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Old 04-25-2008, 10:02 PM   #1
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Unhappy No one knows why I'm still in so much pain

I'm hoping maybe someone can help! Back in Aug 07 I had a shoulder injury, went to see an Orthopeadic and he took x-rays and said I was fine and sent me to PT. The pain only got worse, my fingers started to tingle and go numb, my Rt hand was always cold no matter what I did and my shoulder would lock up and wouldn't move for days. Went back to Dr and he ordered an MRI, an EMG, and sent me to a Vascular Dr, all of which came back neg. but I was still in pain. He finally decided to do surgery Jan 08 and put me back in PT. So here we are in April and I'm happy to report that my shoulder feels great, it's everything around it that is killing me. My hand is still going numb and is cold, my Rt shoulder blade feels like someone is continously stabbing me, I have this weird almost numb feeling on the Rt side of my back. I can't sleep, somedays I can't even sit up. My Dr ordered another MRI of my neck and back and another EMG and both neg, he did Trigger Point Inj in my back and that didn't help either. So now he is sending me to a neurologist and mentioned RSV??? I'm getting so frustrated, not to mention sick and tired of my Dr treating me like I am crazy and that the pain is in my head. If anyone has any ideas pls share.

 
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Old 04-26-2008, 06:58 PM   #2
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Re: No one knows why I'm still in so much pain

Stop messing around with your current doctor. Get a second opinion from a doctor who cares.

 
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Old 04-26-2008, 09:44 PM   #3
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Re: No one knows why I'm still in so much pain

I can't, trust me I've tried, it is a Workmans Comp case! They will NOT let me see another DR w/ out losing my benefits. If it wasn't for my Physical Therapist I would't have gotten this far.

 
Old 04-27-2008, 08:21 AM   #4
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Re: No one knows why I'm still in so much pain

just one big question for you here. do you actually have your OWN copies of any and all actual testing results that were done on you? if not,get them,all of them and read thru them yourself or post the summarys in the back or spinal boards. i can tell you just from my own experience and many others that you DO NOT always get told about every single finding on any given rad report. specialists are really bad when it comes to this.

i personally just find it very hard to believe that everysingle test you had actually came up neg for any hard findings. espescially as we age,things just happen in the spinal areas from wear and tear. you just really NEED to gather up ALL of your own sets of medical records from every doc/surgeon that has layed hands on you for this and every single test result,then go thru them and see what they say. honestly,you would be really shocked at just what you actually get told about anything in an MRI report and what is actually listed there as actual hard findings. getting this stuff since this is actually a WC case would be even more crucial.

just exactly WHAT did he do this surgery 'on' and based upon what? there had to have been "something' solid in an MRI for any surgeon to just decide to do an actual surgery? you know what i mean? you REALLY do need to gather this info and just see whats up and what you have not yet been told. in most cases,when the fingers are involved,it usually stems from the actual c spine area and not the shoulder. found this one out myself when i just went thru rotator cuff repair. its just the way the nerves actually run. you would have had to have suffered a pretty major shoulder type injury to actually have your fingers do what they are doing and it stemming from the actual shoulder area.

what you have described sounds soo much like radiculopathy whcih are symptoms of spinal invlovement to some degree. does the entire hand go numb or is it more so just in certain fingers? this really sounds like low c spine or upper t spine related if this is actually stemming from the spine and not the area of the shoulder. you really need to take a good hard look at tyour own MRIs and see for yourself just what is or isn't there,trust me.

