pain - Atypical Odontalgia birgit81 Neuropathy 16 08-02-2011 03:39 PM
Knee pain and neuropathy lvp714 Neuropathy 5 07-05-2011 10:42 AM
Hi, I am new to this forum. I have a question about small fiber neuropathy pain. Kim H Neuropathy 9 06-28-2011 08:36 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:55 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!