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Old 10-15-2005, 12:56 PM   #1
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Foxbluff HB User
How much bone is regained w/diff treatmts?

Just found out I have osteoporosis. GP recommends Forteo. If the idea of giving myself a shot everyday isn't bad enough (and it's bad), the price is outrageous! Doc says it's the only treatment that actually builds bone, so it's the right one to do.

I've been reading and reading info on the diff drug treatments, but no where can a find actual results. I need to know what percentage of bone is regained via the different treatments after a yr or so of use.

I am really dragging my feet on making a choice here and would appreciate any help you can give me.

 
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Old 10-15-2005, 10:56 PM   #2
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spinewhine HB User
Re: How much bone is regained w/diff treatmts?

Quote:
Originally Posted by Foxbluff
Just found out I have osteoporosis. GP recommends Forteo. If the idea of giving myself a shot everyday isn't bad enough (and it's bad), the price is outrageous! Doc says it's the only treatment that actually builds bone, so it's the right one to do.

I've been reading and reading info on the diff drug treatments, but no where can a find actual results. I need to know what percentage of bone is regained via the different treatments after a yr or so of use.

I am really dragging my feet on making a choice here and would appreciate any help you can give me.
I don't now of any studies detailing the amount of bone gained by Forteo or any other drug. There are a number of us here on Forteo and a whole lot of threads that you can read through to see that a lot of us here went through the same soul searching before deciding to give it a try and others opted not to take it and go with other options. Some have already gotten improved bone density scans. I started Forteo in March and haven't had a new scan yet. I'm keeping my fingers crossed. My insurance covers the bulk of the cost, so that wasn't a concern. Being a needlephobe, the needle was a concern but that was actually pretty easy to get used to, believe it or not. Others here will tell the same tale. We're pretty proud of ourselves on that score. Best of luck whatever you decide to do.

 
Old 10-16-2005, 09:27 AM   #3
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CrohnieToo HB User
Re: How much bone is regained w/diff treatmts?

Quote:
Originally Posted by Foxbluff
Just found out I have osteoporosis. GP recommends Forteo. If the idea of giving myself a shot everyday isn't bad enough (and it's bad), the price is outrageous! Doc says it's the only treatment that actually builds bone, so it's the right one to do.

I've been reading and reading info on the diff drug treatments, but no where can a find actual results. I need to know what percentage of bone is regained via the different treatments after a yr or so of use.

I am really dragging my feet on making a choice here and would appreciate any help you can give me.
No one can predict how much bone you will or will not increase with any of these medications. It is all very much an individual thing. Your doctor is correct that Forteo is the only currently approved medication that is proven to increase bone. HOWEVER, the bisphosphonates such as Actonel and Fosamax in some people can slow bone "death" so that the natural bone "growth" can exceed the natural bone "death" and thus those people can achieve increased bone density/strength. No matter which med you decide upon calcium w/vitamin D supplementation is needed and weighted exercise is important as well.

Take into account your osteoporosis risk factors are, the degree or severity of your current osteoporosis, your other health factors and ability to take the required supplements and do the necessary activities/exercise you need to do whilst making your decision.

As to the daily self-injections: I doubt many people are greater "needle-phobes" than I was. As a child it took 3 persons to hold me down to give my my innoculations, I bit, kicked, screamed and fought them tooth and nail. I actually bit a dentist's finger to the bone in panic when he tried to numb my gums for a dental procedure. As an adult our famliy doctor had to hide the needles from me when he brought them in the exam room to give our children their innoculations and tell me when to turn my head so I didn't see it or I upchucked all over the exam room. I'm now 63 years old. It took my family doctor and his nurse TWO YEARS to convince me to even try giving my own vitamin B12 injections!!! The first time I tried in his office I pulled the needle out in a "knee jerk" reaction before I could even begin to push the plunger to release the B12. I had to "re-stick" myself! You know what tho? I managed to do it and it wasn't so bad at all. Fortunately, I had been giving myself the B12 injections weekly for several months before it was decided to start me on Forteo. The thought of actually injecting myself in the abdomen absolutely blew my mind! However, knowing I had to give the B12 once a week in the thigh and that the Forteo would be a daily injection I was concerned about "running out of places" to give myself an injection! So - I insisted that when I went to my Endo's office to learn how to give myself the Forteo injection that I be taught to do it in my abdomen AND that that WAS the way I would do my first Forteo injection there in the office. I was nervous, shakey and somewhat nauseated - but - I managed to do it!!! And it was a piece of cake!!!

Take a GOOD look at the needle that comes with the sample pack. See how short and fine it is. Its not so scarey as what we think of as a syringe and needle for giving injections in the hospital, etc. nor for blood draws or IVs.

One word of caution tho: if you decide to go with the Forteo, when you go in to pick up your first script double check the needles they sell you for the injections. I was given 5/16" long, I forget which guage needles. The needles that come with the sample pack are 3/16", 31 guage. These needles are like 3-4 x the price of the 5/16", somewhat larger guage needles my pharmacist first tried to sell me but at the time I didn't care about price, if I was going to be injecting myself in the abdomen I wanted the smallest guage, shortest needle recommended!!! Now I have both size needles. I use the 5/16" needles for my thighs and save the 3/16" for my abdomen. I rotate 4 sites on my abdomen and each thigh thru the week. I've never bruised (and I am on warfarin [Coumadin], a blood thinner for a deep vein blood clot) nor have I ever had more than a pin point of blood at any injection site. Usually, I can't even see where I gave my injection once I pull the needle out.

Good luck and God bless, whatever method you decide to use to correct your osteoporosis.

 
Old 10-16-2005, 04:20 PM   #4
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Foxbluff HB User
Re: How much bone is regained w/diff treatmts?

Thanks so much for taking the time to answer, Spinewhine. I'm finding it a bit encouraging to see other people here that seem to be as repulsed by needles as I am, and yet giving themselves a shot every day. You really should be proud of yourselves!

I know that you're correct abt not everybody gaining back bone at the same rate. Still it would sure help us make the decision if we knew whether we were looking at a potential 30% gain in 2 yrs or a 5% gain. (:

Last edited by Foxbluff; 10-16-2005 at 04:23 PM.

 
Old 10-16-2005, 04:46 PM   #5
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Foxbluff HB User
Re: How much bone is regained w/diff treatmts?

Quote:
Originally Posted by CrohnieToo
No one can predict how much bone you will or will not increase with any of these medications. It is all very much an individual thing. Your doctor is correct that Forteo is the only currently approved medication that is proven to increase bone. HOWEVER, the bisphosphonates such as Actonel and Fosamax in some people can slow bone "death" so that the natural bone "growth" can exceed the natural bone "death" and thus those people can achieve increased bone density/strength. No matter which med you decide upon calcium w/vitamin D supplementation is needed and weighted exercise is important as well.

Take into account your osteoporosis risk factors are, the degree or severity of your current osteoporosis, your other health factors and ability to take the required supplements and do the necessary activities/exercise you need to do whilst making your decision.
I can't believe how much time you invested in this wonderful, detailed answer! The first para alone has answered one of my biggest questions. I've been so confused because when I read lit on the pills, it says they help build bones. Then I keep reading elsewhere that Forteo is the ONLY treatmt that builds bones! Now I, at least, understand that much. LOL

I've read quickly thru your post and see so many good pts. I've printed it out to study later and will come back here tomorrow w/other comments. Thanks.

 
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