the one thing i was able to do while doing my WC crap becasue of blown ligaments that my first ortho mis dxed as tendons and really screwed me up worse than i was before,was get to see one other doc for that second opinion. i would really check into this. in most states,you ARE allowed to seee at least one other doc for any WC type of injury. i really would check into your rights here. this orhto really does sound kind of stupid? the one thingyou have to remember here is this man actually did surgery on you so him admitting he did anything wrong or screwed up,is not going to be coming out of HIS mouth,ya know? so obtaining your pre op MRI report and the post op ones really ARE crucial here. you just need that info,i cannot express that enough to you. believe me, i have had actual dx withheld from me because it took place(impinged c 7 nerve root) during the hardware placement my neurosurgeon so nicely did for me. his 'nurse' outright lied to me over the phone about this impingment only because her boss did it to me. if i had not actually had my very own copy of my MRI report siting right in front of me when she called to tell me everything was just "fine" and they could not find a reason on the MRI for my neck locking up and the very severe pain and numbness i was having,well i would have actually believed her and wondered why i was still living in hell when everything was just fine and dandy. "MY" report stated that i had an impinged c 7 nerve root right on the bottom of the first page. you could have heard a pin drop when i hit her with that one. she never expected a patient to actually obtain their own copy of an MRI report. but that one thing saved my butt and boy was she ******,lol.

you just really need to obtain everything. ask your WC case worker aboutthat second opinion. i cannot imagine given your current situation that they wouldn't allow at least one other ortho to look at you. they usually are not THAT over the top ya know? you DO have certain rights to appropriate care while doing the WC thing. i would check really hard into this and get every piece of paper from every visit and every single test result. i can almost guarentee you,something is in there that you were just not ever told about. your symptoms would say otherwise than negative ya know?

just so you know,the only thing an EMG is really good for is showing actual nerve flow impairment not the millions of other things that can also create your types of symptoms.i had some pretty severe c 6-7 symptoms with intermittant numbness back in 01? and my EMGs all came out just great,despite the mess that was in my c spine. just start gathering up your own info on yourself and read thru things yourself. this will give you a much better idea of whats going on,really going on. let me know what you find? good luck, FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 04-28-2008, 01:34 AM   #5
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Re: No one knows why I'm still in so much pain

Wow, thank you so much for all of your advice. I will start collecting those MRI's. All I have is the actual written report. All he told me about my surgery was my ligaments at 4, 6, and 7 were laxed so he went in and "tighten" everything up. They did send me to get a 2nd opinion right before surgery. It's a little amusing because they sent me to the Orth I had been tryin to see for almost 3 months since I was so unhappy w/ the one I'm seeing. I was only there for like 10 mins and he said he recommended surgery, end of story. This whole thing is very weird because I ended up going to the ER twice since the accident, I was in so much pain I just couldn't stand it anymore, not to mention my hand was purple and ice cold . Both times they would do nothing for me, told me I would have to wait and see my Dr in the morning. I have contacted an attorney and he said I have no case because there's no proof of wrong doing. How do I get medical proof if they won't let me see anyone else? It's my whole hand that goes numb and I have, what my PT calls zings, that run down my arm to the hand if I move a certain way or if manipulated in certain areas around my shoulder blade and neck. It is so frustrating just wish they would figure it out and fix it. Last Tues the weirdest thing happened, I had been really sore from PT but was determined to push through it. Well, I got home and sat on the sofa for about an hour and my daughter started calling me, I went to get up and fell straight to the floor, had no feeling in the right side of my back. But yet was in so much pain everywhere. I called the emergency Dr on call and he said to come to the ER immediately. I couldn't since I was home alone w/ my 3 yr old and there was no way I could drive. I went back to my Orth. the next day and he told me that it just didn't make sense. I showed him where the pain was and he said that there was nothing behind my shoulder blade but muscle and set me on my way. Spoke w/ my therapist about it and he is doing some research for me. I'm so glad that I have at least one person on my side. He pretty much stays on my Dr. So anyway there it is in nut-shell. I Thank you again for all of the helpful advice, I'll keep you posted

Last edited by quiz12; 04-28-2008 at 12:07 PM.

