I think I have an abscess infection from my tooth spread to my shoulder. How do I find out?
My blood tests are clear but my lymph nodes in my neck are large and my shoulder looks inflamed. My blood tests over the years have been slightly raised, then would drop again. No investigations as to why were ever done.
Would bloods detect it or should I ask my rheumatologist to be more thorough. Is a biopsy needed if the muscle is infected and not the blood?
My shoulder has been like this for 15 years, since I first had a root canal done in the said tooth, that is now playing up again! I have asked all sorts of specialists about it, but they just dismiss the idea without even examining it. I am getting very frustrated, and worry if there is infection there what damage can it do if it spreads further. Thanks.
My bloods have been up and down over many years, no cause was ever investigated. My gp did once say if they didnt settle soon she was going to get it checked out, but never did. I have had unexplained fevers and dizzy spells when the shoulder gets painful. I just wasnt sure if it was in the muscle if it would show in the bloodwork or if a biopsy was needed. An MRI was not done on the shoulder, but of my spine, neck and jaw recently. I thought they were doing the shoulder too. Infection was noted in the jaw and cervical areas near the shoulder, but deemed no further action needed? I asked but have been refused further checks. It was my dentist who suggested it could have spread. ~Thanks for replying.
Thanks again, the reason I ask is that my full body has gone into severe spasm after I had osteopathic manipulations done to the shoulder. I went to him originally because dental work on said root canal put my jaw in severe spasm and he noted my high shoulder and worked on that too. I only went to him as the many specialists could not find the problem with my jaw and sort it, maybe because they dismissed me as a paranoid female and ran no tests or even xrays! It is the same ones in various departments now who are still refusing to check out my theory despite the "evidence" of the MRI and these spasms so severe they have twisted my neck and jaw completely. I smell a cover up and just wanted to know if my theory could be a possibility. It has ruined my life.
Definitely infection yes. I was rushed back to get a second urgent Mri done on my neck for the otonoid region (think thats how you say it)! for recheck of the infection. But they deemed the second MRI passable. As for getting the films, even I havent seen them, just managed to get a copy of the report, at a push! I have had to beg my gp for a referral out of town, but that takes time. I just dont trust my local hospital anymore. When I first saw them with just the jaw problem, they said I was ok, just paranoid about my teeth. Now they are saying I am too complex to treat and have discharged me with no further tests!! Unbelievable! Thanks janewhite1.
Thanks ladybug. The problem I have is getting someone to do anything. They just tell me my temperature is normal and it doesn't present like an infection, yet I had awful fevers on and off. This has been going on a year now to this degree, so if it is infection its had plenty of time to circulate and reek havoc. I have been to the emergency room so many times in visible facial spasm and just sent home with painkillers! They tell me if my bloods are ok that is enough to tell no infection. But I wonder if its possible for it to lie dormant and flare up when something triggers it. Any thoughts please. I have had so many theories banded about, it is protective spasm from bad osteopath, neurological triggered by manipulations he did near spine and neck, infection spread from tooth or a pre existing neurological/muscle disorder that has been unleashed, or the classic it's stress. Bit too extreme for that I think! The UK NHS has really let me down.
Thank you for responding. It is extremely serious, I haven't posted all my symptoms, but what this has done to me is unreal. I have just been told to learn to live with it, but no way can I. All the doctors want to do is is control the pain, but not find the cause. I am hoping the out of town doctors can help me find a cause, but not sure if I can manage the journey! I know I am beyond being fixed, but at least want my family to know what has happened to me before I disappear. And who to hold accountable!
Last edited by Administrator; 08-17-2012 at 05:14 AM.
Hi again! It's hard not to despair. Just found out the drs hadn't even sent my referral off to out of town hospital! I give up with them all. Just spoken with my GP on phone, explained I am going downhill rapidly, so what does he do, come rushing out to see me, no, upped my medication and that's it. Typical. I won't hold my breath for a cure, that would be unrealistic, but I would like to know what the hell happened to me and why. That's what I'm trying to hold on for, my family have a right to know I think! So many times we have said that if we lived in the US, I would have had such better treatment through your system. The only advice I have been given by my doc is "can't you go to America?" I told him for a start I don't have a passport, second I don't have the money, third I couldn't make the journey and lastly why the hell should I have to. We have worked hard and paid our taxes here and now I want something back, I keep getting fobbed off. Not good enough. Sorry for ranting, but I am so angry!!!!!
Hmm, yes, if you have money to pay for it, you do get very good treatment in America. If you don't have money, well...
Unfortunately, it sounds like you'll have to fight for your treatment very hard. Choose your words very carefully. Did the MRI report say where the infection was? Was it in the bone? In that case, the name of your condition is osteomyelitis, and it's usually a pretty effective word when it comes to getting rapid treatment.
I have researched osteomyelitis very thoroughly and have told the specialists that I wanted testing for it specifically. The Mri said the infection was showing in my lower left jawbone, upper jaw not scanned, C1 (odonoid) area (where I had very severe pain) and left lymph node. But they said this was expected with the dental treatment I'd had. But wasn't the idea of the dental treatment to remove any infection?? I also presented with red track marks down left side of neck and top of my chest on the left too, but was still refused!!!! It's screaming infection to me, why not them? I will keep fighting to get to the bottom of it, but the longer it takes, the worse and weaker I get. But if anything does happen to me I want answers for my husband to carry on my fight.
So, where I was asking about spasm on my other thread, do you agree with me and think infection seems more the cause from what I've said? I also have lost all lordosis in my spine and neck in a 4 week period. I know infection too can do this. Why the hell are they not treating me as urgent!!!!
I believe even in the UK it's possible to pay for private treatment, right? I would do that. I'd find the best infectious disease or orthopedic doctor who takes private patients and get an appointment.
What could be going on is that your body is fighting the infection somewhat successfully. That could explain some of the issues coming and going, that it jumps out and makes you sick, then your immune system fights it back down to wherever the reservoir is, then it breaks out again.
And yes, the infection probably is why your neck is spasmed. That or the pure stress at going through all this.
I have paid for private consultations only to find I see the same guy I saw on the NHS. The one out of town will be private, only snag is I still need a GP referral which they don't send off! It's a farce. The out of town place are aware of all my concerns re infection etc, and I'm hoping they will be more thorough. I have been emailing them and they are just needing that off my doc. Because osteomyelitis is so uncommon everyone just seems to shrug the idea off. It will be an orthopedic surgeon I see in a reputable spinal unit so I hope he will have a clue.
I agree with you entirely about my body fighting it as it flares, then it goes dormant again. Do you want me to keep you informed if I find anything out eventually? You have been a big help and thanks so much again.