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Old 11-23-2012, 10:13 PM   #1
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Sensation of movement throughout body

Hi please help if you can, I have suffered with vertigo, lightheadedness, and dizziness in the past and that having subsided, I am grateful. Recently however I have a feeling slight movement, motion if you will, throughout my whole body. I thought it was just a sensation due to the past dizziness etc. but tonight I was standing still taking with someone who asked to stop bobbing back and forth. I could not stop the movement and they actually saw it, so it is not just a sensation. I have never heard of such a thing and am concerned. Please if anyone has ever experience this or know what could be happening, please share your input with me. I don't even have the first clue how to stop this sensation, actual movement in body, or what causes it. I thank you for any help and/or advice.

Thanks
Marrie12

 
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Old 11-24-2012, 09:43 AM   #2
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Re: Sensation of movement throughout body

did you ever actually have ANY tests/scans like MRI done when you were suffering with the previous symptoms? if you have had some scans done, was there ANYTHING at all that showed itself, even something the doc 'felt' may not be related? not all docs are created equal, trust me. unfortunetly, the types of ongoing symptoms you are having could be stemming from a few different possibles, so it would be very hard to give you anything really definitive without some real good in depth scans at least. esp a good contrasted MRI of your brain(just the more likely source).

getting an MRI of your brain along with at least the upper spinal(entire c spine) as well may shed some light on what is generating this. it is one of those things(given symptoms) that could be a "something' or a"nothing". it really is a matter of testing for the 'most likely" possibles that just could give these types of symptoms, then ruling things out or in. but you really wont find out anything until you and your doc start looking.

i would make an appt with your primary doc to get that referral for the contrasted type of MRI(brain and c spine) since that would also show vascular structures(esp when looking into the brain and in certain ways, spinal cord) as well much better than without using contrast.

'something' just is underlying in the types of symptoms you have been having that needs a good solid diagnosis/reason. this could really be something minimal or something a bit more in depth, but it all starts, the Dx, with testing the right places. are you currently or were you taking ANY types of even OTC or RX meds when the symptoms first appeared, or now? meds can do some really strange things in our brains as far as some pretty off the wall types of side effects in certain people, that is why i am asking. that MRI should help to either rule something in or out. this is usually the very first type of testing any doc would refer for with having your types of symptoms. been there done that one myself.

do you have ANY medical conditions or even a family hystory of anything that could involve the brain in some way? it never hurts to ask. but if i were you, i would be getting that appt with my doc just to get the testing ball rolling. you just have to start the process somewhere in just finding the answers. hope this helped some. please do keep me posted, FB
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3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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Old 11-24-2012, 10:14 AM   #3
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Re: Sensation of movement throughout body

Thank you so much for your quick and comforting reply. No I have not had any tests done yet. When dizziness and vertigo were really bad I was waiting for an appt to see a neurologist however that was out about 6 months and then things started to get better so I cancelled the appt. Now this new thing has really got me scared. I am going to call on Monday and see when I can get in to see the doctor. I am not taking any meds presently. When dizziness was severe I was taking 2mg of valium 3 times a day which seemed to help with the spinning. It sounds like you've had a lot of stuff going on with your spine, how did it happen, if I may ask? Also I don't know if it's related but when before this whole thing started(dizziness, vertigo etc.) the tailgate of our Honda Odyssey malfunctioned and fell on my head, I felt a lot of pain but didn't think anything of it, I didn't get dizzy or pass out or anything like that just pain at the time and then later I started with the symptoms and only now on reflecting back do I even think of that incident. I've been suffering with dizziness and vertigo for about for a little over years now. I do thank you for your kind advice and I will start again with the doctors on Monday. I will keep you posted, if you think of anything else, please let me know.
Sincere thanks,
Marrie12

 
Old 11-25-2012, 10:12 AM   #4
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Re: Sensation of movement throughout body

well you most certainly DID suffer some trauma to your head and the neck too, even if the neck was not hit itself? the way the c spine connects to the main structures within the lower skull/brain would have also kind of 'forced" your c spine to probably drop down upon impact too. if your head got hit, whatever area of that c spine that did not, would have been possibly more impacted, just from the overall sudden wieght drop onto your head(part would have shifted while the other kind of stayed type of thing?). where exactly did you feel that pain when that tailgate hit? this is kind of an important question.

