It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Neuropathy Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 10-17-2012, 10:26 AM   #1
Newbie
(male)
 
Join Date: Oct 2012
Location: Mesa, Arizona
Posts: 6
willcross80 HB User
peripheral neuropathy

32 years old. Severe neuropathy in hands and feet. Is there anyone out there that i can talk to about this? I feel like im slowing dying. Started going to the Barrow institute in phoenix. How can a young person get through life with this. My hands and feet turn bright red from the nerves firing off. its hard to look at.

Last edited by willcross80; 10-17-2012 at 10:33 AM. Reason: added info

 
Reply With Quote
The following 3 users give hugs of support to: willcross80
cactus al (12-18-2012), Darly314 (10-17-2012), June89 (10-21-2012)
Old 10-17-2012, 11:37 AM   #2
Senior Veteran
(female)
 
slenderella's Avatar
 
Join Date: Nov 2010
Location: NY
Posts: 1,003
slenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB Userslenderella HB User
Re: peripheral neuropathy

Have you tried lidocaine patches? Maybe that will help your feet. Are you on any medication for it? I'm sorry for your pain. I do not have neuropathy, but my father did.

 
Reply With Quote
The Following User Says Thank You to slenderella For This Useful Post:
willcross80 (11-07-2012)
Sponsors Lightbulb
   
Old 10-17-2012, 12:10 PM   #3
Senior Member
(female)
 
cocoa100's Avatar
 
Join Date: Sep 2011
Location: PITTSBURGH PA
Posts: 121
cocoa100 HB Usercocoa100 HB Usercocoa100 HB Usercocoa100 HB User
Re: peripheral neuropathy

what type of problems are you having that you want to talk about besides the redness ?

 
Reply With Quote
Old 10-21-2012, 11:10 AM   #4
Veteran
(male)
 
tingles's Avatar
 
Join Date: Jan 2011
Location: Tennessee
Posts: 337
tingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB Usertingles HB User
Re: peripheral neuropathy

Quote:
Originally Posted by willcross80 View Post
32 years old. Severe neuropathy in hands and feet. Is there anyone out there that i can talk to about this? I feel like im slowing dying. Started going to the Barrow institute in phoenix. How can a young person get through life with this. My hands and feet turn bright red from the nerves firing off. its hard to look at.
I am 51 and have neuropahty in the hands and feet and it affects my bladder. I broke my leg and ankle six years ago because I have no reflexes in the knees or ankles. I now wear braces on both legs. It has also lead to impotence. One heck of a disease. I was luckier than you in that my neuropahty started at 45. I know the feeling about slowly dyeing. I started Tai Chi five years ago and it has helped me tremdously, do not get disheartened if you cannot do it all immediately. It was a year before I was able to finish a class due to pain or weakness. It has helped with my pain and weakness and I am stronger today than I was five years ago.

What do you wish to talk about? There are several members on this board that are active and span what seems to be the full range of this disease. Post your questions and concerns and I am sure someone will be willing to talk to you about this.

 
Reply With Quote
The Following 2 Users Say Thank You to tingles For This Useful Post:
June89 (10-21-2012), willcross80 (11-07-2012)
Old 10-21-2012, 07:49 PM   #5
Senior Member
(female)
 
Join Date: Feb 2012
Location: ontario,canada
Posts: 112
June89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB UserJune89 HB User
Re: peripheral neuropathy

Hi willcross80..Do you have pain? Neuropathy pain is horrible. I take 60mg of cymbalta, 450mg of lyrica, buTrans patch and oxicodent for pain surges or bouts. It is hard to live with & understand.. I am 58 and have had this for almost 3 years. So many of us on this blog are in the same situation. How to live with this horrible disease? My hands & feet are very weak at this point. I try to keep busy at home as I do not work anymore. If you can involve your friends & family in your journey it really helps. You are so young..I feel so bad for you. Try to keep positive, educate yourself so you can be a step ahead of the Dr's. Try to make up a routine ,this can help you get through your day. take care and continue to share your journey. June

 
Reply With Quote
The Following 2 Users Say Thank You to June89 For This Useful Post:
tingles (10-22-2012), willcross80 (11-07-2012)
Old 10-25-2012, 09:33 PM   #6
Newbie
(female)
 
Join Date: Oct 2012
Posts: 5
1improved HB User
Re: peripheral neuropathy

Quote:
Originally Posted by tingles View Post
I am 51 and have neuropahty in the hands and feet and it affects my bladder. I broke my leg and ankle six years ago because I have no reflexes in the knees or ankles. I now wear braces on both legs. It has also lead to impotence. One heck of a disease. I was luckier than you in that my neuropahty started at 45. I know the feeling about slowly dyeing. I started Tai Chi five years ago and it has helped me tremdously, do not get disheartened if you cannot do it all immediately. It was a year before I was able to finish a class due to pain or weakness. It has helped with my pain and weakness and I am stronger today than I was five years ago.

