Re: Strange leg sensations
wow,sounds kind of like me way back when.i have to ask you if YOU saw the actual MRI reports?did you read thru them with the doc?has an actual neuroSURGEON seen her hard films,not just a neurologist?there are alot of things about MRIs that we are never really told about from many different types of(mostly)specialists,who seem to think it is perfectly okay to withold important info only becasue 'they" feel it is not pertinent.believe me,this happens alot more than it should.also,if a particular doc does not have alot of experience in certain areas of expertise,they wont even see a possible problem either.and as for the interpretting radiologist who actually creates that initial report,anything that is actually in any given report is limited to only that particular rads overall knowledge and experience.you see what i mean?no MRI can pick up everything that is actually going on within anyones body,it cannot do that.there can be reasons for your daughters symptoms that just didn't get picked up on the films.no scan is a perfect mirror image of anything,it is not possible.
was there anything at all unusual in her MRI?anything up in that c spine area?if you do not have your own copies of all her testing results from every single test and also all of her medical records from every single doc or therepist that has seen her or layed hands on her,you need to start gathering all this info from the places she has been to and keep all of that stuff in a nice expanding folder that you can take with you to all appts and any possible ER visit that could come up.i had to do this with my son and also myself when things started hitting the fan for me.its just very very handy to have all of her medical records right in hand in any situation,really.
once you obtain all of this info,start going thru things to see what her docs all are thinking and read thru every single test result for any odd things that stick out for you and question them.'something' is causeing these reoccurring symptoms in your child and it needs to be identified and possibly treated if thats the case.i really seriously doubt that this is actual anxiety.honestly,every doc who doesn't have a flippin clue as to what is actually causing someones symptoms seems to like to just dump it into the anxiety catagory,that way they can blow off the patient with a Dx.don't settle for that.if you truely believe that something is wrong with your daughter,keep pushing things til someone finally listens.you know your child better than anyone and if you don't feel things are right,you DO have a right to obtain answers.i had to keep pushing things with my son and myself only to find out what in the hell was going on with both of us at different times for different reasons.do not let any doc ever intimidate you into keeping quiet when you know that your daughter is depending on you to be her voice and get her the help she needs.any actual doc or specialist is only human and they do not know everything.that is where the other opionons come in.no one doc knows everything ya know?i would start obtaining all results and records now.it can all be done over the phone and sent in the mail.i have to keep doing this like every six months or so with the many docs i have to see and my son too.it DOES help,alot.you will be glad you have all this stuff in one place.once you have all of her records and results,let me know what her MRIs actually state about her spine,K?her symptoms DO sound very much neuro related to me(nerve related?)personally,i don't think there realistically is any real limit on age with RLS either(believe me, anything is indeed possible when it comes to the human body).people DO feel symptoms during the day too,they just seem to get worse at night when you lie down and that energy in them is not being dissipated like it is during the day.just an FYI.good luck and please keep me posted,K? **
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.