It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Open to All Other Health Topics Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 10-14-2006, 08:23 PM   #1
Newbie
(male)
 
Join Date: Oct 2006
Location: San Francisco
Posts: 4
DaveChow415 HB User
Loads of medical history paper/how do others cope

Ok, this problem has been driving me up a wall.
Over the last 12+ months I have accumulated hundreds of pages of valuable information relating to my condition. I end up carrying all this paper from doctors office to doctors office and many times carry a "readers digest" version with me incase of emergency so EMTs will have a clue about my health problems. There's got to be a better way.
I know some have taken to carrying a floppy disc or CD with them but who will look for this during an emergency?
Help, ideas? What do others do?

 
Old 10-14-2006, 08:45 PM   #2
Newbie
(female)
 
Join Date: Oct 2006
Location: Forestville, CA Sonoma
Posts: 4
SylviaR HB User
Talking Re: Loads of medical history paper/how do others cope

My step Mom has medical problems you wouldn't believe; She bought something on line....a Data Tag; it's a user friendly flash drive with easy software and you can carry it on a key chain or something like that. [removed] Hope this helps.

Last edited by mod-anon; 10-14-2006 at 10:21 PM. Reason: Do not post commercial websites. Please read and follow the posting rules.

 
Sponsors Lightbulb
   
Old 10-15-2006, 08:07 PM   #3
Junior Member
(female)
 
Join Date: May 2006
Location: Wv
Posts: 47
mfife31 HB User
Re: Loads of medical history paper/how do others cope

I have the same problem with my sons medical papers which we keep o us all the time.He wears dog tags with medications and condition on them.I found a flash drive that medic alert has but I think I am gonna just get a flash drive to store it all on.I dont know if it would be any easier or not. Mfife31

 
Old 10-15-2006, 08:48 PM   #4
Newbie
(male)
 
Join Date: Oct 2006
Location: San Francisco
Posts: 4
DaveChow415 HB User
Re: Loads of medical history paper/how do others cope

Thanks MFife31, I've had several people tell me about the medic alertdevice, but turns out they want you to subscribe to a service and get on line with the thing and that's not for me.
I looked at the datatag, looks like a dogtag and from what I saw in some EMT product mag there's no subscription real simple and private.
May be a good alternative to just an off the shelf drive, it's got a medical alert logo on it so it stands out.
I'm gonna track down a few options and report back what works best in a few weeks.

Last edited by DaveChow415; 10-16-2006 at 08:19 PM.

 
Old 10-16-2006, 06:00 AM   #5
Senior Veteran
(female)
 
Join Date: Dec 2003
Posts: 10,133
feelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB User
Re: Loads of medical history paper/how do others cope

just let me add,as a former medic(before my life ended due to spinal cord injuries)i saw some really interesting ways that people tried to do just this .some were kind of good,others were simply useless in an emergent situation.

i have TONS of my own medical records just due to my own major medical probelms and my son,who underwent a liver transplant years ago and also has a huge list of other medical maladies,also has a ton of info.

now for him,only because he doe not carry a purse(thank god)we made a laminated copy of his meds and we also made up a quick list of other pertinent info for him to fold up in his wallet,this is just incase something happens when he isn't around home.his medic alert tag simply states'see wallet for medical info" thats it.

now i also,for him and myself,have two expandable folders that i keep the most important info in.the major records are kept in another file cabinet,but quite honestly,in an emergent situation,you don't even need the whole big picture,just the most recent tests,copies of any labs all the conditions you have allergies to any meds a quck list of surgeries.i just keep the really important stuff in the expandable folder and also bring these to all our appts.in the event of an emergency,all i have to do is grab that folder and go.

all the ER docs and medics really need is the basics,and then having that folder availiable to the docs when you get to the hosp.just hand it over to them.

now for myself,just incase i have an emergent situation and i am not at home,i got one of those little "picture books"?you know the ones where you can put pictures in?this one is about 5x5 and fits really nicely into my purse,across the binder area i placed a label that sticks out when you look into my purse that says"EMS info"across that binder.it is easily seen just by opening my purse.now,since i have many different medical problems,i also see five seperate specialists.i obtained a buisiness card from every doc that i have seen or am currently seeing and placed these in the front,and wrote my primarys name and number on the inside cover in very big letters.

i then sat down and went thru all the medical procedures and surgeries and conditions i have been Dxed with,when they were Dxed,my active docs numbers and what i see them for,and any special medic alert,which i wrote'medics,read first' only because of a very excruciating neuro pain syndrome i now have within my L arm where i absolutely cannot have BPs done on or the reaction is over the top,i also told them exactly where they can place an IV,from the L wrist on down into the top of my hand.this leaves the R arm for BPs.luckily my pain syndrome stops slightly above the L wrist or this really could be a major problem.but the medics read that first so they are aware.ialso have a permanently constricted pupil which was caused by sympathetic nervous system damage.this info is really important only because no matter how big or small my R pupil is,that left one is always very constricted.if i didn';t tell them this info,they could assume anything from a stroke to a possible head injury and do a ton of unnessescary testing if i were unconcious.any info like that really needs to be placed on that list of stuff.it saves alot of time and trouble and money for useless tests.

