Re: At a loss.
just a couple of things here. and i DO have a liver and kidney disease that requires regular monitoring with labs and ultrasounds, and a son with a liver transplant too(hundreds of labs done on him) so my "labs" knowledge is unfortunetly way too much. just somes stuff on labs and other tests here you really DO need to be aware of? when you had all that blood work done along with all scans or any other testing done along the way, did YOU yourself actually even see the total results as in asking for the actual reports on every single type of testing that was just 'done" on you?? honestly, you really DO need to ALWAYS make certain to obtain your very own copies of every and any types of testing that is ever done on you. some really crucial things are NOT always even told to the patient at all? this just IS the way things are unfortunetly.
seeing your own like lab results even? there just are some very good ways to see if anything and everything truely IS normal as you may have been told they were? when by merely looking at them, you can see certain lab functions that would still be considered "within range of normal" but they can be at the HIGHER end of normal which actually means they really ARE being 'impacted' in certain ways but they have not lost enough solid function to actually reach that particular "threshold level to GO out of range yet? do you get what i mean here? the big thing about most of the standard labs like your kidney functions or liver is that the actual numbers simply will NOT actually even begin to really change til the underlying and correlating functions of that particular lab gets impaired enough with some function loss to even show it in the numbers at all? by the time a particular lab actually even goes out of the norm range(depending upon the lab it can be going lower or higher for THAT lab?), that underlying function loss usually is pretty well far along to even get that to occur in us. thats a big part that not alot of people are simply even aware of like I was not til i had to learn how to best interpret first my sons labs, then mine once i found out at around age 40(9 years ago?) when my son got sick, that i had been living with this stupid kidney disease then it got my liver involved my whole freaking life? i passed this onto my son and did NOT have a freaking clue that I even had it. it also allowed me just up til a couple months ago to have ALL totally perfect midrange normal labs til a couple went out of range or the numbers are stiill within range but are now creeping up on me on the higher end of normal? so now i DO know for certain that this sick disease most definitely IS now impacting my functions. but despite alll this ongoing damage my whole life, every single lab was picture perfect. but merely looking at my ultrasounds is a hugely different story. but it has taken ALOT of ongoing damage here to EVEN finally impact my real kidney and liver functions now. i knew it would come, but it still sucks.
the one thing about testing urine for possible kidney disease is one of the very FIRST actual indicators when it comes to even having a kidney disease you do not actually even know you have yet is finding "traces of protien" in that urine. i DID show this wayyy back when, like 10(?) years before my son got sick but it was a very specific type of physical for my job that this was done and i was never told about that very critical finding even being in my urine at all? sick. that can just be there depending upon if it was tested for?? getting a copy of that lab sheet,and the seperate UA and all others truely WILL show what is and what is not actually there or being impacted even in smaller ways? the UA usually looks for traces of protien, esp in people who have reported foamy urine? and they will also check for any ketones too which would indicate possible diabetes? and when you had your labs done, the ones you had would have also checked your blood glucose level too which is really telling if you have the higher blood sugar that would show in someone who had uncontrolled diabetes. unfortunetly docs just DO NOT in many many cases tell you everything about every single lab that gets done that could have even gone like one tiny number over out of range, or even is about to?
so it just is really crucial to call every single place that did ANY types of testing, from every single scan to every single lab test. just call every place you were seen and tell them you want test or medical records(depending)they will simply send you a release of information to sign, you fill it out and send it back and the records will show up in your mailbox like a week or so later. i would get ALL your medical records too from every doc you have saeen as well just because every doc HAS TO make their 'clinic notes" after every visit with you that also explains some stuff you talked about but more importantly for you is they also have to give their own 'impressions' of what they simply feel may be an issue for you at all kinda thing too? the records are something i also get from alll my specialists and my primary at least once a year too? but any real testing results you have right now, i would contact every single place and at least gather up all those results and just see what everything looks like right now? you WILL gain at least some new knowledge there that you were NOT actually even told about, that is almost a guarentee unfortuently for us. and get every single document that is in whats called your "central file' from that ER visit too, and making certain to write down you also need to make certain that ALL test results/reports are also included?
unfortunely, until YOU yourself actually even see any real lab results or esp the scans done and that radiology report that gets made as well, you just seriously do NOT really even "know' what was/is there or not there. that info just is NOT always told, and it IS pretty sick(depends upon what ANY actual doc 'feels" is or is not actually 'pertinent" to what your complaints are). but DO obtain every single test report and simply keep on asking for them from here on out no matter if its your docs office or the ER. you have every right to ask for your own copies of this stuff. once you get this all together just really see whats going on with certain possible findings in the scans and esp any repeat labs and comparing them to one another just to check for ANY that have actually changed or at the higher end of the norm too? commparitive labs just ARE the very best way of really just "seeing" any true signs of progression in any of the functions that get tested. some tests indicate function loss by lower numbers and some with higher. the good thing about the lab sheets, and this is only to make it easier for the docs but it helps US really alot more, is they usually will list the lab, then your actual number, then wayyy to the right side(on most sheets its usually located here) it will give you what the actual 'normal or expected ratios/values are too so you would know just by looking where YOU fall there within the expected values for each lab done too. that IS very handy let me tell ya.
i just really do think that gathering this stuff all up then looking thru it may give you a much better idea of what just 'might' be going on and give you a much clearer idea of who you should really be seeing for whatever may just be a finding on one of your scans or how the labs really 'are" at all? just something that has helped ME sooo much to just 'know" all the crucial stuff i just need to know about how my son is doing and how I am doing. just start making some simple phone calls on monday to every place that did ANY testing on you and ask for the releases to be sent. i do hope this at least helped 'some". once you get all this stuff, pop back in and we will go from there. ya just need to KNOW what has "truely" been found in any of your testing. FB
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.