Hi, I was just diagnosed with vitamin d deficiency. I was just wondering if anyone else has been diagnosed with this and what are your symptoms? I am not sure that all of my symptoms are related to the vitamin d deficiency or not, but I was just wondering if anyone else could list their symptoms.
I have rapid heart rate, body wide pain, brain fog, bone pain, digestive issues, vision disturbances, headaches, skin problems, nail ridges, just to name a few.
Thanks for any input,
I used to have Seasonal Affective Disorder (SAD). I got depressed every winter, even in sunny California. When we moved to grey overcast dreary northern Germany, my depression grew till I was actually contemplating suicide. Once I started taking Vitamin D3 supplements, my depression lifted, and I have been through several winters now without depression.
I have very fair skin and I burn easily. The recommended 15 minutes in the sun daily would make my skin turn pink. In 20 minutes my skin would be red. I can't believe that a permanent sunburn is healthy. So I stayed out of the sun in California. Here in northern Germany, sunshine is in short supply. THe only way to be sure that I am getting adequate Vitamin D is to take a supplement.
My symptoms were not the same as yours. But Vitamin D is important to a great many systems in the body. I hope that you are able to raise your levels with supplements.
MMEE- So glad I found your post. I am having weird issues too...pls pls let me know if yours is the same.
Bone pain that travels (ankle one hour, then spine, then hands...feel like the bone is going to crush), shooting pains in bones that last a second, fatigue, some dizzyness, a bit of tingling in foot. Oh my joints are cracking A TON too...feels sometimes they are popping out of place
I am so scared I have bone cancer.
I am 33 yrs old, and have been on aciphex for awhile, I read that arthritis, bone density loss, and pain could be a side effect....however, seems like this all just started in the past 2-3 wks, though could be from long term use.
I have been tested for RA, lupus, and a cbc--all clear. Waiting on other tests.
Can you please let me know if you have been experiencing something similiar, I am freaking out and wont have results till Tues---this is all I can think about.
My pain seemed to come on all at once, just woke up one day and it started and progressed the past weeks
Hi, I am so sorry to hear that you are having all of these symptoms too. I have all of those symptoms and a racing heart rate and muscle pain too and vision disturbances. But I do have all of the ones that you have listed too. Mine started exactly like yours did, literally I was here at my house one night and my heart started to beat out of my chest and then everything else that I have now too was soon to follow. That was 16 months ago. I am 32 also, so 30 when all of this started.
I tested negative for the RA, lupus, and all of that too last year when I was tested at the rhemo's, but I do have a very high ANA titer for autoimmune disease, mine is 1:640, was your ANA tested? Do you know yet if you have a vitamin d deficiency? And just out of curiousity was your calcium checked? Mine is intermittent high and then the last one I had done was a low ionized calcium and normal serum calcium.
I know how scary this all this, I am scared too about it all and what could be causing this all.
Hi Mmee, sorry you too are going through this, but it is good to know we are not alone. So you have bone/joint pain too? Does it travel through your body, ie- feet for one hour, knee another, spine, along with shooting pains to the joint? Do your joints crack? I have had some visual issues too.....Did your pains seem to come on all at once?
I am thinking and hoping it is from a deficiency due to my medicine that I have been on. Sounds like you were dx with Vita D def...how long ago was that? Have you been taking supplements since?
I am so terrified it is something serious. I have been so tired, spaced out, anxiety (mainly due to the pain and what it coudl be) and tons of dizzy spells.
I do not know if I hade my ana checked, I am sure I did as I switched drs last week (to one that would take me seriously) and he seemed to test me for everything, even mercury poisioning! I think he may have tested for a deficiency in D, I will ask him. I wont have answers till Tuesday...I am SO nervous.
Have you had other testing aside from blood work? My dr said if this checks out I need to see a neuro, however, I am thinking a rhuemotologist instead.
Are you on medication at all?
We are both in our early 30's which makes it scary for me as I think how could it be arthritis all in my body at this age, or a D deficiency when I am good with milk etc?
Lets be sure to keep each other posted. I will think positive thoughts for you.....
Hi, yes I do have all of those pains too. It is terrible, my vision is getting so distorted at times that I do not always even feel comfortable driving anymore. I am afraid that my mystery will never be solved.
When mine started, everyone kept telling me it was 'anxiety disorder' so I did not get very far until my ANA came back very high, then I started to be taken seriously, but now we are getting back to it is 'all in my head' again. I am so scared that I am never going to get better now, I am sure that you feel the same way.
I also get the dizzy spells too, infact I am dizzy most of the time now.
Keep me posted and let me know how you make out with your tests.
