I've been diagnosed with idiopathic neuropathy. Which pretty much means that they don't know the cause. You can review my case in previous posts.
Since this struck me, I've got several bouts of anxiety too. Today, aside from my "new and weird symptoms", I've pretty much OK, neuropathy speaking.
I write this post both because of the weird symptoms I mentioned, and because I've been treated by the Social Security, where, unless you're dying, you're not going to get a doctor's appointment in months. So, any advice or input is really welcomed.
The main weird symptom, which started yesterday morning, is hard to describe, but I'll do my best.
It feels like muscular angst. My right arm and leg feel like if something tickles them from inside, they feel "nervous". Sometime they also feel a little weak, but when I "test" my strength and I can pretty much do everything, as usual.
I've read about Restless Legs Syndrome(RLS), but in my case this started just when I was taking a bath, and sometimes, like today, I felt it more during physical activity(exercise), than during rest, which is a common RLS presentation.
I've also felt worst in the morning, and not at night, as RLS patients often do.
And it's a unilateral feeling, my left arm and leg feel just fine.
Besides this, I've felt a little dizzy, specially when I close my eyes.
I have to admit that I've been under heavy stress since January, but this is the first time I've felt this way.
It's an almost permanent symptom but I've managed to sleep, not to well tough, but without any jumping or moving, at least nothing out of the ordinary.
Yesterday's night, symptoms receded, but today they began again.
Does someone has any input or knowledge on this, I really appreciate any advice.
Currently I'm taking:
Gabapentin: 300 mg twice a day (600 mg daily)
Moduretic: once a day. My blood pressure has been on a 120/83 mark this weeks.
Rivotril(Clonazepam): 0.25mg Daily. For anxiety.
Bezafibrate: I tale 200mg(one tablet) a day. Bezafibrate is used here in Mexico for triglycerides treatment.
This is my daily medicine intake, which hasn't changed much, since almost one year ago.
It's been a long time since(months) my last blood test, where the only thing out of range where both Cholesterol and Triglycerides, which in my case where high, not tremendously high, but high nevertheless. Test included pretty much every test you could imagine.
I've had three EMG/NCV, last one pretty much normal. two MRI's, both normal, several neurologic evaluations, pretty normal. This is why my neuropathy was labeled as idiopathic.
Hi Stargrave. I think that you just helped me figure my problems out. I recently had a severe bacterial infections and now I am having increased numbness in my face, arms, and legs. Also increased weakness and fatigue. I went ahead and made an appt with my neurolgist but it is a month away so I am hoping things will subside by then. It is hard to believe that simple things that people suffer from every day affect people with neuropathy in a whole different way. Remember me from the Small Fiber Neuropathy Gang?LOL
Hello Anwise67 for a myriad of reasons I couldn't catch up with this answer till now. But YES! and this is true for everyone. You've got flares for any kind of infection as long as you're nerves ara affected to a certain degree.
Well you can even have a lot of symptoms, because of the infection alone.
But. If your damage is mild, you take your medications and have PATIENCE, you'll eventually feel better.
It's been more than a year since my last neuropathic flair, the one I posted here, and aside forms some hiccups here and there, I'm pretty much OK.
Thanks to an Elliptical workout, that I managed to incorporate to my life, I've managed to drop the bezafibrate, clonazepam(which was a mild dose really), and I'm on just on 300 mg of gapabentin a day.
Recently I've got some vertigo Issues, the ones that brought me to the boards back in 06 or 07 I think, due to a not yet, formally treated, allergic issues, that maybe were the original culprit with my neuropathy too, but the doctors never found a clear relationship with it.
Nerve recovery, when it occurs, is SLOW as hell, and the neuropathic symptoms associated to nerve damage, have a one step forward to steps back presentation, that made you feel like if you're getting ill all over again.
And this is in the best case scenario, where an actual recovery occurs and can be both clinically measured and clearly perceived by a patient.
So hang in there, try to exercise, follow your treatment with discipline, it's working, trust me, slowly but surely it is.
I know it's hard but also try to identify anxiety, because, even without any nerve damage, you can experience neuropathic symptoms, amongst others, which will only add up to the misery that neuropathy brings to it's sufferers.
So stay cool, and I wish everyone the fastest, quickest and everlasting recovery from this.
Last edited by stargrave; 08-01-2014 at 10:08 PM.
Reason: Typos, extra content.