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Old 11-01-2004, 07:34 AM   #1
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Help My Wife Please - Pain in Lower Chest - Abdomen

Hi.
I am on this forum to hopefully find some information that can help my wife's health problem. I love her and need to do what I can to help her resolve the problem. Basically her problem is one of pain from about her breast area to just above her belly button. Has been there for about 4-6 months in varying amounts from about a 3 to some days of 10+ level.
Has had variety of tests done (scans, MRIs, blood work, bone biopsy, etc. etc.). Her primary doctor at this point believes it most likely is some variation of fibromyalgia that she was diagnosed as having before. Another doctor she saw few days ago (followup for ulcerated esophagus problem), basically said might be a chronic pain problem...... need to pursue pain management/alternative medicine path. Last few days since then she has been in pain, and depressed.
....... this whole thing started with her having giant hives back in March, which finally were resolved when she took prednisone which cleared up the hives but left her bloated, and soon after the pain in her chest-abdomen started...... never did find the cause of the hives.
Her current list of medicine includes: Effexor, Nadolol, Protonix, Ambien, Levothyroxine, Clonazepam, Neurotin and Hydrocod for pain. Was taking Percaset? before for pain...... neither seem to help much. She also just stopped taking Diazepam (replaces Valium) to help her sleep.

Please give me your input.............
Thx.
Bob

 
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Old 11-02-2004, 07:17 PM   #2
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Considering the medications your wife is on, it would be a good idea to take her to a diagnostic hospital such as Mayo Clinic, Scott & White Clinic or other. Getting a second opinion is a must.

The medications she is taking are heavy stuff and she needs a doctor who will be able to properly diagnose the problem and manage the meds.

It could be the esophagus problem still giving her trouble.

 
Old 11-02-2004, 07:27 PM   #3
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

I have to agree her meds to not sound appropriate a few of them are about the same exact drug. To me personally sounds like an overdose. Be careful of Neurotin, my husband said that drug really messed him up. Sounds like the doctor is treating her for MAJOR anxiety or depression. He may think she has alot of tension or anxiety but all those meds are hazardous. Have they done an ultra sound? The reason I ask is because she could have gas building up or her organs inside may be shutting down due to too many medications all at once. I would highly recommend a second opinion. Have you even asked your pharmacist about all these drugs combined? He should be able to tell you that some of these drugs are similar or if there is a reaction if mixed. Please keep us posted. I will be worrying with you. Prayers to you.

 
Old 11-03-2004, 11:32 PM   #4
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

I agree that it sounds like the doc is treating her for anxiety depression. I'd also say be careful with the effexor. That medication really messed me up for a long time. I'm still not fully recovered from it. It works fine for some but always best to know if something is potentially dangerous.
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Old 11-05-2004, 07:56 AM   #5
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Hi.
Thanks for all the input.
My wife had 3 good days (max pain level about 5), so I was hoping that things were getting better and didn't look at forum.
Unfortunately yesterday was not a good day........ besides her abdomen-chest pain, she seemed to have flu type symptoms and was tired/weak all day long. Maybe an aftereffect of pneumonia shot she got last week?
Today, she seems little less flu-ish, but woke up with higher level (5) of pain.
To answer some of the questions:
Yes, she has had ultrasounds too.... some of these and/or other tests showed a ovary mass/cysc and liver nodules, but these were determined later to be no big deal!
Also, they did do an exploratory laporascopy about 2 months ago, found a lot of adhesions which they removed............
She has been taking Effexor for about 4 years, started when she had neck pain (fibromyalgia/Lyme disease?). The neck pain finally did go away.
Yes, I think doctor is strongly treating her for depression...... constant pain has gotten her down.
She is only taking Neurotin 1/day (300 MG) now, because her primary doctor (after consulting with neurologist) decided to go with a different medicine (forgot name, and wife sent prescription away to our Medical plan people), and she thought he said to stop that.......... and another doctor said some danger in stopping suddenly!