 
Old 05-08-2008, 04:11 PM   #6
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Re: No one knows why I'm still in so much pain

Quote:
Originally Posted by quiz12 View Post
I'm hoping maybe someone can help! Back in Aug 07 I had a shoulder injury, went to see an Orthopeadic and he took x-rays and said I was fine and sent me to PT. The pain only got worse, my fingers started to tingle and go numb, my Rt hand was always cold no matter what I did and my shoulder would lock up and wouldn't move for days. Went back to Dr and he ordered an MRI, an EMG, and sent me to a Vascular Dr, all of which came back neg. but I was still in pain. He finally decided to do surgery Jan 08 and put me back in PT. So here we are in April and I'm happy to report that my shoulder feels great, it's everything around it that is killing me. My hand is still going numb and is cold, my Rt shoulder blade feels like someone is continously stabbing me, I have this weird almost numb feeling on the Rt side of my back. I can't sleep, somedays I can't even sit up. My Dr ordered another MRI of my neck and back and another EMG and both neg, he did Trigger Point Inj in my back and that didn't help either. So now he is sending me to a neurologist and mentioned RSV??? I'm getting so frustrated, not to mention sick and tired of my Dr treating me like I am crazy and that the pain is in my head. If anyone has any ideas pls share.

Hello, I have almost all the same problems as you do. What kind of accident did you have when you injured your shoulder? I had an auto accident in 2001 and have had major problems ever since. I did not hit my head, but I do have a brain injury due to the fact that my brain was knocked around inside of my skull. I now have a frontal lobe injury. I also have bulging disks at C6-7,
C4-5, C7-T1. Did they do an MRI of just your neck or of your whole spine? If you let me know what kind of accident you had and more details of your MRI I might be able to help you with informatin I have learned along my journey. I have constant muscle spasms in my neck. It started slowly, but my right hand has tingling and goes numb. It is extremely painful. There is some swelling, but if feels a lot more swollen than it really is. Give me a little more information and I'll tell you what I've learned. Also, do all of your fingers go numb or just certain ones? That can make a big difference.
Take care,
Sheri

 
Old 05-09-2008, 07:02 AM   #7
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Re: No one knows why I'm still in so much pain

hey quiz, what you experienced really does sound spinal related. there is something called radiated pain which can also "radiate" symptoms like numbness in areas like your shoulder blade? what a stupid doc,honeslty,does this doc not know just how the nerves run back there? your c and upper T spine areas really could be the culprit here in some form. this just really doesn't 'sound' like plain old shoulder issues to me. i have had a nightmare of issues just stemming from a deteriorating c spine itself. believe me,anything is possible. you just really need to know what IS triggering the symptoms for certain so some level of intervention can be done on you. pretty straight forward type stuff,except of course when you are stuck in WC hell. i really do feel for ya. just find out all of your rights and start demanding someone get to the source of your issues. the squeaky wheel gets the grease kind of thing? sometimes you just HAVE TO take matters into your own hands just to get your needs met in the medical world. believe me i have been down this road with my sons medical issues and my own.

you just deserve an actual Dx of your ongoing symptoms. hang in there and start demanding someone help you with this,afterall,that IS their job. good luck hon,please keep us posted, FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-11-2008, 12:07 AM   #8
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Re: No one knows why I'm still in so much pain

Sheri,
So sorry to hear that you have been going through this since 01, I know how frustrating it must be. I got injured while holding a horse for one of my Drs at work. The horse spooked and lounged forward trying to go through the stall door, where the Dr was, I immediately jerked on the lead shank and stopped him in mid-air, the bad part was that my shoulder kept going.
When my Orthopaedic finally decided to do surgery, he said that I had minor fraying to the infraspinatus tendon, mild abrasion on the CA ligament, and multidirectional instability. Since the surgery I have not had much pain in the actual shoulder area, but that's when the major pain started in my shoulder blade and back areas. The numbness in the hand has continued since day 1. All of my hand goes numb and is cold. I will say occassionally it feels like it's on fire and does feel swollen. My latest MRI was done on my Thoracic and Cervical spine which showed mild disc bulges at T6-7, T8-9, T9-10, and T10-11. I also have mild lordosis at C4. The notes also stated that I have numerous endplate schmorl nodes throughout the Thoracic vertebral bodies.????? What ever that all means, my Dr didn't seem to worried.
As of right now, I have had 4 therapists try to manipulate my spine and have gotten nowhere. The last one said that in her 12 years of practicing she has never felt someone as locked up as I am. I have so many knots in my neck and along the right side of my back right now that it kills me just to lay down. I basically live on my left side these days. I don't know what else to do at this point. I do have the appt with the Neurologist but it's not til mid June.

