Well.... it is a bit difficult to explain without taking three days of your time.....
but, I initially presented with a sudden breathing problem in Dec this past year. It was spontaneous and
My doctor found a squeek in my lungs when listening and prescribed me albuterol.
I took it and it did not work.... and I panicked...
because I felt like I could not breathe.
I went to the e.r. and they found my chest xray to be clear but prescribed me a small dosage of steroids.
I took them but after four days, my symptoms only worsened. I went to my doc and he increased the dosage
to 60 mg to taper after 6 weeks.
By day 12, I felt good..... back to normal.
DAy 15, they do PFTs and they were normal.
By day 20, I am in the fetal position crying for several hours at a time for days.
The steroids were making me psychotic.... suicidal.
So I was put on effexor and ativan.....
I got off the steroids..... but the breathing issue
returned as a result.
They just kept medicating me and telling me to see a pcychiatrist.... that my breathing problem was anxiety induced.
(They forgot it was initially a physiological problem)
So I started to see a psychiatrist.... who felt that I had simply reacted to the steroids, and that any other stress was associated with how I was feeling physically.
The doctors ignored this.
So after 7 months, with no resolution by the effexor, I decided to get off of it myself.
I DID tell them about the side effects....they refused to lower my dosages.... since I still presented with anxiety...as a result to my inability to take a deep breath.
I asked to have blood work done..... they did it in February. It seemed okay. I asked for heart tests...
I was refused because I am a 28 year olde woman.... thin.... etc.
They would not take me off the meds... and I got to a point where I began to believe them about my anxiety... perhaps that WAS the problem.
But the effexor made it so hard to think. I just... gave up and tapered off myself.
Two months ago I began with severe pain in the left lower rib..... I got an endoscopy.... my spleen was enlarged.
My blood counts are low.
All of this time, it was my enlarged spleen making it hard to breathe.... and the meds were creating all of the other symtoms.
Bottom lining it for you.... I had pancytopenia two years ago.... my spleen enlarged and bled.
The sensation of air hunger I felt in december was identical to then.... I TOLD THEM THAT RIGHT FROM THE BEGINNING!!!!
They never followed up to see WHY all of that happened. I was in the hospital for three weeks.
ANd all they could say was that my baby platelets forming abnormally MIGHT have been as a result of my enlarged spleen.
They never followed up.
Now, two years later, I face the same problem.
My symtoms are consistent with hypersplenism.
Now, me and my new doctor are determining the cause.
BUT.... I could not tell the difference between physical symptoms of sickness and the side effects from the medication.
WHen I needed those doctors to help, they didn't. They blew me off as a phych case.
Just know, I am also a tattood, pierced woman with a bald head.
The most frequntly asked question in the last year was "are you a drug user"? (Asked by the same doctors several times.
P.S. I payed this particular medical group thousands of dollars to treat me like crap and leave me with an addiction and an unresolved health issue.
Because they stereotyped me.... and the ironic thing is, I do not even like to take tylenol.... never the less, ANY drug.
THe very thing they treated me like is what I have become. AN effexor-Ativan junkie.
Blue (long winded)