Need general info - Osteoporosis Message Board

Sherry M · 01-27-2005, 12:32 PM

Hi, I'm new here. I am 50 years old and was diagnosed with osteoporosis about 2 years ago with T scores of -2-4 in the hip and -3.7 in the spine. Recently, I had a followup DEXA with resultant T scores of -2.6 in the hip and -4.5 in the spine after taking Fosamax, calcium, vitamin D, and estrogen (I have had a previous hysterectomy with removal of both ovaries). I walk for at least 30 minutes 7 days a week. My bone density scores have gotten worse with treatment. I have constant, dull pain in my low back and hips. I am told by my doc that pain with T scores like this is common. She doesn't seem to be concerned about any of it. She says that treatment is adequate with the Fosamax, calcium, vitamin D, and estrogen and refuses to try an alternative medication to see if it works better. I cannot lose any more bone. I am looking for any information or feedback regarding the worsening in bone density, bone pain, possible exercses, reaction of my doc to the situation, etc. Any and all feedback is welcomed.

hummingbirdkiss · 01-27-2005, 07:30 PM

message deleted

Sherry M · 01-28-2005, 06:48 AM

Thanks so much for your reply. After getting red-faced upset with the doc, she finally agreed to do some testing. She is doing a parathyroid check, a check for celiac, and a U/A check to see if there is calcium loss there. I am still waiting for results on those. However, the tests were taken over a week ago and I am thinking they are all normal, as I have not heard anything from them (they notify me if there is anything abnormal). I am wondering how bad your osteo had become when they found the parathyroid problem, and what they have done to correct it?

Thanks again for the reply.

Oldbones · 01-31-2005, 01:54 AM

Sherry M....... May I ask what kind of doctor you are seeing about your severe osteoporosis? Before I was started on Forteo injections, my rheumatologist did parathyroid tests, 24 hour urine calcium, 25 hydroxy-D (I think that's what it was called)

and other tests that I can't recall right now. He wanted to rule out any other cause of my bone fracturing problem before starting me on Forteo. All my tests were normal so my parathyroid was not causing the bone loss.

Oldbones

Dodie · 01-31-2005, 05:18 AM

My doctor also did the parathyroid test, celiac and allergy test to foods. To my surprise my parathyroid test were abnormal and I have a severe milk and beef allergy. This is something you might consider also. God Bless!