Last edited by quiz12; 05-11-2008 at 12:09 AM.

 
Old 05-11-2008, 06:09 AM   #9
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Re: No one knows why I'm still in so much pain

well i guess there actually WAS something in that MRI afterall? honestly,you DO need to see everything that has been tested and looked into. how bad are the schmorls nodes? i would advise you to do some research on your confirmed findings. schmorls nodes can be congenital(meaning they have been there since birth),or thay can appear over time. the thing about these is they ARE a form of really wierd kinds of herniataions,but instead of going out sideways they go up into/out of the vertebrae if i remember right(i would have to double check this)? a bit stranger than the 'standard" herniations. it really sounds like you DO have some hard findings there despite what you were told at one time?

what kind of concerns me here is what your hand is actually doing right now,with it always being cold and turning blue? this could be for a few different reasons,this is one thing you need to find the source of. it could be a vascular issue or something triggered by very specfic types of damage to your sympathetic nervous system. there are certain types of issues that can stem from having any surgery,but up in the area you had one,the risk of damageing other areas that could trigger something like RSD is just there.

something very obviously was going on during that episode when you were alone with your daughter that day. its too bad you couldn;t get to the ER thatday,whatever casued that episode may have been much more apparent that day andeasier to hit on than when it is not actually happening,you know what i mean? when you obtainall testing,really look for anything that could possibly be affecting either your actual cord or something that could be intermittantly impinging upon a nerve. that 'could' explain that episode.

but no matter what,you DO need to be properly Dxed here with whatever is causing the ongoing symptoms. WC owes you that much anyways. being that your shoulder did suffer some form of injury,it wouldn;t be beyond the relm of possibility(given just how this occured in the first place) that your c or t spine could have been affected too,ya know?

you just really need to start going thru reports and also obtain all medical records from this injury,including ALL hospital medical records,just get anything that is in your "central medical file" at the hosp where you had surgery and also obtain anything from an ER visits too. the hosp records should also obtain your surgeons "op notes' this is a transcript of your actual surgery. every surgeon HAS TO make these notes after every single surgey they do,its the law. you just really NEED as much of your own medical info as possible right now just to get a clearer pic of whats going on. seeing an actual neurosurgeon vs just a neurologist would be a much better type of doc to actually see for a consult/eval actually. they just see more and do more onthe 'inside' of the patient and just naturally have much better understandings of certain neuro issues that a neurologist just doesn't even get the opportunity to have. it just comes from experience and hands on knowledge. just having had to deal with both types of specialists myself over the years,the neurologists,even the really good ones,don;t appear to even compare to what you can find out from an actual NS. just an FYI for ya.

just start gathering the info you need to help put this little puzzle of yours together a bit better for you. you DO have a right to your own medical info.please let me know just how things are going for you. FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-12-2008, 01:02 AM   #10
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Re: No one knows why I'm still in so much pain

WOW! Thank you for all the info!! I am actually working on getting all of my medical records together. I just don't understand why my Dr continues to tell me that there is nothing wrong with me. You mentioned "vascular", I did go and he ran some test on my right arm and said there was a slight difference in blood flow. When I went back to my Dr he said everything was normal. I swear this is getting more and more frustrating as the days go by.

I had a great day on Sat and then today the right side of my back feels like someone has taken a sledge hammer to it. I'm trying to push through it but it just continues to hurt more and more. I can't get comfortable no matter what I do. Is it normal for the pain and stiffness to spread? When this started it was just in the shoulder blade area and my neck, now it's all the way to my lower back. I am getting a TENS unit tomorrow to take home from my PT, I guess they're hoping that that will help loosen things up. I'll try anything at this point.

