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Support Groups for PM?


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Old 12-12-2009, 07:54 AM   #1
velen
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Support Groups for PM?

This site seems great for support for those of us in CP. I would like to know if there is such a thing like support groups for CP sufferers, in general.
If so, how do i find them? It feel it could be helpful to me for the emotional toll that being in CP does to myself and my family. Any insight is greatly appreciated.

 
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Old 12-12-2009, 09:21 AM   #2
feelbad
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Re: Support Groups for PM?

sorry you live in this hell too hon. are you currently actually IN a PM clinic situation? if so, i would just ask your NP or the actual PM doc about ANY possible support groups that may even be offered at your own PM clinic but you just have not yet heard about them? alot of PM clinics just DO have some type of resources, if not a group situation and actual pain physc type doc who you can just vent to and talk with who really understands what we suffer. you could also maybe check with any local hospitals too? i know i get stuff from the local hosps here where i have had surgeries at that do tell about various types of support groups too? just some suggestions for ya.

we really DO have a great pain managment support forum here on these boards way down below here in the 'P" section. very caring and supportive and knowledgable bunch of people who suffer just like us. just what are your pain issues generating from? **
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 12-13-2009, 04:23 AM   #3
velen
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Re: Support Groups for PM?

Thanks for info. I had a failed fusion, T4-T11 1990, refusion of same 1993, removal of hardware 1995 (they thought that could be some of my pain issues), finally the lovely severe spinal stenosis (lumbar region). I think i was in a fog when i was told how severe it was. So i tried ESI x1 so far. No results. All the pain clinics i have been to through the years and no real relief. Recently, after suffering with the spinal stenosis almost a year, along with my normal problems, i couldn't take it any longer. Living the way i did over the decades was not living; it was existing. My PCP said lets try the Fentanyl patch. Been almost 2 months now on patch and i have decreased my percocets and vicodins alot. Just use for BT pain and nowhere near the amount i used to use. I know, as my doc told me, that i will become tolerant of the patch as i have with the oral meds. Those of us in CP can only live day to day.
I guess i got off topic. Back to support groups. I only really vent to my husband and my PCP. I feel bad for my husband because i think i sometimes I overload him. That was why i was thinking a "live" support group might help and take some of the burden off of him.
Thanks for any insight and for just listening.

 
Old 12-13-2009, 09:22 AM   #4
feelbad
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Re: Support Groups for PM?

no problem hon and believe me, everyone who posts on that pain management forum is mostly in the very same situation as you are. i know i am and it does suck, wayyy too much(NO ONE truely understands what we live in or deal with unless they also live there). the group we have here is really supportive and caring and they DO just deal with the same things you and i do. i do hope you will pop in there to see for yourself? sorry for all you have had to go thru hon. marcia
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
Old 12-15-2009, 06:01 AM   #5
velen
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Re: Support Groups for PM?

thanks for the info. I will definitely pop in.

 
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