Hi, I was just diagnosed with vitamin d deficiency. I was just wondering if anyone else has been diagnosed with this and what are your symptoms? I am not sure that all of my symptoms are related to the vitamin d deficiency or not, but I was just wondering if anyone else could list their symptoms.
I have rapid heart rate, body wide pain, brain fog, bone pain, digestive issues, vision disturbances, headaches, skin problems, nail ridges, just to name a few.
Thanks for any input,
Yes, I tested postive Vit D definciancy at the same time I tested positive for an autoimmune disorder. I take an rx of 50,000 iu's 2 times a week. My Dr. said a Vit. D deficiency can cause muscle and joint pain. Have you been tested for anything autoimmune?
Yes, I have an ANA titer of 1:640, but nothing else that it matches just the titer. I do have Raynaud's though.
What autoimmune disease do you have, if you don't mind me asking? Also- do you feel better since you have started the vitamin d supplement?
Thanks for your help,
I was diagnosed with "almost lupus" ...my ana was 1:40. Also tested positive for having had the parvo virus at some time in my life. Some people ( me included) think that there is a connection between virus's and lupus.
The symptoms that led to my diagnosis was joint /muscle pain, fatigue ,sun sensitivity ,& swelling in my left nostril that never goes away. My Dr. is treating me for lupus even though not all the tests point to it. She put me on plaquenil and it has helped. I'm not sure if the Vit. D is doing much , due to the fact that the plaquenil has helped me so much,but I sure do have hard nails now,which is great because I was always breaking and chipping them
Good luck...with your high ANA I would say you definately have something autoimmune going on.
I never heard of the parvo virus either until it showed up in my blood tests. What my blood worked showed was that some time in my life I had the parvo virus. I could have been a child. I don't remember having had it. It presents sort of like chicken pox. I think it;s also called fifths disease.
There are other people on here ( on the lupus and fibro board) who have also tested positive for the parvo virus. Personally I believe there is a connection ,and next week I am seeing a Dr. who also believes that if he can strip the body of the virus ,my autoimmune disease will go into remission. Not sure how he does that. He's into holistic healing ,so I know drugs will not be involved. It's worth a try anyway...
I don't think that I have ever been tested for that.
A few years back, my friend did get fifths disease, and we had been around her, and then we got some of the rash markings for it. But I never really found out for sure if I had it or not.
Thanks for your help,
I only found out that i was very low in vitamin D when i saw a doctor for my very low iron and abnormal hair shedding. Later on my doctor diagnosed me as having Hashimoto's which is an auto immune thyroid disease.
I did a blood test for gluten intolerance as it was odd that i was having difficulty absorbing iron and it took two years to increase my ferretin and my Vit D was taking it's time rising, even when i took higher doses. I also find it hard to keep my iodine levels up if i stop taking iodine drops daily. Gluten inolerance is also an auto immune disease.
After seeing my new thyroid doctor he found out i had poor adrenal function so was always tired, foggy and felt like i'd been hit by a bus and my eyes always felt swollen, stung and on occassion felt like they'd burst. Once i began med's for my adrenals all that went away.
He also diagnosed me as having poor pancreatic enzymes when it comes to digesting protein foods. Undigested food matter which floats around, fermenting in your body is not good. I'm now on prescription digestive enzymes with all my main meals and my stomach bloating and general tiredness after meals has gone.
I only began all my treatments in mid april, so will see when i have repeat testing whether my ferretin and Vit D move up any faster.
A lot of people who have most of the things which i have actually suffer from thyroid conditions, but i do know that long term low Vit D does lead to auto immune diseases. I have also wondered what caused the low Vit D in the first place? something to do with digestion?
We sound alot alike with our conditions, I have not been diagnosed with hashi's though, but he did say that I have thyroiditis.
I also found out 2 weeks ago that I have candida too. And all of my symptoms are listed under candida, even the vitamin and mineral deficiencies. So, I am hoping to get myself on track now if I can get the candida under control.