I've been doing some research on RSD since my Dr brought it up and honestly it scares me, especially if it could've been prevented. I don't want to feel this way for the rest of my life. I've already missed so much where my 3 yr old daughter is concerned. It's just not fair to her, she asks me all the time Mommy pls play with me. It's heart wrenching.
I cannot tell you how much I appreciate all of the advice. I am so glad that I came across this web-site it has been so helpful. I was shocked to read about how ppl are out there constantly in pain and their Drs not doing anything about it. It's ridiculous. I'm not giving up until somebody figures out whats going on.

 
Old 05-12-2008, 06:46 AM   #11
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Re: No one knows why I'm still in so much pain

tho the TENS wont actually "loosen up' the area it can make the pain more tolerable. i have RSD in my right knee on down thru the foot and the TENS is actually the only thing that can calm down my pain flares. its a matter of 'meeting the intensity" of the pain signal with the current then trying to override it just a bit that really is the key to getting the best out of your TENS. just make certain they actually show you the very best places to place those electrodes. that really is crucial. having the current/signals running thru the pain area really helps in the best way. make sure they show you this.

one big thing goes on when you have any actual inflammation of or irritation of the nerves,espescially where you have this? you get trigger points of wadded up muscle and tissue from just haveing what you have. i have been dealing with these little sobs for four years now,very heavily. it wasn't til i actually started myofascial release therpy last year that i really was able to really feel a big difference in the pain and just that horrid tightness that comes along with this too. it really would be a good therepy for you to try. i am willing to bet,given whats been going on,that you probably have quite a few wads of muscle/tissue up there. these DO cause radiated pain,sometimes pretty widespread too.

just so you know,there is one diagnostic type of test that you can have done to try and determine whether or not at least some of what you are feeling is being sympathetically generated,meaning it could be RSD or some other form of SNS generated type pain. its called a stellate ganglion block. they block this and see whether or not your pain actually changes at all in any way or stays the same. its about the only real Dx type of test they can use that would at least show whats generating this pain and the ongoing symptoms for you. i would speak to your doc or at least your PT person just to see if they can refer you to a pain clinic(just a referral for the injection) or some other place where the anesthesiologist can just try this for you.

that test would just rule it in or out as a contributor to your pain process. you just need some help here in order to narrow down the area where the pain is actually stemming from. the coldness and color change to the skin are just some indicators of possible SNS damage or involvement. this condition is just a risk anytime you have certain types of surgerys or injuries. some people have actually gotten RSD from haveing a simple blood draw where the wrong place was hit during it. its a very insane little condition. i would just really start doing some advocating for yourself here and demanding some tests be run. in the world of surgerys and pain,you can sometimes fall between the cracks unless you really DO just stand up for the rights you DO have,ya know? i wish you luck with this. take alot of time working with that TENS before you may decide it just doesn;t work for you. its all in the trode placement. let me know how things go. FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-12-2008, 02:19 PM   #12
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Re: No one knows why I'm still in so much pain

I swear you have given me more information in the past few days then the Drs have in 8 months. I am writing everything down and going to talk to my PT about all of it. What exactly is SNS? I don't think anyone had mentioned that or maybe they have I just don't remember. Should they have done bloodwork on me? I never thought about it until I started reading up on all of this, it seems like that's the first thing that is done. I actually got to speak with my primary PT today (he has been out for 2 weeks now, just had major brain surgery last Mon, he's amazing) I told him about the lastest issues so he put me through some exercises. He says my posture is much better but the range of motion through my neck has gotten worse. Plus he found 12 muscle knots along my spine and neck. He is not happy that I have to wait so long to see the neuro, which by the way is also supposed to be a pain management Dr. Luckily, I had another episode with everything going numb today while I was there. I was doing some shoulder strengthening exercises and all of a sudden I felt nothing except for shooting pains from my forearm to my hand. They started manipulating my scapula and I felt nothing. Very strange, supposed to look into it for me. It seems like it's something different everyday. Thanks again

I got the a NMS device today is that the same as the TENS unit? (I swear I know nothing about all of this stuff) They gave me 4 patches and told me to place them around my scapula.

