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Old 12-12-2012, 05:52 AM   #1
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QSART test for SFPN... anyone?

Has anyone had this test for Small Fiber Peripheral Neuropathy? Also, if anyone has SFPN, I really need to know if it affects your eyes. I am waiting on a specialist appt. in Feb. My local neuro did not know what was wrong with me and all my tests (EMG, (3) MRI's, bloodwork, VEP) have come back negative but have not had the QSART or a lumbar puncture. I've had the tingling, numbness in legs and feet plus a host of other symptoms that haven't stayed with me continually. However, I always have weak legs and a sort of cloudyness in my eyes. I can see clearly but my eyes feel like they have dirt in them without the pain. (have had pain in the past but not lately). The two always go hand in hand; weak legs and "cloudy" eyes.

Does caffeine affect neuropathy? I don't drink a lot of coffee or tea, but just wondering.

 
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Old 12-12-2012, 07:18 PM   #2
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Re: QSART test for SFPN... anyone?

Hi Mommala - Sorry you are going through this, and waiting 2 months to see a specialist so you can get some answers is enough to drive anyone nuts. I have small fiber neuropathy (SFN) and am guessing that's probably not what you have. SFN doesn't cause muscle weakness, and I don't think it causes eye problems--hasn't for me, and I don't think I've read of anyone else here with SFN complaining of eye problems. Perhaps MS hasn't been completely ruled out for you if they are thinking of doing a lumbar puncture? I never had the QSART, so can't speak to that, but you may want to hold off on that until you've seen the specialist seeing as SFN doesn't seem to be the likely culprit. I so wish you well and hope you will post your further progress in getting diagnosed. Best, Ruby

 
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Old 12-12-2012, 08:48 PM   #3
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Re: QSART test for SFPN... anyone?

Thanks, Ruby8. As you know, neurological problems are dx'ed by a process of elimination, and if you are correct, then maybe I don't have SFN. I'm not trying to dx myself; just searching for answers. And you are right...waiting is the worst part. I feel like I am losing precious time waiting and waiting for the appt. I know will only have me taking some of the same tests I already had because they will already be almost 4 months old by then. Really, all I want is to know what my problem is and then know how to deal with it better.
Thanks for your help and have a wonderful Christmas.

 
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Old 12-12-2012, 10:10 PM   #4
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Re: QSART test for SFPN... anyone?

Quote:
Originally Posted by Mommala View Post
Has anyone had this test for Small Fiber Peripheral Neuropathy? Also, if anyone has SFPN, I really need to know if it affects your eyes. I am waiting on a specialist appt. in Feb. My local neuro did not know what was wrong with me and all my tests (EMG, (3) MRI's, bloodwork, VEP) have come back negative but have not had the QSART or a lumbar puncture. I've had the tingling, numbness in legs and feet plus a host of other symptoms that haven't stayed with me continually. However, I always have weak legs and a sort of cloudyness in my eyes. I can see clearly but my eyes feel like they have dirt in them without the pain. (have had pain in the past but not lately). The two always go hand in hand; weak legs and "cloudy" eyes.

Does caffeine affect neuropathy? I don't drink a lot of coffee or tea, but just wondering.
I just wanted to say that the feeling of sand in your eyes happens to me and I was told it is due to dry eyes. You can buy at the grocery store, equate that is a gel you put in your eyes before going to bed and it lubricates them to help with that.

 
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Old 12-12-2012, 10:25 PM   #5
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Re: QSART test for SFPN... anyone?

Yes, I too have "dry eyes," but to me it seems different than Mommala is describing. I think dry eyes are often associated with SFN, sometimes related to Sjogren's. My dry eyes run with tears a lot, evidently the body's response to them being dry.

 
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Old 12-13-2012, 07:59 AM   #6
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Re: QSART test for SFPN... anyone?

Thanks everyone. Dry Eye is not the symptom I am having; it's difficult to describe. Almost blurry; maybe more like the way your eyes feel when you have cotton head. I've had real dry eye in the past and was treated for it. Dry eye feels like you have an eyelash in your eye and the eye is irritated by the opening and closing of your lid over the dryness. I acutally had a patch on the first time I was dxed and had to drive home alone with the patch on. DO NOT EVER DO THAT! I can't tell you how scary that was. Lubricant drops help, but keeping your eye closed is what eventually heals it. Very annoying.

Thanks for your concern and answers, everyone. Now go have a really good day!!

 
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Old 12-13-2012, 10:22 AM   #7
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Re: QSART test for SFPN... anyone?

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Originally Posted by Ruby8 View Post
Yes, I too have "dry eyes," but to me it seems different than Mommala is describing. I think dry eyes are often associated with SFN, sometimes related to Sjogren's. My dry eyes run with tears a lot, evidently the body's response to them being dry.
Funny we mention this and this morning my left eye hurts. I must have rubbed my eye in my sleep and taken a few layers off. One appointment I had with my eye doctor, I had explained about my eye pain and he said if you rub off enough layers you get down to where it will cause you pain. My left eye is all red and hurts this morning. I am out of the equate and need to get some.

I have noticed lately that I have a lot of wrinkles around that eye and am waking up in the middle of the night with my hand pressed up in that area. I need to somehow break myself of doing that. Lol!

Six months ago, I was tested for Lupus, Sjogren's & cancer because of my parotid gland swelling (twice) and had a high lymphocyte count. (may have spelled that wrong). But everything came out negative.

 
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