Last edited by mmee; 06-29-2008 at 04:38 PM.
Reason: add something
Hi everybody, I just found out that I am Vitamin D deficient as well. I wanted to ask you guys what brand of vitamins do you take? I have just been taking Natures Made Vitamin D but I haven't seen any results yet. Thanks!
Hi M, when were you DX with the D deficiency? I got the stress thing from my dr too, same one that misdiagnosed my chest pains with stress last yr...when it ended up being GERD! Hence, I again have gotten a 2nd opinion so we will see what comes back on Tues w my results. Have you gone to see a different dr for a 2nd opinion? Do you live near the woods...reason I ask, have you been tested for Lyme?
Moe- I have not been DX yet, hoping that THIS IS what is wrong with me! Can you share your symptoms with us?
Hi, I take the pharmacy prescription kind, it is 50,000 ius and the doctor put me on 3 pills a week. How many ius are you taking a day or week?
I was actually just diagnosed last week and I have been sick for 16 months. I am still not sure whether my symptoms are due to this deficiency or not. I have GERD too. We sound like we have alot of the same symptoms.
I do live near the woods. I have been tested for lyme's 3 times and they all came back negative, but I am learning that that does not always mean that you are negative. I even had a previous doctor tell me that one time. I hope that you can get some answers soon, this worrying is driving me crazy and I am sure that it is you too. How long have you been sick with your symptoms?
Hi Mmee. I have been feeling this way about 3 wks now, well with the pains anyway. I have been fatigued and getting random dizzy spells the past few months, but have just been blowing them off. Then the pains just hit me all at once. I woke up one day and my tail bone was killing, 10 min later fine... a few days later my left ankle hurt so much I could not walk, it hurt to rub it too....in the morning it was fine. The next day my right foot and ALL toes felt like they were being crushed, a few hours later fine. From that point I have pains in my spine and random shooting pains in my bones. Do you have all these too, if so how often do you get these pains and for how long? I am so paranoid its bone cancer or something. Now all my joints are cracking, in fact I swear every joint in my neck just cracked "snap snap snap snap", also it feels like my hip and knees are going to pop out of the socket.
Do you typically drink milk, eat yogurt etc?
I have read that long term D deficiency can get so bad that you feel like you are having a slow death, ie pain, fatigue, mental alertness etc....
Have you been on medications for GERD?
Gosh at 33 and going through all of this, what are the next 5 yrs like! My poor boyfriend is prob. so tired of hearing me talk about this and my paranoia that this is the worst.
Did your Dr tell you how long it will take to reverse the deficiency and symptoms?
Hi. Yes, I do have all of those symptoms, some days my knees hurt so bad that I can not walk and then 1/2 hour later it will be completely fine. The same for my ankles and wrists too now. I have a ganglion cyst that has appeared on my wrist about a month ago and now it hurts too.
I know what you mean, I am 32 years old and I am scared as to what the future holds, because I am so sick now.
I was on prilosec and now protonix for acid reflux (GERD), but to be honest it is not even helping now really at all.
I used to eat cheese and milk regularly and then a few months ago my blood calcium came back high. It has come back a total of 3 times high, which should never happen unless there is a problem, usually with the parathyroid. Have you ever had your calcium checked? Parathyroid issues can bring on all kinds of weird pain and lots of other things too, like GERD. But mine is intermittent high (calcium), so I can't really get anywhere with the doctors.
My doctor did not tell me how long it would take to reverse the deficiency. This particular endo is not very good at listening or explaining things.
You get your test results back tomorrow? I can't wait to hear how you make out.
k2626, I also have fibormyalgia so some of my symptoms are probably from that but I feel dizzy and very fatigued all of the time, I suffer from anxiety and depression, I also have widespread body pain, headaches and TMJ. Do you have the same kind of symptoms?
I have been feeling this way for four years now and I'm only 24 so it's hard to deal with. :0(
mmee, my doctor told me to just take 1,000 i.u. a day and on days when it's not sunny I can double up on that. My vitamin D deficiency must not be too bad then so maybe all of my symptoms are just caused by my fibormyalgia.
I also have tmj. It seems like alot of our symptoms are the same too. I was just wondering have you had your ANA tested? Mine is very high, 1:640 titer. And have you ever had your calcium level checked? Mine is intermittent high and then the last one, the ionized calcium was actually low, which the calcium is supposed to stay almost the same number all of the time.
I am so sorry that you are so young and have to deal with this. I am 32. I hope we can find our answers.