 
Old 05-13-2008, 07:02 AM   #13
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Re: No one knows why I'm still in so much pain

if that is where your pain actually is then that is where you should place the trodes. but do it so the wires to them are kind of criss crossed for better current flow THRU the affected area. this is what i do with my knee. if you have the same type of machine. if it has four leads you should be able to do this. they should have showed you how to do this in the best possibble ways for your pain process. thats kind of their job ya know? if you get stuck or confused,just call them and ask the EXACTLY how they want you to place the trodes and the wires to them. but criss crossing really does work best.

your SNS is your sympathetic nervous system. this has to be somehow affected in order for RSD to actually trigger itself. that one test i told you about? they simply bock all signals coming from the SNS to see whether or not your pain either gets affected (better) or actually goes away. if that one thing happens after the block,well its pretty certain that you would have some level of the SNS actually triggering your pain process. it would just either kind of rule in or out the SNS being damaged and being part of the pain problem. that is how you get to the source,by testing and ruling things in or out.

those knots he said you have are most likely those trigger point wads of muscle and tissue i told you about in the other post? they just appear when there is some level of inflammation to those nerves back there or up there. i have these everywhere up from the base of my skull,down one side of my c spine,over my upper back and under my shoulder blade. i get a wonderful therepy called myofascial release. this is the only therepy that has worked in over about ten years or so when i first just had two of them under my right shoulder blade. this therpy is something that could also probably help you. your PT people should be able to actually explain just what this is and why you should have it. not all therepists really know how to do this,so you kind of have to ask them where a good place would be to get referred to. this was by far one of the best moves i made for my pain processes. those little wads of tissue just can radiate out sooo much pain. this is a really big issue for meright now too. i just had a rotator cuff repair done on my shoulder and the sling was just a torture device and actually created even more trigger points and just alot of tightness up in my already bad areas. i have a wonderful threpist who has been doing my myofascial and my post op PT all in one. i was just hoping i could get back to this same PT for my post op since i was already getting the myo from him prior to the surgery. its just something i really think could help you too.


just so you know,while doing bloodwork can find certain aspects of autoimmune and arthritic types of conditions,it wouldn't show anything if this was indeed sympathetically generated type of pain. this comes from actual affectation of or damage to the sympathetic nervous system tiself,so it wouldn't show up in blood work. this gets Dxed more by symptomology than anything else.

it may help a bit to really understand just what the SNS governs and how it works by just doing a bit of research on it. i found alot of things that this system gobverns that was also being affected when i looked into it. but i was already 99.9% certain i did have SNS damage,by other symptoms that popped in shortly after my spinal cord surgery was done and i was in rehab after losing my ability to even hold my own weight(at that time 98 lbs)or even begin to try and walk with the left leg. and my left hand lost alot of the fine motor muslces(hence the great typing skills here.lol). we had alot of work to do just to even walk out of the front doors i had gotten wheeled into only weeks before. rehab really got me literally back on my feet again. wasn't too sure wherther that was going to even happen for a while there.

the one nice thing about these boards is you can learn from others experiences without having to go thru some of the hell that others have before you,ya know? i have learned alot here and have also been able to help alot of other people too. it does help me to be able to at least help others to navigate thru the medical world ya know? when you have ,espescially a awful pain issue and know one is listening to you,sometimes you just have to scream above the crowd to get your needs met. thats the one big thing i have learned in dealing with first my sons major medical problems then mine,which popped in out of nowhere one day while i just had a simple MRI done on my c spine to find the disc i knew i had herniated. something showed up in my spinal cord that just was not supposd to be there. its been pretty hellish here ever since.

hopefully they can figure out just where this is all stemming from and be able to actually help you or fix it for you. just take the time to really educate yourself on what you thinkis wrong, be persistant and don;t give up or let them beat you down. eventually someone will hit on the right thing. if you need me, i am floating around somewhere here. good luck, FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 05-21-2008, 11:11 PM   #14
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Join Date: Apr 2008
Location: Richmond, VA, USA
Posts: 52
quiz12 HB User
Re: No one knows why I'm still in so much pain

Well, I went back to my Ortho today and I have never been more mad then I was when I walked out of that office. He looks at my PT notes and says looks like things are pretty much the same and wondered if my PT wanted to continue with my therapy or not. When the letter clearly states that we have had to completely back off of everything and just do tissue massage until I can tolerate more. He was ready to call it quits on the therapy and send me out the door for yet another month.

