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Old 09-02-2012, 09:34 PM   #1
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Trying a patch called BuTrans for chronic pain?

Hi
I am continuing my journey with this unrelenting pain. I have SFN & NSVN neuropathy's that challenge my patience 24/7 in dealing with this pain. So many times crying, crying as many of you do....
I am trying a new pain med, it's a patch, u where for 7 days then remove & put a new one on. It's called BuTrans.. I am starting on 10mgs & stopping my morphine. So far not so good....but I will try for a month and see.

Has anyone experienced a feeling in there foot & ankle likes its fusing? It 's like there is a hand in there pulling a string that is attached to each toe and the ankle together. It's like the foot, ankle & the leg are tightening together, becoming stiff. My ankles feel very weak. What is this & what can I do?

My lip biopsy is set for September 27. Anyone have this done? ( for confirmation of Sjorgen's)
Thanks for reading, take care of yourself & try to keep pain free!
June

 
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Old 09-04-2012, 06:38 PM   #2
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Re: Trying a patch called BuTrans for chronic pain?

Hi June,

Did you change to the patch because the morphine wasn't working for you or was it something else that made you switch? I found that morphine didn't work at all for me either. Hopefully you will do better once your body gets used to the new med.

I have exactly the same feelings with my feet as you do! But it is dismissed by all of the doctors I have spoken to. No one wants to do anything about the fact I feel this tightening and pulling. So I started massaging my feet myself. I bought a hand held massager and use it every day on my legs. I try to use it on my feet, but it is hard because they are so tender. I really feel that it helps, so I try to stand it as long as I can.

The small amount of valium I take really eases the spasms in my feet and I am so thankful my doctor let me try this med. It helps more than anything else has!!

I sure hope that you and your doctor can find a something to help the pain. It just seems unending I know, but don't give up!! I really hope things get better. Please keep us posted here!

Best wishes, hoping things improve!! Good luck with your lip biopsy!
Daisy

 
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Old 09-04-2012, 06:58 PM   #3
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Re: Trying a patch called BuTrans for chronic pain?

Hi daisymaegrl, thanks for your words of encouragement. I asked the DR. to try something new on me as my pain meds are not working so good, especially with the swelling I have. He said to try this patch & discontinue the morphine as it is a small amount. My breakthrough pain needs to be increased so maybe I'll ask him for the vallium. I may just go back to my pain Dr. I have. This new drug seems to be ok, I am not high at all! How long should you try something new before u decide to let it stay or go?
My children are starting to question me on the drugs I take when there is alot of herbal stuff out there. Like a cup of basil tea. No thanks, this pain & herbal stuff I don't think will help. Sometimes it's hard to believe that this is how I am going to be for the rest of my life.
I am going to get me a hand held massager & see if that helps me.
thanks for the great advice, your always so positive thanks, June

 
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Old 09-05-2012, 05:07 AM   #4
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Re: Trying a patch called BuTrans for chronic pain?

Hi, I have been on butrans 10mg for the last few months and I am really happy with it. It takes a few days for it to kick in but after that great. I have something similar to what you describe on your foot, I feel it is tendon pulling. I get relief from heat, I have a plug in heat pad and I wrap it around the foot. Give it a try and see how you get on.
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Old 09-06-2012, 08:00 PM   #5
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Re: Trying a patch called BuTrans for chronic pain?

Hi June,
How are things going now? Any improvement with that patch?? I hope so!

I know exactly what you mean about the herbal concoctions and natural supplements. My kids believe that everything can be cured by good food, eating right and taking natural things. I feel guilty that I am on drugs when I know how against them they are! But my life without them was horrible!!

I am dreading going back to wearing closed in shoes now that summer is coming to a close!! I got a pair of lined Crocs that I am hoping will help my feet during the colder days!

Welcome Agenda to our group here on the neuropathy boards!!
Best wishes to all,
Daisy

 
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Old 09-14-2012, 11:16 PM   #6
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Re: Trying a patch called BuTrans for chronic pain?

Hi Daisymaegrl & Agenda. How are you? I am starting on my 3rd week of the BuTrans patch. I think I am going to stay on it. It took sometime but now I am feeling pretty good. I have to stay away from heat so the heating pad won't help, but thank you for the tip.
Shoes. We should invent shoes for people with neuropathy.. I can not wear anything closed in, my feet get too hot & then PAIN. As I said in a earlier blog I need soft slipper like shoes.. My sister got me a pair in California & they are wonderful, I can wash them in the machine & they come up just like new.
It's the winter & what to wear is the problem. I hope you both are pain free as you can be. Talk to you soon. June

 
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