I have been ill for almost a year. I feel like I am suffering a slow death. Every day gets harder for me to get through. I am a 48 year old female who was is fairly good condition last year. Some have said I looked 10 years younger for my age. Well now I look 10 years older then my age!
I started feeling ill last Sept. One day I woke up and my legs were heavy. It felt like I was treading water when I walked. This lasted for 4 weeks. One day it just went away! I went primary care doctor who said I was just tired. I finally got a referal to see a neurologist.
This doctor sent me for an MRI of the brain and gave me a spinal tap to check for MS and Transverse Myalgia. There was a leion onthe pontine part of the brain but was nothing that would cause this problem with the legs. So....life went on. One day at work I felt like I was going to pass out for no reason. I could not walk and there was pressure in the head. I went to ER at the local hospital. Was checked out and told it must have been an inner ear problem. Put on antibiotics and life went on!
About 3 weeks went by....it happened again at work. This time I could not talk either! My co worker said my face changed. They thought Iwas having a stroke. I went to the Hospital again. This time the neurologist kept me there and ran more tests. I was in bed for 2 weeks. The doctors could not figure out what was going on. I was having episodes of unsteady gait,slurred speach, weird facial sensations,pressure in head,muscle twitches in body, zoning out like non responsive to anyone.
The doctor put me in an ambulance and sent me to another hospital that had a better MRI machine. I had a team of doctors poke and scan me for 24 hours and then sent me home even though I could not walk by myself! They said Iwas suffering from a brainstem migrane headache syndrome. They put me on Topamax. Weeks went by with no inprovement. One day I freaked out because my face started to go numb. First on one side then the other. It was scary! I called the doctor and he told me to stop the Topamax. I stopped the medicine and it kept happening. The Topamax was not causing this to happen. Life started to become crazy. I could not drive or work anymore. Someone had to be with me all the time.I got very depressed and cried most of the time. All they want to do is pop anti depressents in me now.
Several visits to the doctors office with no luck for an answer. More MRI tests and CTscans. Istarted having this odd sensation that I was weighted to the bed in the moring. My body felt really heavy. It was hard to walk around my house or go up and down the stairs. I felt like everything was shutting down inside. My hands and arms were going tingling and then numb.The pressure in my head was so intense it felt like I was going to pass out. This went on for months! I was walking in A Walmart store when I got hit with another episode. I barely made it to the service counter. The lady called 911 and the ambulance came to get me. I went back to the local hospital were the doctor signed me in again.
More MRI and now a MRA test a long with urine and other blood tests. Another 2 weeks in the hospital. I cried and cried.....they gave me Atavan to calm me down. I felt like I was going to go insane if I did not get answers to my health problems. The only thing good that happened is that I quit smoking the last time I was in the hospital and have not gone back to it. I was getting worse and worse without anyone knowing the answers. The doctor decides to sendme to another hospital in an ambulance. I ended up going to New York City. I was shipped to Mt. Sinai Hospital for 6 days. I got there on a Friday night. NO TESTS DONE ON THE WEEKEND.....Don't ever ger sick on the weekend! Monday came along with a team of VERY young Interns that asked a lot of questions. There was no other testing done other then blood work and urine tests. They said m insurance would not pay for anymore testing after the first 72 hours. They wanted to send me home on Tues. morning. I was 200 miles from home without knowing a soul and $20 in my pocket. I sarted to cry like crazy......AS BAD AS I FELT I GOT EVEN MORE UPSET. The doctor came in and gave me an attitude. She must be pre menapausal because of her crazy symptoms and the crying. WELL IF YOU HAD BEEN POKED AND SCANED AND NOT DIAGNOSED FOR ALMOST A YEAR AND STILL FELT SOOOOO SICK.....you'd cry too!
I was sent home and saw my doctor again for a follow up. He can't believe they didn't domore tests in N.Y. but now he wants to see if he can get me to The Leahy Clinic in MA.
I have been home for almost 2 weeks now since I saw him . Every day becomes a harder day for me to get through. I wake up sick to my stomach with a horrible paste taste in my mouth....My face and skin feelis like I have lost sensation in them. Almost like a wax feeling on my body. I can't lift my head up for any great period of time without feeling like I'm going to passout. I can't ride in a car beause the movements make me sick. My left hand shakes with a palsy like tremor, I am totaly depressed over the situation. I call the docs office and leave messages of how bad I feel. He orders me a med for the nausa but in the mean time what about ME? The Clinic in MA doesn't except my insurance.... I felt ok enough to write this today in hopes that someone out there might be able to give me information that would help.
I thought of what I had done in my life last year that could have changed my health like a creeping huricane that jusy keeps getting worse as it rolls. The only thing I did was see the dentist last year and move into a new house. The dentist drilled out some old Amalgam silver fillings that were broken and replaced them with with composite fillings. I looked back and discovered that I got ill a few days after each dental appointment. I started reading up on a online website and thought I was mercury posioned. Doctors don't believe in this stuff....they refuse to even talk about it. But n the mean time I need to get better. My family is sick of me being sick and so am I ....No one knows how bad I feel inside other then me. I guess you never know how bad it can be till it happens to you. I can kinda understand how the cancer patients must feel each day after a treatment., or perhaps hw the elderly just try to get by each day with their health problems. I feel like that inside and it is not nice at all!!!!!
I don't think my house is making me ill because I have been in the hospital for long periods of time and still was sick in there.
IF THERE IS ANY ONE OUT THERE WHO CAN HELP......PLEASE DO. I am at the end of my rope with this......I want my life back! I need to go back to work to support my family and pay my bills so I don't loose my new house.