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Old 08-09-2006, 07:47 PM   #1
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morkj008 HB User
Confusing Symptoms - can anyone solve the puzzle

Hi all,

I have been suffering from some really wierd problems for years now and most recently I have been getting to the point where I feel I cannot deal with it anymore. I desperately need to know what is the cause of my problems so I can finally look for a treatment which might bring me some relief.

Background:
Since I was very young I suffered from extreme worry and anxiety about seemingly unimportant issues. At the age of 12 I fractured one of my lower back vertebrae. At age 14-15 I had constant urge incontinence which I thought were bladder infections (feeling that I needed to urinate all of the time, often without actually having much urine to void). At 17 I got extreme panic attacks and anxiety and could not leave the house for months. This anxiety was unsuccessfully treated with Aropax and then eventually successfully with Zoloft, Xanax and Stemzine (for corrresponding nausea). At age 19 I became pregnant and had a son who is now four. Immediately after giving birth, for a number of weeks I felt extremely dizzy and lightheaded. No reason for this was found. Within two months of giving birth I got extreme insomnia and soon after a severe flu where I could not eat or even stand up for 2 weeks. At this point I was put on another antidepressant. Since my son's birth I have been becoming more and more tired. Doctors cannot work out why. I have had all of the tests for iron, thyroid etc. and most are negative. Once I was found to be lacking B 12 but that problem was ameliorated, and occassionally I will get a result saying my body's proteins are breaking down. But other times this will also be negative. Since I was young I have had IBS symptoms, the main one being diarrhea in the mornings. Once I wake I go to the toilet in the morning up to 6-7 times, but in extreme circumstances it continues all day.

In the last 6-12 months things have gone downhill fast. Things started with the breakdown of my relationship with my son's father. Within 6 months after this occurred I started getting extreme urge incontinence again. I found I did not like to leave the house because I needed to be near a toilet, just in case. I went to a uroligist/gynaecologist and had tests including flexible cystoscopy which all showed nothing. This urge incontinence corresponded with worsening diarrhea. About four months ago I started getting dizzy all of the time. It came on suddenly one day when I got such extreme vertigo I had to lie down and could not move. Since then it comes on and off, but I am dizzy most days at least mildly. Periods and headaches seem to worsen the dizziness. I skip periods now because I get so dizzy and have on eperiod every three months approximately. I am no longer able to drive safely and doctors cannot find a reason why I am dizzy. My blood pressure is a little low but apparently not low enough to cause dizziness. Serc for Merieres Disease made no difference and Stemetil for dizziness causes me drowsiness so I can only take it at night with little effect. I quit smoking about 2 months ago and my diarrhea has been getting worse and worse. I have always had extreme mood swings. So finally I started seeing a GP/naturopath and a herbalist/iridolodist. They did a hair mineral analysis and

They put me on:
Nilstat Capsules - treat possible yeast infection in stomach and body
MolyZinc - containing Molybdenum and Zinc
Vitamin C - 1000mg a day
B complex vitamin - contains B6 and B12
Inner Health Plus - containing acidophilus and Bifidobacterium.

This made little difference but I did find that my adult acne started to clear up. It was thought that I had food intolerances so I was put on a gluten and casein free diet with metamucil to cleanse my liver. Since undertaking this diet things have gone from bad to worse. I suddenly started getting extremely bad diarrhea, have lost 4 kilos in 2 weeks, and got even more tired and dizzy. Since starting the diet I also have symptoms of a stomach ulcer, with extreme upper stomach burning which is worst in the morning, extreme nausea. The diet has not seemed to have any positive impact on my digestive system, except my moods have seemed to level out a bit.

A couple of days ago I started Glutamine - 1000mg per day and Calcium and Magnesium with Vitamin D3 capsule. The doctor also prescribed me Pariet which is a proton pump inhibitor to see if it helps.

So basically my main symptoms are:
Mild headaches most days
Fatigue
Dizzyness- worse if visually focussing eg reading or when tired/headache
Urge Incontinence
Acne
IBS type symptoms - bloating/flatulence/diarrhea/nausea/stomach pain
Back and Neck Pain
Sore Throat
Stomach Ulcer symptoms

Please I want to know what is wrong with me. Anyone who has any advice would be great. Next week the doctors want to put me back onto an anti-depressant but I really want to treat the problem so I can start living. I don't really leave the house anymore. I don't feel like I can. I can't socialise and get very depressed when I think about the problems I am having.
Thanks

 
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Old 08-09-2006, 09:14 PM   #2
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Join Date: Jul 2006
Location: USA
Posts: 89
fallenleaf HB User
Re: Confusing Symptoms - can anyone solve the puzzle

I had a doctor tell me & my s/o that if you have medical problems that aren't being treated appropriately it can cause depression. So if you find out what's wrong and get to feeling better you may not even need an anti-depressent.

Also anit-depressents often have a long list of side effects that until you figure out what's wrong & get better could make your symptoms worse. I have noticed doctor's often don't tell you about side effects of medicines they have prescribed.

