Originally Posted by robine27
Since February I have had an MRI of the liver. There is no iron build up in the liver. I saw a gastroenterologist. He agreed that with one gene I am a carrier of hemachromatosis.He asked me to drop my vitamin C dose as vitamin C increases iron absorption. So dose was dropped to 1000mg or less daily. I had been on about 2000mg daily due to having surgery last year and taking hydrocortisone and fludrocortisone for addison's disease which interferes with healing a bit. I dropped the dose a few months ago. Then labs were repeated a few days ago and are worse now than the last time.
I just got the abnormal results today. Don't have the full report but labs are as follows.
FE (Iron) High 156 -was 155 last time (range 35-150)
UIBC low 43-was 48 last time (range 126-382)
TIBC low 201-was 202 last time (range 250-450)
Transferrin high 79-was 77 last time (range 15-60)
Platelets low 147 but good for me. I am usually 125 or so.
I will probably have the full lab report within a week. I will post anything else of interest at that time like Hct, Hgb. Not sure what my hematologist will recommend this time. Should hear from primary, hematologist or endocrinologist within a week or so.
I received the report of the rest of my labs.
Hematocrit 41 (range 36 to 46)
Hemoglobin 14.0 (range 12.0 to 16.0)
RBC 4.29 (range 4.20 to 5.40)
Ferritin 53 (range 5 to 204)
Since everything except those labs noted in the quote above are normal, it is a wait and watch and check labs again on October 1st. My labs that were abnormal may be a bit higher due to nice weather and grilling a fillet mignon every week-end (tender and easier for my celiac GI system to digest) Also that my gut has finally healed and I am absorbing food and nutrients better than I ever have in the past. I don't eat much meat at all in the cold weather months. All my other labs that were off are now in the normal range as well- high cholesterol, low Vitamin D, high PTH, low magnesium, low potassium-all okay. So all the vitamins and supplements have worked very well. Amazing that cholesterol has improved even after 6 weeks of eating steak for two meals a week!
I also think that when many of my labs were off, things were not working right in my system throwing other things off. Now that my GI system has healed with the celiac meal plan and digestion is better, everything else is beginning to work the way it is supposed to work. It has taken 5 years to get to this point! Time to be grateful and happy.