i know how much it sucks to have to do the very long wait crap with just about any specialist when you are considered a "new patient" too. its just how they are. but you DO need to reset that appt and also in the meantime, your primary doc can refer you for the contrasted MRI on the brain and c spine. that way you would already have in hand, by the time a neuro appt pops up, something for that neuro to go from. they would then order any other major types of testing needed themselves, but you have a starting place at least before going in there. ANY doc can order an MRI, just so you know. my primary has done almost all my ongoing 22 MRIs i have had to have all since one stupid herniation that upon film found a glob of blood vessels sitting inside my spinal cord that was my 'birthmark' i guess. it is just one of a few various types of vascular malformations people can have and also not show any symptoms from either til IT decides to show itself with some type of symptomology. or stuff like this gets found like how mine was, as an "incidental finding' when just scanning for something else.

the truth is, no one really just 'knows" what could be lurking inside their own bodies til it gets found upon scanning or shows symptoms. I and my son both found THAT one out the hard way.

while you could have easily suffered some type of real herniation or even fracture of vertebrae, there is another thing that also needs to be considered here too. we just have some very much "there" veinous and arterial blood flow that runs from that c spine on up to the brain as well(we also have many much smaller areas of that type of bloodflow too that kind of wrap around the vertebrae/spinal cord as well, but more minor and all thru the spinal). the major arteries i would be wondering about are called the "vertebrals". we have both a right one and left one that enter into the c spine at around the c 6 level. they then run up thru the upper c spine and join at another major artery called the basilar that is within the brain itself where those two now go into that one major artery(these are all located more in the back areas of our brain, but FROM that c spine). the vertbrals feed the back of the brain with fresh oxygenated blood, while the carotids feed more to the front. any real disruption in bloodflow from your trauma you suffered easily could cause the types of symptoms you have had/are having. this is why you really NEED that contrasted part with the MRI so it will show all of the major vascular structures too.

are you having ANY other more extremity types of symptoms at all, like numbness, tingling, jolts of pain down either arm, or 'strictly' the symptoms you mentioned within more the possible generated from brain area alone? you could have even suffered some form of real brusing within your brain from that level of heavier hit too(you just DID suffer a level of real trauma there, so do not ever forget that as it can have certain ramifications). if there was ANY potential for possible bleed that occured(more likely smaller veins/vessels) it would still show itself upon MRI or even CT in the form of the iron that was in the blood. while the brain and the spinal cord can bruise or have bleeds of many types, for some strange reason, they will absorb all of the blood products EXCEPT for the iron deposit that gets left behind. it is called 'hemosiderin". so that is how upon scanning, they just would know if anyone EVER suffered any type of even minor bleed at some point in their lives. that hemosiderin just stays.

that glob of vessels that was found inside my cord called a cavernous hemangioma had surrounding it 'hemosiderin staining' which no one ever explained to me was the "remnants/iron deposit" left from an actual bleed into my spinal cord. it was not til i saw neurosurgeon #3 and at the U of MN here where i live that i really found out what i was dealing with. and the glob also had to be removerd. just added a ton of crap i did not need to my life from spinal cord damage on top of already having a really messed up c spine. lovely. also had a brain aneurysm decide to pop into my lil brain back in 2005. that is why i even know the more in depth bloodflow in the c spine to brain. thankfully it was coilable and taken out of the arterial circulation.

while i am in no way saying that you have had any type of actual bleed in your case. it is something that needs some really in depth looking into so it can just be ruled out or in as a possible reason for the symptoms. but, it could also have something to do with strictly your c spine too which after the type of hit you took, just could cause other issues that may be there, just have not been scanned for yet. then there are other possibles there too like inner ear problems among others. but the very best way to start is just getting that good contrasted scan of both brain and c spine, since this would appear to be where you just DID suffer some real trauma within unknown consequences, but WITH real pain upon impact, and symptoms after.

hopefully you wont have to wait too long this time. but i would try and get that needed MRI done as soon as possible, just so you and your doc know what it may be that is making your life miserable. good luck hon, FB
__________________
3-22-01,herniated C-6-7
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

 
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