Keep us posted on how you are doing.
mmee - by thyroiditis did he tell you whether it was hyperthyroid or hypothyroid. For the Hashi's they need to do a thyroid antibodies test. All my tests were never WAY out, but it was when they did the antibodies that it was there in black and white. Are you on medication for your thyroid?
Oh do i have experience with candida too, but that was back in 1997 i think. Too many antibiotics over the years did a lot of harm. Finally i got rid of my tonsils when i was 29, then i got married a few months after and i had big issues with candida, but wouldn't have known i even had it as the symptoms i had were not obvious. It was only when my husband and i got physical that i started at one point to constantly feel pain during sex. It was like someone had thrown sand in there and it was uncomfortable and irritated. Doctors wouldn't listen to me and kept telling me to apply Caneston.
My parents one day had a friend visit and she told me of a good doctor who was an allergy specialist too. He put me on a special diet for a month, told me to take a probiotic daily and to get a good multivitamin. I recovered and never looked back. I was experiencing chronic tiredness, no motivation, no interest in anything, not even clothes shopping!!! I hardly had the energy to have a shower. It was like i was slowly dying. After only two weeks i found my energy level go up and one day felt like i could run a marathon. I couldn't believe it. After that i never really ever got candida problems ever again and i always made sure i had a good bottle of probiotic capsules in the fridge incase i did have to go on antibiotics. I would only take antibiotics if i was on my death bed these days as they can do so much harm as well as good.
Candida can be very bad. In women it can affect the muscles in extreme cases and lead to needing crutches. For men it's worse, it can affect the heart.
I am on the hyperside, but I have also had the antibodies test 3 times, because I do have a very high ANA for autoimmune disease. It has come back negative 3 times.
I have already been diagnosed with myofascial pain disease of the muscles and I have tachycardia too that is not very well controlled on medicine. So, I am not sure what is coming from what. lol
Thanks for posting,
Since beginning my meds for my thyroid and adrenal fatigue i have spent a bit of time on the Thyroid board and it is amazing how many people have a wide range of symptoms which you wouldn't think were due to a thyroid condition, but they actually are. Some of the posts on the Thyroid board can get a bit technical, but there are a lot where people discuss their symptoms and links to thyroid issues. It might be worth you haveing a read of those or even posting your symptoms and your situation to see whether there are others who are in your particular situation. The more boards you research on the more likely you are to find a link to you situation.
The fact you are low in Vitamin D can play a big part in so many areas. Just look up vitamin D deficiency on the net, i couldn't believe how many areas of the body can be affected by being low in Vit D!!!!
Have you had your ferretin tested (iron storage)? A decent ferretin level is important for your muscles too. A lot of people who are low in Vit D are often low in ferretin and happen to have thyroid issues at the same time. A lot of these people seem to come up with gluten intolerance on their tests too. I'm a bit gluten intolerant, but don't have celiacs and i dont get any symptoms either, but you can still be gluten intolerant regardless of not having symptoms.
I have Vitamin D "insufficency?? also but ready your post was so interesting as I have been checked for Thyroids to.But not on anything for them yet. So have you tried walking in the sun everyday for 20mins. I think thats what my Dr. says to do.Thanks Shirl
There are few foods that have Vit D in them, I've discovered. THey are mostly fish, although tuna has a low amount. I have a vit D level of 9. I probably have a mitochondrial disease. My neuro said that at levels like mine he'd recommend Vit D shots. He also said that vit D supplements can take up to 9 months to improve your levels. I'm exhausted constantly, which is a vit D thing and a mito thing.
Wallis - if your low vitamin d is a symptom of something else then simply eating foods with Vit D in them wont help, you actually need to take supplements to up the levels. Mine took roughly like you stated, 9 months, or a bit longer to reach a higher end of the maximum range. Prior to that i was below the minimum range.
I eat foods with vit D in them and i like to go out in the sun too, but i was shocked when i found out my Vit D was so low.
People with low ferretin and thyroid issues often have low Vit d. Possibly other illness can lead to low vit D too.