Thanks for the info mmee! 32 is also very young to be dealing with all of these problems and I'm sorry you have to go through feeling like this. When I went to see a neurologist they did 5 vile's of blood work but I don't know what they were all for, the only thing the told me that was abnormal was my vitamin D levels so everything else must have been ok. I had one more blood test done and I go back to see that doctor on July 9 so I will get the results for that on then. Do you see a specialists or do you just go to your primary doctor? I wonder if I should be seeing someone else other than a neurologists? Thanks again for your help!
Mmee- How long were you on meds for GERD? That could be the reason for this.....I did read that use of it could cause bone loss and vitamin D and B12 deficiency, especially after LT use. I never knew this till I started digging this week. My dr at first mentioned he would check my D and I just balked as I have a protein shake daily with milk, take a supplement and eat yogurt. However, acid med apparently dont let your body absorb D or B 12. Sounds like you and I are going through the exact same thing. When I hear from my dr, IF it is a deficiency I will ask how long it will take to build back up and feel "normal" again. One woman on this board said she had a deficiency for years and literally thought she was dying. She lost a ton of weight, was in pain and slept all day....she finally found out it was due to lack of D. Does your pain spread all throughout your body and do you get shooting pains too? I have had some pain in my spine to which really scares me. Its hard to NOT think about bone cancer when one feels this way.
Moe- Had you been check for everything before being dx with Fibro? What kind of body pains exactly are you having? Are they long pains, or shooting, muscular or bone? I do get dizzy and am tired. Are you on any new medications? Are you typically good with D intake? When were you DX with a deficiency and how long have you been on the D for ?
Do either of you have cracking joints? Mine has gotten so bad, also feels like my knees are popping out of socket. I NEVER had cracking joints until the past couple wks
Hopefully we will all get to the bottom of this- I dont know about you but I feel like I am 33 going on 83. Lets be sure to continue to keep each other in the loop
k2626, in 1999 I had scoliosis surgery and in 2004 I started having these symptoms, I went to 2 orthopedic doctors and they kept telling me that my pain was coming from the muscles trying to form around the rods implanted in my back. Then starting in April 2007 my symptoms worsened and they were more constant then before so I went to see my primary doctor. She was the one who said that I had fibormyalgia and sent me to see a neurologists, he did a brain MRI and lots of blood work. The neurologists is the one who told me that my vitamin D levels were low. The pain that I have been having is muscle pain and it is in my back, neck, legs, feet and wrist. I have been going to physical therapy and massage therapy but it never goes away. I take a lot of medication, Lyrica, Cyclobenzaprine, Darvocet, Calar SR, Xanax and Pristiq, which is the newest one. I actually started taking vitamin D (400 i.u) supplements before my doctor told me that mine was low. My moms friend also suffers from depression and her doctor told her that vitamin D was good for that. I have been taking the 400 i.u. for about 5 mounts now and I started the 1000 i.u when my doctor told me that my levels were low.
moetwins and k2626,
I have been to many different kinds of doctors and specialists and I have even switched family physicians 3 times during this 16 month ordeal. I have been to a rhemotologist, neurosurgeon, doctor of osteopathy, endocrinologist, pathologist, those are the ones that I can think of.
I have been diagnosed with many things: myofascial pain syndrome, degenerative joint disease, tachycardia, ganglion cysts on wrists, and other odd things too, just to name a few.
I do have the shooting pains. I have even went to several different chiropractors trying to help my spine, but it did not help. And in fact, I had to stop going all together, because I was just feeling worse and getting sick after the chiropractor.
I have tryed massage therapy by several different massage therapists. It worked some for awhile and then just seemed to make me sick so I stopped going to that too.
Do either of you have problems with a fast pulse rate or palpitations?
I have been on acid reflex medicine off and on for the last 16 months. It helped but then it quit helping so I stopped taking it.
I also tryed a naturopathy physcian (ND) that I had to drive 2 1/2 hours to see. She helped some, but I still never got better.
I am on several prescriptions too. I am on toprol xl, klonopin, flexerill, protonix, ambien, and that is all that I can remember now. lol
Let's keep each other posted, maybe together we can figure this mystery out.
Mmee I truely think the deficiency could be caused by the GERD medicine. What kind were you on? I dont think it is a coincidence that we have both been on GERD meds and have bone pain, shooting bone pains, brain fog, dizzy spells etc.
Did your Dr tell you how low your calcium is? Have you felt any better since being on the D supplement? I am sure it will take time. I think I read it could take up to 3 months!
Yes my pulse has been racing lately, I thought it was anxiety. My biggest complaint is the bone pain and shooting body pains though.
Have your joints started cracking a lot?
One more question, have you had any weight loss? I think that is a symptom too of D deficiency
I should find out in the am what is going on, please think good thoughts for me. Its hard NOT to think its not something super serious.