Re: Sudden surges in blood pressure
just what did your results on all these tests come up with,anything at all? and do YOU have copies of ALL testing results and all the medical records from every doc who has ever laid hands on you? if not,get all of this stuff and keep it all for your own records. a lso go thru every single report to see for certain that 'nothing' actually showed up. you would be shocked and amazed at just how much and how often,mostly specialists will not reveal everything that is actually found on our own test results. this happens alot(way too often actually). getting all this stuff and just double checking everything and also asking questions about certain findings may reveal something that could have easily been missed.
you just have to be your own advocate when you have a condition that no one seems to know or understand. i have had to do my own research many times during the past years here just trying to explain the insane things my body started doing after spinal cord injury caused by a surgery done inside my cord. an actual TIA will generally show damage within the brain. if you actually had one,the evidence should actually be there. there would be evidence of an old bleed still visable,along with the damaged vessel. i know you can still see the TIA and stroke damage within my moms brain that occured like over five years ago.
do they at least have you on some type of med to try and keep your BPs from getting too high? one big thing that could be triggering these episodes is some level of sympathetic nervous system damage or para sympathetic. the SNS can be affetred at many different places within our bodies. this is where my BP and other insane symptoms are stemming from too. the kidneys also play a part in maintaining normal BPs as well,have they looked at those at all? the release of renin from the adrenals that sit on top of the kidneys are what interacts within the kidneys to trigger sudden ups and downs of our BPs. i would do just a bit of research on the kidneys and how they create our BPs just so you have a basic working knowledge to understand the process. you simply need to check out anything and everything that can affect our BPs so they can be checked,evaluated and either ruled in or out as a possible contributor. this is how any real Dx gets made actually,test and rule out til you hit on the answers.
but i would most defitiely start gathering up ALL medical records from every single doc you have seen and get every single testing result. you just need this stuff for your own records. if you should ever have to go to an ER,you just bring this stuff with you in some type of expandable folder(which you also can bring to like every furture doc appt too so you have everything) and the docs will have that baseline to work from. believe me,it saves you having to answer a ton of questions and gets things moving alot faster for you. you DO deserve some answers here. if there isnot actual evidence of any real bleeds within your brain,i seriously doubt that thisis what you actually had. i think the docs are just looking for an easy out since this is so complicated(or just over their heads??). force your docs to simply do their job for you.
the fact is,"something' is indeed casuing these episodes and it needs to be found out. this is what the docs job is all about ya know? push them and advocate for yourself or you wont get anywhere. been there done that one to death with my sons medical problems and mine too. just do some basic research on everything and anything that can affect BPs,then ask your docs about it,if for no other reason than to find out if it has been at least considered or ruled out yet. hopefully they can figure this out for you soon. please keep me posted,K? good luck, **
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.