Re: NSVN, pain is ++++
Sorry to hear things are going so rough June. I am really sorry that your pain pills are not working. Have you talked to your doctor about this? Maybe they can get something stronger for you.
Vasculitis occurs when your immune system mistakenly sees blood vessel cells as foreign. The immune system then attacks those cells as if they were an invader, such as a bacteria or virus. It's not always clear why this happens, but an infection, some cancers, certain immune system disorders or an allergic reaction may serve as the trigger.
As I understand NSVN is non-systemic vasculitic neuropathy meaning that you have necrotizing vasculitis of small arterioles. In other words you have vasculitis and it is destroying the small blood vessels that feed your nerves. I had acute vasculitis several times and it is not fun, it hurts. Fortunately for me I was able to undergo a regime of predsnodone and chemo that cleared it up. The good news is that NSVN is not as bad as other forms of vasculitis.
I really hope this helps. Keep us posted.