Thx.
Bob

 
Old 11-05-2004, 08:08 AM   #6
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Forgot 1 response to question........... primary doctor does not think it is her esophagus because she has a lot of pain on her sides as well, extending up to below her armpits.
Just as a side thought............. I notice a lot of times when I am lying next to her in bed, her breathing seems funny...... like a sort of collapse at the end of her exhale, versus a steady in and out. This is when she is sleeping.
Bob

 
Old 11-05-2004, 08:21 AM   #7
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Hi,
This is the subject of the above discussion. What is the results of an ulcerated esophagus?
thx Linda

 
Old 11-05-2004, 10:56 AM   #8
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Hi!

This is my first posting on the forum. So please bear with me!

Hi Bob,

I just had to write to you, and tell you to not give up!

I suffered with chronic pain in my side for many years. I've had multiple tests and scans. They always came back with nothing. Good that it wasn't serious, but it still didn't help me to find a solution.

I was told by doctors to just go home and take it easy.

My pain seemed to flare up whenever it felt like it! Sometimes things seemed to set it off....other times they didn't. I finally ended up in the ER with a prescription for percocet. I knew that wasn't the answer either!

As my pain intensified, I couldn't sleep...began to lose weight....anxiety increased....depressed....I'm sure you get the idea.

I pushed and pushed to see a specialist. My family doctor didn't think I needed one. My pain had gotten so bad I couldn't stand to sit! I finally decided I had to go past him, and made the appointment without a referral.

Bob, if your wife has had all the tests, and they can't 'find' anything...please follow up their suggestion and see a pain management specialist. Then ask them about a 'TENS'..."transcutaneous electrical nerve stimulation" device. I wish someone would have told me about them years ago.

It has electrodes you stick on over the area of pain, and a little transistor about the size of a deck of cards I put in my pocket. It sends little electrical impulses over the area to disrupt the pain signals to your brain. Mine was covered by my insurance.

I know it sounds odd....and it doesn't help everyone who tries them. But it might be worth a shot. I didn't think it would help me at first...and it does take some getting used to....but I have my life back now!

If you have any questions....ask away!

Your wife is on a lot of meds. You wrote a doctor said there was a danger in stopping suddenly. Clonazepam I'm familiar with. And yes, if she's been taking it for a while she shouldn't stop that one suddenly.

Please keep in contact with your doctor. And someone else suggested another opinion. I too think that would be a good idea. Meds can be hard on a body.

Best wishes to you and your wife, Bob
jan

Quote:
Originally Posted by bob6831
Hi.
I am on this forum to hopefully find some information that can help my wife's health problem. I love her and need to do what I can to help her resolve the problem. Basically her problem is one of pain from about her breast area to just above her belly button. Has been there for about 4-6 months in varying amounts from about a 3 to some days of 10+ level.
Has had variety of tests done (scans, MRIs, blood work, bone biopsy, etc. etc.). Her primary doctor at this point believes it most likely is some variation of fibromyalgia that she was diagnosed as having before. Another doctor she saw few days ago (followup for ulcerated esophagus problem), basically said might be a chronic pain problem...... need to pursue pain management/alternative medicine path. Last few days since then she has been in pain, and depressed.
....... this whole thing started with her having giant hives back in March, which finally were resolved when she took prednisone which cleared up the hives but left her bloated, and soon after the pain in her chest-abdomen started...... never did find the cause of the hives.
Her current list of medicine includes: Effexor, Nadolol, Protonix, Ambien, Levothyroxine, Clonazepam, Neurotin and Hydrocod for pain. Was taking Percaset? before for pain...... neither seem to help much. She also just stopped taking Diazepam (replaces Valium) to help her sleep.

Please give me your input.............
Thx.
Bob

 
Old 11-06-2004, 08:07 AM   #9
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Thx Itsjustme for you input.
I won't give up, but some days I think my wife is close to that.
She is scheduled to see the Pain Management people Wed.
Her pharmacist is aware of all the medicines she takes/hopefully they are on top of all the possible interactions. We just went over all of the medicines with her primary doctor as well.
She just started taking Gabitril in place of the Neurontin.
Yesterday, although she woke up with a higher level of pain (5), it only rose to a high of about 8 before she went to sleep, and she appeared less 'flu-ish'.
Hopefully today she will be better!
Bob

 
Old 11-17-2004, 11:19 AM   #10
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Hi.
Just to keep you updated:
Her history this week is about same as has been. She wakes up with about a 2-4 pain level, progresses to about 5-6 mid-afternoon, and by bedtime it is between 7-11. She has also had a few days this week where she has spent most of day in bed with flu type symptoms (stomache hurts, diarrea). Also she tends to get cold sores, and she had 3 big ones on her lips this week! Thankfully they are finally clearing up, as she says they are also very painful.
Also, btw, she developed a blister (about .5 x 1 inch) on her stomache just below her navel about 1-2 days after she saw the primary doctor 1 month ago and had a pneumonia shot. The blister did break but area has not cleared up yet (is red borders with white puss center)..... doctors do not think is any connection, but .................

