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Old 11-21-2012, 10:42 PM   #1
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RE: PN and glands hurting

Happy Thanksgiving to All,

I am getting really worried about myself and wondering if any of you have experienced this with PN.

December 2011, before my pain with PN became constant in thighs and feet, my left parotid gland swelled and I went into emergency where they gave me antibiotics which then caused a yeast infection, only in my mouth. From there, I was put on oral steriods that knocked out the swelling in my parotid gland but still had to go on a battle fighting with the yeast. I have had to completely change my diet to stop eating all sugar, flour, preservatives, milk, cheese and all fruit with the exception of berries.

Now, my PN seems to be progressing and feel like my body, mainly thighs are wasting away. Plus, my parotid glands are hurting and even deep in my ears hurt. I did reasearch PN and they did state that with PN, glands can become not functional along with the wasting away of muscles. It sounds exactly what I am going through.

I know, after Thanksgiving, I need to go back to see my neurologist. But she has never even addressed my neuropathy but to refer me to a pain specialist and to say my pain is permanent.

So my question is; has anyone here experienced this with glands hurting so bad (I also have MS); and am I seeing the right doctor (neuro)? Do I need to see a different specialist?

I have also over the last year, lost a lot of my hair and my regular doctor has done a complete bloodwork panel and things are fine with my thyroid. I have also dropped over the last couple years over 35 pounds and am now a size 4.

I am just really concerned and very depressed with all this constant pain and the other issues that keep coming up.

Thanks for listening........I appreciate any thoughts on this.

 
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Old 11-27-2012, 09:07 PM   #2
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Re: PN and glands hurting

Hi LasVegasgirl.. I am so sorry for your pain. I am not familiar with the pain you have in your glands. I have small fiber neuropathy & nonsystemic vascultic neuropathy. My muscles in my feet and hands are wasting away. The neuropathy pain is horrible. I control with a butrans pain patch, cymbalta & lyrica & oxicodent for breakthrough pain. I am on a immune supressant that increases hair loss. I have a Pain Dr., a Neuromuscular Dr & a Family Dr. & a Neurologist Dr. whom talk to each other about my diagnosis etc..I do not know what Dr u see for MS. The medication you are taking may be causing hair & weight loss, you should check this out. I am not sure if I answered any of your questions, but hang in there . Go back to your neurologist & get the information U need. Get a referral to a pain Dr who can help you out immensely. Take care & best of luck, June

 
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Old 11-27-2012, 10:19 PM   #3
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Re: PN and glands hurting

Quote:
Originally Posted by June89 View Post
Hi LasVegasgirl.. I am so sorry for your pain. I am not familiar with the pain you have in your glands. I have small fiber neuropathy & nonsystemic vascultic neuropathy. My muscles in my feet and hands are wasting away. The neuropathy pain is horrible. I control with a butrans pain patch, cymbalta & lyrica & oxicodent for breakthrough pain. I am on a immune supressant that increases hair loss. I have a Pain Dr., a Neuromuscular Dr & a Family Dr. & a Neurologist Dr. whom talk to each other about my diagnosis etc..I do not know what Dr u see for MS. The medication you are taking may be causing hair & weight loss, you should check this out. I am not sure if I answered any of your questions, but hang in there . Go back to your neurologist & get the information U need. Get a referral to a pain Dr who can help you out immensely. Take care & best of luck, June
June,

You might have answered my questions. You go to a Neuromuscular doctor and that maybe is who I need to see. My neurologist peformed a nerve conductor test on me and said I have mild neuropathy in both legs and feet plus carpal tunnel in both arms. But the pain I experience is anything but mild. I could not imagine it getting worse. Plus my neurologist said it was permanent but did not tell me anything about what type of neuropathy I have. You would think my neurologist would at least check into it further. Just because I have MS, why would they dismiss everything?

You answered another one of my posts so I'll try not to repeat myself but I am hoping my glands hurt because I am now sick with a chest cold. However, my glands and ears have been hurting me for several weeks now. Maybe my body has been trying to fight this off for that long.

I see my regular doctor in December and will ask her. She has been very worried about me.

Thanks June. You have been so much help to me here. Big hugs to you!! xxoo

 
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Old 11-28-2012, 01:02 PM   #4
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Re: PN and glands hurting

Wow! I have been having problems with glands swelling all of the time too! I am getting an ultrasound on the latest one Monday under my jaw. I unfortunately have had melanoma as well, and always have to get them looked at, but maybe it is the SF/PN????

 
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Old 11-28-2012, 05:18 PM   #5
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Re: PN and glands hurting

Quote:
Originally Posted by Mazie22 View Post
Wow! I have been having problems with glands swelling all of the time too! I am getting an ultrasound on the latest one Monday under my jaw. I unfortunately have had melanoma as well, and always have to get them looked at, but maybe it is the SF/PN????
Pretty scary. Feel like I have cancer of some kind. I will be seeing my regular doctor in December and will ask if she can order an ultrasound or whatever they do to check it out. My worst pain is on left side under jaw but it has started hurting on the right side too. Even radiates up to my ears, deep inside.

I am hoping this chest/head cold is aggravating everything and I am just flaring.

I am sorry you have had melanoma. Where is your melanoma?

Wanted to add that I don't know what tests were performed to figure out what type of neuropathy you have.

Last edited by LasVegasgirl; 11-28-2012 at 06:52 PM.

 
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Old 11-29-2012, 06:44 AM   #6
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Re: PN and glands hurting

Hi, is was on my foot, just a little normal looking mole that wasn't there before! I don't recall all of the names of the tests, I know I had tilt table, emgs, a sweat test, and something where they put little conductors on me with some solution. I have autonomic, small fiber and peripheral neuropathies. I was told, hereditary, pre ganglion originating from the thoracic spine.

 
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