I then tried to explain to him some of the new symptoms I have been having lately and he seriously says to me "That from Ortho stand point he is really stumped and does not know what is going on with me". Are you kidding? I just sat there in awh. The only thing I got out of him was to send me back to the Vascular Dr. Why won't he help me figure out what is wrong with me? He just keeps ordering the same tests over and over. I just don't get it.

I was able to get 1 of my MRI's today, not that I can read any of it though, I have to go pick up the other 2 tomorrow. So I guess thats a start. I think I am going to try and apply for an appeal tomorrow and see where that gets me. I honestly don't know if I can stand another month of this. The pain is just getting worse and worse. My legs now ache, my feet are always freezing, my skin is covered with large red and purple circles. This has got to STOP and SOON!!

 
Old 05-22-2008, 07:02 AM   #15
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Re: No one knows why I'm still in so much pain

Honestly? get yourself to be referred to a good pain management doc at least for that stellate block i told you about? it really does need to be done at this point just to either rule out or in the sympathetic aspect of this. the blotches you are having are also part of possible RSD too. i have had these as well on my knee at one time. they were really odd almost powdery blueish types of round dots(tho you can have all kinds of actual skin blotches or strange looking skin crap). very insane looking. they were not bruises,just blueish dots,perfectly round and when they finally started to fade away,they didn;t fade like a bruise either,they turned kind of a reddish or pinkish color then were gone. really crazy. do some research on RSD and really see how your symptoms compare to it. it would give you a clue here.

i really think one of two things is actually going on with your ortho. either he is just totally a clueless idiot when it comes to possible post op damage and what it can really cause,or he does not want to actually take responsibility in this situation. he just cannot be that stupid when it comes to possible SNS damage and the possibility of RSD or some other actual sympathetically generated pain process going on. if he has been around a while,he would just HAVE to know what IS a sympathetically generated pain process. for the very first time,since having two knee surgeries and the rotator cuff just recently,the info i got sent out before my rotator surgery actually listed,like i said,this never was sent before or recognized as a possibility with ortho surgery, info on the possibility of actually getting RSD post op. really suprised me that they actually addressed it. your ortho just HAS to know about this condition.

you mentioned in one of your posts that someone had actually brought up the possibility of this being RSD,who said that to you? i just cannot stress enough at this point how much you really do need to rule this in or out with that stellate block. going,or getting just a referal from any doc to a good pain management facility with an anesthesiologist really should be your most important thing right now,really. what you have described to me here just really does sound like it is sympathetically generated. your symptoms are pretty dead on target for at least involvement of some level. this WOULD explain alot. just try as hard as you can to obtain that referral from any of your docs at this point,its just that crucial to know.

just an FYI for ya. there IS a really good RSD board on this site just a scroll on down from here. i would go down there and post some questions to these people who also have this condition. or simply read thru some of the threads. the folks there are really knowledgable about symptoms. this would give you alot more info on your particular process going on. this just needs to be ruled out or in as a contributor to your overall issues you have there. you DO need to know so it can be treated early as possible for best possible chance at maybe even getting it to remit to a certain degree. its just the earlier this gets Dxed the better chance at the outcome for treating it and keeping under control. you just have SO many of the symptoms there.

just speak with whoever you have to with regards to the WC people and get this done at the earliest possible timeframe. i really think you need to seek out another opinion on this,your ortho is a real piece of work. it sounds alot like he is just trying to get rid of you at this point. you deserve better treatment than this from a surgeon. but that stellate block really really needs to be done soon hon. i do wish you luck with this. please keep me posted as to how things are going. FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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