i also,of course have all my meds listed along with the normal dosing instructions the dosing is important mostly from an inpatient standpoint.if you have to be admitted,and are unable to speak for yourself,thay have all of your meds listed along with all of the things they need to know in order to keep you on schedule.without the dosing,they can only guess at frequency.

but just listing all the highlights on one piece of paper,then folding it up and placing into this "book" has all of the really important and critical stuff right there for them to read.i just really wouldn't bother spending any monet on any computer based programs that are availiable out there,mostly since if you are out in the boonies somewhere how are the medics even supposed to access it.i personally would rather always carry my info on me.i never go anywhere without my purse,so this book thing in my purse just made sense.it has plenty of pages for cards from docs,and any other readers digest version of the special instructions they need to know.as a medic,i feel that i have covered my bases pretty well and have included all of the info that i would look for on any given 911 call i used go to.just the facts.i also have all my familys contact info in there too.

the thing is,if you start including too much info,it will take alot of time for them to actually read thru it all,so having everything quickly and legibly listed is soo much easier on the people who are going to be treating you.thats what the expandable folder is for.the medics need the quick facts as well as docs in the ER,but the docs and nurses have a bit more time there to actually go thru the highlights.i have everything compartmentalized by labs,MRIs and other radiologic testing,surgeries(along with the op notes if there was something that happened during that particular surgery or procedure)and a few pages i copied off the internet that explain some of the more obscure and really ***arre conditions i have been Dxed with since docs do NOT know of every possible syndrome and condition.this really IS very helpful for them and at least gives them an idea of what they may be dealing with.but its all there in my folder.i think i have everything i need readily availiable.

between myself and my son,i have learned alot about keeping track of things,mostly the hard way.but having an EMS background was also very very helpful only because i know how the system works and what their needs are and things that are always done on every patient.

sorry this is long winded,but hopefully this will help someone.just having the info there and ready to go in any given situation really really helps the patient and the EMS people who are trying to help you and get you moving as quickly as possible.hopefully you wont need this info too often.take care,FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 10-16-2006, 08:24 PM   #6
Newbie
(female)
 
Join Date: Oct 2006
Location: Forestville, CA Sonoma
Posts: 4
SylviaR HB User
Re: Loads of medical history paper/how do others cope

http://www.healthboards.com/boards/images/editor/menupop.gif

Hi DavidChow415

I've been following your thread. I'm a very organized person but medical record keeping has me stumped. there is just soooomuch information.
I'll check back with you; hope you have a good idea.
Regards, Stumped

 
Old 10-16-2006, 08:24 PM   #7
Newbie
(male)
 
Join Date: Oct 2006
Location: San Francisco
Posts: 4
DaveChow415 HB User
Re: Loads of medical history paper/how do others cope

Thx for the tip.
Ordered a few different software devices online this AM
Yeah, you have a good point about writing down the bullet points of what ails ya but I'll be the first to admit it with my penmanship I should have been an MD. I can just see someone trying to make out what my wallet note says.
I'll post my reviews of the tech toys later on.
Keep the ideas coming folks I think this might be useful for all.

 
Old 10-17-2006, 04:33 AM   #8
Senior Veteran
(female)
 
Join Date: Dec 2003
Posts: 10,133
feelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB Userfeelbad HB User
Re: Loads of medical history paper/how do others cope

Hey Dave i am also lacking in good penmanship,always have been but got worse after losing some of my fine motor functions in my hands from the SCI.just write it all up on your computer then print it off.this way you can always store a copy to make any changes,espescially if you have the same increase in Dx i have been getting slammed with.it doesn't have to be all pretty,just a typed up listing of all of your medical stuff.believe me,they are just looking for the important stuff,not whether it is actually written into some sort of form or special documet.this will also save you tons of money on buying some special programs.this is what i have done.its been constantly updated since this nightmare began for me back in 2003.good luck,FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 10-22-2006, 08:03 PM   #9
Newbie
(female)
 
Join Date: Oct 2006
Location: Forestville, CA Sonoma
Posts: 4
SylviaR HB User
Question Re: Loads of medical history paper/how do others cope

Did you buy that aoftware yet to help keep track of med records?

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Hurray for finasteride (Proscar) - the medical community finally does the right thing IADT3since2000 Cancer: Prostate 13 06-06-2011 06:57 AM
A very long and crazy medical mystery journey. stephers389 Brain Tumors 12 08-14-2009 11:30 PM
Band-Aids/Medical Tape Allergy AlexaIn2006 Allergies 5 06-14-2009 09:08 PM
work history chastidy Disabilities 8 04-27-2009 11:08 AM
Hormone Therapy (Chemical Castration) Side Effects... able5 Cancer: Prostate 9 01-26-2008 07:38 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



Administrator (48), Titchou (43), quincy (33), janewhite1 (32), JJ (28), ladybud (24), Misty800 (17), feelbad (15), ibake&pray (15), shisslak (14)

Site Wide Totals

teteri66 (1164), MSJayhawk (997), Apollo123 (898), Titchou (833), janewhite1 (823), Gabriel (758), ladybud (745), sammy64 (666), midwest1 (665), BlueSkies14 (610)



All times are GMT -7. The time now is 12:57 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!