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Old 09-03-2012, 12:20 PM   #1
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not arthritis, but bursa related and desperate

Hello all and thank you for having me. Im Anne, and just desperate for any advice..ideas, help, anything.. Im at my wits end here. 6 mths ago, one Wednesday evening I developed a burning type of skin pain across my right thigh, and when I looked realised the top of my right thigh was swollen. I hate doctors with a passion but this alarmed me so went the following day, she looked, yes she could see a disparity with my left leg, but nothing sinister, possibly stress related (I had, in the middle of the night 2 nights previously walked, while asleep into a very sharp table corner, but had no bruising)..I was dismissed.

Then followed a period of burning tingling feelings, back to doctor, sent for hip xray, came back virtually normal. Sent for MRI, also came back normal, then took myself off to physio who was visibly shocked at the swelling she could see running across top of right thigh and under right buttock. Had 5 sessions with her of differential heat and ultra sound, she was convinced it was bursa related, but there was no improvement. Was referred to rheumatologist, she actually measured the top of my thigh and noted an 8' disparity between right and left leg, again thought it was bursa, and thought she could see fluid on MRI. Took it to consult with her colleagues, took two and a half weeks of chasing to get in contact with her, she suddenly thought, no, its not fluid, its inflammation!! but Im pretty distraught at this stage. I cannot sit, tho my job is sitting all day, the swelling is restricting me to one pair of trousers that still fit that leg.

I cant lie on the right hand side at night, Im tearful and so tired of this..pain is the wrong word, I could sell prescriptions for painkillers that are really of no use to me.. Its a tingling burning but most of all, heavy feeling with pain on top of hip bursa, and mainly in the crease under the buttock and middle of buttock, and actually the outside of the knee......So went back to her again, she ordered another MRI, with contrast this time.. When I turned up the radiologist refused the contrast, said it wouldnt add anything to the findings... In the meantime she decided to inject cortisone into the hip bursa 2 weeks ago, which has made no difference whatsoever, and finally, this morning, I get a letter from her to say the 2nd MRI is clear...

I honestly just feel like packing it all in... It feels so horrible, it looks so horrible, I dont know where to go to now, who to turn to, the swelling is just increasing, both ontop of the hip joint, but running across into the buttock, and at times down the leg to my outer knee.........Please...anyone??.... just feel if I knew what it was I could deal with it, but noone wants to know anymore...

Last edited by Administrator; 09-03-2012 at 12:28 PM.

 
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Old 09-03-2012, 02:32 PM   #2
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Smile Re: not arthritis, but bursa related and desperate

Poor you! What absolutely miserable symptoms! I thought I'd keep your thread alive and offer sympathy at least.

You mention that you have a job that requires that you sit all day and that makes me suspect lower back problems above the other differentials. Low back injury is very common among those who sit a lot.

Good luck! Hang in there!

Last edited by Administrator; 09-03-2012 at 03:37 PM.

 
Old 09-03-2012, 07:11 PM   #3
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Re: not arthritis, but bursa related and desperate

You need to see an orthopedic physician that specializes in the "back".

A problem in the lower back area (lumbar region) can cause hip pain even tho you may not be feeling pain in your back at this time. A back problem is most likely pressing on nerves to your leg and causing bursitis. Steriod injections need to be given in the hips by a hip specialist to be sure it is injected in the correct place in order for it to work.

X-rays did not show a problem with my hips . The x-rays did not include my back. The physical therapist thinks my problem is Lumbar Spinal Stenosis. I have not been to a back specialist yet. I did see an orthopedic physician specializing in hip/knees and he sent me to physical therapy. My thighs were involved also. My hips were so hot I thought I could fry an egg on them.

The burning tingling sensation is a nerve being pinched in the lower back area.

I am currently in physical therapy for lower back causing hip bursitis and pinched nerves in the legs. If therapy does not work I will see a back specialist.

There is still hope for you, finding the right physician to handle the problem is important.

Be sure and take a copy of your MRI and X-Rays with you when you go to a back specialist. Yes, they should be released to you to take to another physician.

 
Old 09-03-2012, 09:39 PM   #4
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Re: not arthritis, but bursa related and desperate

Was the MRI taken of your hip or lower (lumbar) spine?

 
Old 09-04-2012, 03:08 AM   #5
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Re: not arthritis, but bursa related and desperate

Quote:
Originally Posted by teteri66 View Post
Was the MRI taken of your hip or lower (lumbar) spine?
X Ray was of lower back, and the findings were 'normal alignment, there are degenerative facet joint changes bilaterally at L5/S1 . The disc spaces are quite well preserved. The MRIs were of hip/and then thigh.Thank you to those of you who replied. The thing about all of this is, there is no major pain at all, only pain is the one brought about by the huge swelling. What could be causing this??... My GP wanted the consultant to drain fluid and test it for crystals etc, but consultant says its all inflammation, no fluid.

 
Old 09-04-2012, 07:05 AM   #6
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Re: not arthritis, but bursa related and desperate

It is unfortunate that you did not have a MRI of the lower spine because I think there is a very good chance that your pain is coming from the damage you have at L5-S1. That segment and the one above, L4-L5 contain spinal nerves that innervate the buttocks, groin and pelvic girdle. Often, what we perceive as "hip pain" is actually being caused by a compression of one or more of these spinal neres.

I know a number of people, including my mother-in-law, who were treated for hip bursitis for several years before they were finally given a correct diagnosis of a lower lumbar problem, usually a herniated disc, and/or stenosis.

The facet joints are the synovial joints attached to each pair of vertebrae in the spinal column. They are what allow the spine to bend and twist, and they are subject to the same arthritic changes that affect other synovial joints like the hip, knee, ankle, etc. As a normal part of aging (and, unfortunately, the spine begins the aging process in our 20s), the facet joints show signs of degeneration. This is often a cause of pain. Also it can result in a bit of instability that can lead to nerves getting pinched, which leads to the pain as it radiates out from the spine.

I'm not sure what is causing the swelling. Everything else you mention, I could relate to the degeneration at L5-S1, but I don't know why you'd have so much swelling.

 
Old 09-04-2012, 07:19 AM   #7
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Re: not arthritis, but bursa related and desperate

teteri66

Thanks a million for your response, Im just trying to build a picture up in my mind of where I go next with this. Just to say, I have absolutely no pain upon walking/climbing(apart from my knees but they are wrecked anyway lol), I can hop on and off stools climb stairs, and in fact walking is the only time when I dont have this horrible nagging burning feeling right over my bursa. When I went to my physio right in the beginning she pressed firmly down on the bursa, and after childbirth its the most pain I have ever felt, and subsequently anyone putting pressure over the bursa hurts, combined with the fact that to the best of my knowledge gave it a sharp knock still leads me to believe it is my bursa. Is it possible that the damage that I may have done there, and associated inflammation have caused the bursa in my buttock to become inflamed also which is why I have this area of swelling and discomfort from the top of my right hip right into my right buttock.... Sorry, Im being a nuisance, but really do appreciate everyone who has taken the time to read and reply..I am taking it all on board x

 
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