texflower

Hi my first post here after reading for a week trying to find something similar.

I started having mild leg pain about 6 years ago. I ignored this pain for years thinking it had something to do with my scoliosis I was told I had (MRI says no.) Three years ago it go to the point where I quit working. Around Christmas 2004, I am in tears just going into the store for a gallon of milk. I am not managing just regular daily chores for myself now.

Example: This morning, I loaded the washer with the bedspread off the guest bed. Then loaded it into the dryer, made my breakfast (nothing major just scrambled eggs) I picked up a few items here and there and put them in their place. OK - Off to bed taking something to make me sleep just to get me out of this pain in both of my legs.

This is sad - my life should consist of more than just this??? I have seen so many different doctors, CT's MRI, some kind of needle test and on Aug 8th they want to do a muscle biopsy to send off to the Mayo Clinic.

My husband (bless his heart) does as much as he can for me and listens patiently to the point I feel ashamed. I can cry just over the thought of how much he has to care for me when I am only 40 years old and have raised 5 children. I want my life back where I can just jump up and paint a room or go walk in the park.

No other symptoms other than on my feet for more than half an hour and I am down UNTIL I sleep. The only thing that helps is sleep. Like I have told all of the doctors is somehow sleeping relaxes the muscles and when I wake I am fine till I move around again. Has anyone ever heard of something so simple but so hard?