What do you wish to talk about? There are several members on this board that are active and span what seems to be the full range of this disease. Post your questions and concerns and I am sure someone will be willing to talk to you about this.

 
Reply With Quote
Old 10-25-2012, 09:57 PM   #7
Newbie
(female)
 
Join Date: Oct 2012
Posts: 5
1improved HB User
Question Re: peripheral neuropathy

I too have neuropathy both legs and diffrent degrees of muscle deterioration. It was when i sprained my ankle severaltimes over past few years and loosing the ability tostandup from squating down to pick anything up or even from a chair i went to orthopedic dr.who looked at my ankles and reviewed my emg nerve studies results that i had a condition also known as nerve palsy.tried conservative treatment not enough improvement opted for ankle fusion. My dr.was able to isolate problem toa single joint and loose tendon so joint was fused and tendon routed through bone and secured. Im inly 2.5 mo.,post op and can do more than prior,exercising in a pool would help ease pain for most.my hands are in constant pain even despite the pain meds.dont know why either ive been this way for nearly 8 years or more and am only 47.your not alone there will be good days and not so good but try and focus on the good.

 
Reply With Quote
The following user gives a hug of support to 1improved:
June89 (11-05-2012)
Old 10-26-2012, 04:33 PM   #8
Senior Member
(female)
 
Join Date: Oct 2012
Location: Las Vegas, NV
Posts: 124
LasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB User
Re: peripheral neuropathy

Quote:
Originally Posted by willcross80 View Post
32 years old. Severe neuropathy in hands and feet. Is there anyone out there that i can talk to about this? I feel like im slowing dying. Started going to the Barrow institute in phoenix. How can a young person get through life with this. My hands and feet turn bright red from the nerves firing off. its hard to look at.
I have neuropathy in both legs and both feet.

Mine is due to MS.

I understand the pain you are dealing with. My feet and legs are not red but have all sorts of different pain going on and it is constant.

Have they told you what is causing your neuropathy?

I am on Neurotin and it helps take the edge off.

Sounds like you are on the right track going to the Barrow Institute. They should be able to help you through this.

Try to stay calm while you find out what is going on.

 
Reply With Quote
The Following 2 Users Say Thank You to LasVegasgirl For This Useful Post:
June89 (11-11-2012), willcross80 (11-07-2012)
Old 11-01-2012, 08:48 PM   #9
Member
(female)
 
Join Date: Aug 2003
Location: Delaware
Posts: 66
TerriD HB User
Re: peripheral neuropathy

Hello.
I'm so sorry to hear about everyone's pain and suffering.
I have had neuropathy pain for a few years, due to diabetes.

For months I have had pain and burning and have been averaging 2-4 hours of sleep a night. I finally saw my podiatrist and he prescribed gabapentin (2 pills a day), which is the generic form of neurotin.

So far it's really been helping. I've actually been able to sleep.
It's a terrible thing to have to live with. I hope and pray all of you find relief.

Terri

 
Reply With Quote
The following user gives a hug of support to TerriD:
June89 (11-11-2012)
Old 11-02-2012, 10:16 PM   #10
Senior Member
(female)
 
Join Date: Oct 2012
Location: Las Vegas, NV
Posts: 124
LasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB User
Re: peripheral neuropathy

Quote:
Originally Posted by TerriD View Post
Hello.
I'm so sorry to hear about everyone's pain and suffering.
I have had neuropathy pain for a few years, due to diabetes.

For months I have had pain and burning and have been averaging 2-4 hours of sleep a night. I finally saw my podiatrist and he prescribed gabapentin (2 pills a day), which is the generic form of neurotin.

So far it's really been helping. I've actually been able to sleep.
It's a terrible thing to have to live with. I hope and pray all of you find relief.

Terri
Hi Terri,

Thanks so much for posting. It makes me feel better knowing we are not aone.

