Re: Systemic Mastocytosis
Hi, everyone. I am new to this and am having difficulty figuring out were to post. My 22 month old daughter was diagnosed with mastocytosis. They are going to test to see if it is systemic. She has already had one episode of at daycare were she couldn't breathe. Here allergies are terrible and her brown pigments are spreading weekly. They were noticed at nine months on her back. They have since spread to her abdomen, shoulders, and now down her arms.
To top it all off I have recently been diagnosed with a genetic disorder, hemochromotosis. My body doesn't excrete any iron. It primarily stays stored in my liver and joints. We have done blood work on her and her levels are suspicious. She is going back to have the genetic coding soon.
I was wondering if anyone had any advice or knew if these two disorders might be related. We were told that she might outgrow the mastocytosis. If not then it might lead to cancers. Any help would be appreciated. Thanks