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Old 11-03-2002, 09:15 PM   #1
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Lori96 HB User
Question myelodysplasia crisis

Hi! I'm new to this site, but I have a pretty serious concern. My father was diagnosed with myelodysplasia in February 2002 and now we're run out of options and his doctors have given up on him. He has received almost 40 units of blood since then, been in and out of the hospital several times in the past couple of months and has lost almost 80 pounds since his diagnosis. He is 69 years old and was a farm chemical salesperson for most of his adult life (which I guess can be a contributing factor for acquiring this disease). He is very weak and tired most of the time now--he sleeps at least 15 hours per day. Anyway, does anyone have any ideas on some alternative treatments that might work for getting him to feel a little better. We don't know what to do at this point. Any suggestions would be helpful. Thanks!

 
Old 11-04-2002, 06:08 AM   #2
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Has the Dr.mentioned anything about a bone marrow trasplant? I'm sorry he Is so Ill.

 
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Old 11-04-2002, 09:23 PM   #3
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Apparently he doesn't have the type that he can have a bone marrow transplant. I don't understand why though. There are mini-transplants that are available, but the doctors here aren't interested or don't know enough about them. Very frustrating!

 
Old 11-04-2002, 10:53 PM   #4
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Lori96

Tangle had accute myleophistic leaukemia in 1997. Fortunately he was young enough to have survived it even without a transplant.

Of course not doing anything and "hoping it will go away" will not work. I suggest you by a copy of Andrew Weil's 8 Weeks To Optimal Health. He begins the book with a case example of a young lady with a similar condition to your father's, axcept worse. She had a remarkable recovery, so did Tangle.

If you will flood his body with theraputic amounts of nutrients, plus medicinal herbs, he should show immediate if not complete recovery in a matter of weeks.

[This message has been edited by Tangle (edited 11-05-2002).]

 
Old 11-05-2002, 07:00 AM   #5
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Since your father is tired so much of the time have him ask his doc about the new drug procrit which is being used a lot for cancer patients etc where treatment and whatever is zapping them of thier energy.

 
Old 11-05-2002, 01:12 PM   #6
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B-12 injections might help him too......

 
Old 11-05-2002, 08:46 PM   #7
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He did go through a series of Procrit injections, but they didn't help at all. The doctors decided that it was way to expensive to keep up the treatment without any improvement at all. I liked the B-12 idea and the vitamin and herb treatment. He doesn't eat well and has trouble with his stomach when he takes vitamin tabs. He drinks 3 cans of Ensure (extra calorie) every day. Any other ideas of things to try? I'm mentioning everything to my mom. She figures that anything is worth trying, as long as it's not just prolonging his life to just lie there all day. It's a tough decision for her--and she has to live it 24/7. Thanks for all your help!

 
Old 11-06-2002, 07:13 AM   #8
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A good mulitvitamin and antioxidant supplement is essential to helping him energy and health wise. Your mother might also want to consult with your local hospital dietician to see what else they recommend to help your father out. One other thing I would suggest although I am sure you have done this is to do an internet search to thoroughly research your dad's problem to see what it is out there for treatments etc. Good Luck.

 
Old 11-10-2002, 07:42 AM   #9
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Take OIL OF OREGANO and see if it can help you .

[This message has been edited by moderator2 (edited 11-10-2002).]

[This message has been edited by moderator1 (edited 11-11-2002).]

 
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