As far as the bladder trouble, I had "bladder infections" all the time & was starting to worry about why I was getting so many. I felt like I had to go all the time, with little if any results and often felt this really bad feeling that's hard to describe while trying to go or just after. Anyway, finally had a doctor tell me that it wasn't bladder infection. (It's easy to get a false positive without using a cathedar) They called it cystitis. I tried taking AZO for it, which did nothing except dye my urine. Also you shouldn't take it regularly because it can cause bladder problems. But there is a medicine called cystic that worked well for me. it's over the counter. The main thing I did that helped & improved my life was cut ALL fake sugar... aspatame, splenda, all that stuff out of my diet. Apparently I was sensitive and the trouble all started when I was drinking diet mt. dew. I also try not to drink as much caffenine although I do still drink alot of soda. I rarely have any trouble, but if I start to notice anything, I just drink a glass of water and cut back on soda's for the rest of the day & I'm back to normal.

I'm sorry to hear your having so much trouble... I hope you find out what's causing your problems. If I run across anything or think of anything I will post it. Good luck.

 
Old 08-10-2006, 08:02 PM   #3
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Posts: 1,061
Belle2003 HB User
Re: Confusing Symptoms - can anyone solve the puzzle

I only have a suggestion for your IBS. My husband has had IBS all of his life. He suffered for decades before he got a doctor who knew what to do. My husband takes this over the counter stuff called Konsyl. It is like Metamucil but better. He puts it in juice every morning followed by a large glass of water.

At first he was leery because it said it was for constipation and he had stomach aches and diahrea. After two weeks he was like a new man. No more stomach aches, cramping and diarhea. He has been taking it religiously for over 15 years. He swears by it. The doctor also told him that he is lactose intolerant. He now no longer drinks milk or milkshakes, but can tolerate cheese and some ice creams.

So give the Konsyl a try. I am sure that once some of your medical problems subside you will not be as depressed.

So try the Konsyl and the product Fallenleaf suggested.

I hope you start feeling better soon.

 
Old 08-11-2006, 05:48 AM   #4
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Re: Confusing Symptoms - can anyone solve the puzzle

i just had a couple of questions for you.but first just let me say that you could very well have more than just one actual illness/condition going on at the same time so this could explain the wide varitey of your overall symptoms. i was just wondering what actually caused the fractured vertebrae,was it some sort of trauma like an accidnet or did you just take some sort of a fall?did you ever actually hit your head or suffer any other sort of trauma since the trigger that fractured that vertebrae?was there any surgical intervention done at that time or has this been fractured this whole time since you were a child?have you had any actual MRIs done on that area or even way up in the C spine area?or even taken a look in the brain with an MRI?

just what exact level of vertebrae recieved that fracture?the fact that the incontnence thing started after the fracture could indicate some connection between the two,i really do think you need to take a much more thorough lokk into that fractured area,espescially if nohing was ever actually done.if there has not been any recent films done of that area it is always a possibility that this could be causing other issues to develop and possible connection directly to the cord itself.

the 'head" symptoms can be stemming from the brain and or the c spine area of your upper cord as well.anything is actually posible when you get into the spinal cord or just the column surrounding the cord.you could have some affectation of the sympathetic nerveous system just from some outside problem or from even a hit to the sympathetic chain around the same time of that fracture depending on just how the actual fracture is.

i am just thinking here since all of your bloodwork is not actually revealing a whole lot,it wouldn't hurt you to actually obtain a full spinal MRI from the very top down thru the very bottom.this of course would take a good look at the actual fracture site to see if anything has changed there.just some suggestions for you.since the spinal cord itself really governs many body system functions due to the 'tracts" that run thru it and on up to the brain,it woukld be worth the time to really take a good look in there to check for any possible problems.espescially the bowel and incontinence issues.i myself have incontinence problems due solely to my spinal cord injury alone.I also have sympathetic nervous system damage from my spinal damage,when the sns or the para sns is involved it can have a very dirst effect on many seperate body systems including your BPs,mine are alway very very low except when one of my pain syndromes flares up.since the sympathetic chain actually runs down along almost the full length of the(outside area) actual spinal column,and along both sides,it is highly possible that this could have been injured when you suffered that fracture.if you look up the SNS you will see the many many different areas it actually affects,and the para sympathetic as well.just one of may possibilities here that need further eval.

but this really does need some further evaluation and some MRIs done.if nothing else,once these are done it will either rule that entire area out or some areas as possible "suspects".trying to Dx anything is just like playing detective.you go by the signs and symptoms which lead you in specific directions,you check these out and if they don't pan out you move onto the next sign or symtom and possible triggers.it all really sucks most of the time,but unfortunetly this is usually the only way to sometimes find an actual medical problem.i cannot even count the number of times since my spinal cord was injured that we have played detective just trying to find the triggers of my very bizarre medical issues.

hopefully you have some good docs who are willing to take the time to really look into these areas as possibilitys,if not,there are plenty of other docs out there who would love to try and help you.good luck and please keep us posted,K? FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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