I too am on neurotin. I started two years ago on 300 mg a day but now the neuropathy pain is constant so I am now taking 2100-2800 mg a day.

Since I have MS, I also have spascity & take balcofen. Now that is worse and last night it kept waking me up with muscle spasms along with the neuropathy pain.

It really is hard to deal with, isin't it.

 
Reply With Quote
Old 11-05-2012, 08:18 AM   #11
Senior Member
(female)
 
cocoa100's Avatar
 
Join Date: Sep 2011
Location: PITTSBURGH PA
Posts: 121
cocoa100 HB Usercocoa100 HB Usercocoa100 HB Usercocoa100 HB User
Re: peripheral neuropathy

i have been living with neuropathy for about three years now glad to see that neurotin works for some one i had a bad reaction to it. i also tried cymbalta and that did not work now my nueroligist is thinking about effexor. had anyone have any experince with it.

cocoa

 
Reply With Quote
Old 11-05-2012, 08:48 AM   #12
Newbie
(female)
 
Join Date: Oct 2012
Posts: 5
1improved HB User
Talking Re: peripheral neuropathy

I had gone through many diffrent rx.s lil help at best aswell I,found a dr.,who listened to me and actually has compassion for those who continue to suffer despite their having been through multiple rx.trials.End results were I was offered a pain contract and opted for it and the minimal dose of med.It was.what I needed.been on same dose for about 3years atleast and not once had to increase the dose or frequency of use.itll be nice to hear if effexor helps,the pain med I take is only helpful rx.for myself so far,always open to any treatments .best of luck and good health to you.

 
Reply With Quote
Old 11-05-2012, 06:30 PM   #13
Senior Member
(female)
 
Join Date: Oct 2012
Location: Las Vegas, NV
Posts: 124
LasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB User
Re: peripheral neuropathy

Quote:
Originally Posted by 1improved View Post
I had gone through many diffrent rx.s lil help at best aswell I,found a dr.,who listened to me and actually has compassion for those who continue to suffer despite their having been through multiple rx.trials.End results were I was offered a pain contract and opted for it and the minimal dose of med.It was.what I needed.been on same dose for about 3years atleast and not once had to increase the dose or frequency of use.itll be nice to hear if effexor helps,the pain med I take is only helpful rx.for myself so far,always open to any treatments .best of luck and good health to you.
Hi,

You did not tell us what med your pain doctor put you on that is helping you. Can you please let us know.

The Neurotin really messes with my thinking and I am still working. I would like to find something else.

What you are taking may be of great help to all of us.

Please tell.

 
Reply With Quote
Old 11-05-2012, 06:47 PM   #14
Senior Member
(female)
 
Join Date: Oct 2012
Location: Las Vegas, NV
Posts: 124
LasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB UserLasVegasgirl HB User
Re: peripheral neuropathy

Quote:
Originally Posted by cocoa100 View Post
i have been living with neuropathy for about three years now glad to see that neurotin works for some one i had a bad reaction to it. i also tried cymbalta and that did not work now my nueroligist is thinking about effexor. had anyone have any experince with it.

cocoa
Hi Cocoa,

I have not tried effexor but just did a quick research of it. It looks to be another type of cymbalta type med. Not sure if it would help the type of nerve pain we go through. But could be worth a try.

A stronger med is the opaites.

This nerve pain is hard to get a handle on.

 
Reply With Quote
Old 11-06-2012, 07:33 AM   #15
Senior Member
(female)
 
cocoa100's Avatar
 
Join Date: Sep 2011
Location: PITTSBURGH PA
Posts: 121
cocoa100 HB Usercocoa100 HB Usercocoa100 HB Usercocoa100 HB User
Re: peripheral neuropathy

i am currently taken vicoden tried perks, ultram and opana 10 with no help. for some reason the vicoden is the only one that helps. i am now tring ms contin at night to see if it helps not sure about taken during the day because i work. i am not sure about the effexor since the cymbalta gave me such bad leg cramps it was just a thought. i am currently taken tegretol for the nerve pain.

have a pain fee day
cocoa

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



tingles (48), Aussie100 (34), RisingParrot (34), daisymaegrl (33), Ruby8 (27), captinsane1 (25), June89 (22), LasVegasgirl (10), awlright (10), jverive (9)

Site Wide Totals

teteri66 (1139), MSJayhawk (942), Apollo123 (859), janewhite1 (823), Titchou (773), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 08:03 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!