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Old 04-05-2013, 12:01 AM   #1
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IVIG treatment concerns

Hi I haven't posted in a few months. I need to ask a few questions. I have a few types of neuropathys. I take imuran to spress my immune system, IVIG treatments every 4 weeks, I would like to know how other people who take IVIG feel after there treatment? Have any of you experienced large red pimple like sores? last question. Do any of you have an increase in red spots that look just like a mole? thanks June

 
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Old 04-07-2013, 10:54 AM   #2
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Re: IVIG treatment concerns

Hi June,
I haven't posted in a while either, I hope that you are doing ok!!
Are the IVIG treatments helping, other than the red spots? It has been mentioned in passing as something I could possibly be a candidate for my immune problems that are causing my neuropathy.
Really hope you are feeling better and glad I caught your post!
Best wishes,
Daisy

 
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Old 04-07-2013, 11:08 PM   #3
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Re: IVIG treatment concerns

Quote:
Originally Posted by June89 View Post
Hi I haven't posted in a few months. I need to ask a few questions. I have a few types of neuropathys. I take imuran to spress my immune system, IVIG treatments every 4 weeks, I would like, to know how other people who take IVIG feel after there treatment? Have any of you experienced large red pimple like sores? last question. Do any of you have an increase in red spots that look just like a mole? thanks June
Hi June,

My neuro wants me to try IVIG but I am still working and can't take the time off for the treatments. Plus, I think it would be very expensive. I have MS and my neuro thinks this would help with my MS and neuropathy pain.

I am part of a private MS fb site and one gal is like you and takes it every four weeks. She says it helps a lot and only in the beginning stated that it caused a lot of water retention and had to infuse for eight hours every day instead of six hours. I will have to ask her if it gives her your issues that you are experiencing. I will ask her and let you know.

 
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Old 06-04-2013, 01:54 PM   #4
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Re: IVIG treatment concerns

Hi I know you answered awhile ago and I thank you. I think the red spots are a sign of low platlet count. There is a name but I forget. I am always forgetting everything. I too have to take the ivig at the slowest rate. I take the premeds as well. Take care June

 
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