We saw her primary doctor again today........he thought blister was odd, but said to just scrub it with soap and put neosporin on it.
He will give us a referral to Albany (NY) Medical center when gets back from vacation in 2 weeks and Lyme test turned out negative.
We saw a pain management specialist last week, but looks like he doesn't think his speciality (nerve blocking) will help her, needs to look at her records more. Primary doctor today said he will talk to him, he believes that he could help!

Again, thx for your input and caring.
Bob

 
Old 11-19-2004, 10:58 AM   #11
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

I'm sorry to hear about your wife's condition, that must be hard on both of you. Since your wife is on so many medications it is important to continue discussions with Doctors in order to make any changes. The suggestion that I might make is have you considered acupuncture? I've had some abdominal pain and pressure, including digestive issues for 2 years that I've had checked out with MRIs, CT, and ultrasounds only to be told that they can't find anything. I went to a Traditional Chinese Medicine doctor and Acupuncturist and the pain went away. It's now beginning to come back again after having no treatments for 6 months, but I didn't make any life changes so obviously whatever is causing it is still in my life. I will be going back again to get it under control. I'm not sure where you live, so maybe there aren't too many TCM doctors where you are, but it might be worth a try if it will help. Also, acupuncture won't interfere with the medications she is on, so you won't have to worry about that. I swear by it for any pain issues I have.

Kerri

 
Old 11-19-2004, 09:26 PM   #12
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Thx Kcasey,
My wife did try accupuncture a while back (2 years?) when she was first having her fibromyalgia pain in her neck area. It did help but only for a few weeks, then didn't seem to help very much.
Bob

 
Old 11-26-2004, 09:46 PM   #13
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Nobody cares anymore? Just kidding..... but guess I look each day to see if someone came up with the magic fix........
Someone name Ani did send me a private note promoting a product called *********. Anybody know anything about it?
Thx.
Bob

 
Old 12-07-2004, 09:39 AM   #14
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

Hi.
Just wanted to update all on where things stand.
Had waited a few days to see if things were stabilized, but guess they are not.........
My wife's pain had been about the same for last month of waking up with a 2-3 level, progressing upward to about a 8-11 level by bedtime. It was somewhat higher on Dec. 1, with wakeup of 5 and bedtime of 15! But we did something different today - had her start taking Nature's Bounty Multi-Day Womens vitamin AND Natural Wealth Sublingual B12 (2500 mcg) vitamin. We also had a B12 blood test done today, as per her doctor's agreement (turned out to be normal?). Would you believe that for the next 3 days her pain level only went up to a max of 3! We thought that the B12 may have been the problem/cure!
But alas, last two days it has been coming back again, and last night it went up to a 10 level again, so don't know if we are back to old situation again. Note that she has continued to take the daily vitamins, and stopped taking Hydrocod Dec. 1 also, because she said didn't help her much and for these last couple of days really didn't need it. She probably will want to start taking it again if this 10+ level of pain comes back consistently.

When we saw her primary doctor on Dec.1, he indicated that he believes a nerve blocking doctor should be able to help her, and is also sending her to a local neurologist to get his take on it.
Bob

 
Old 12-07-2004, 10:11 AM   #15
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Re: Help My Wife Please - Pain in Lower Chest - Abdomen

hi bob. my god, your poor wish sure is going thru a lot. besides doing a lyme test, do you know if they also tested her for co-infections? ticks can transmit many different diseases.
are you from the albany ny area? i am just over the massachusetts line, about 45 minutes from albany.
i'll be praying for your wife and that the docs can find out waht is going on here. ther must be an answer there somewhere.
karen

 
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