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Old 01-11-2006, 12:43 AM   #1
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suzieuk45 HB User
Osteoporosis - strontium plus alternative treatment

Hi All - Happy New Year. I posted late last year on the site as I had had a scan of the forearm which showed I had osteopenia. I took a chance and went skiing at Xmas after having had a scan of the hips and spine to find that I have now been diagnosed with osteoporosis. Glad I didn't know that before I went . Anyway, the hips are not too bad but the spine is -2.8. Of course, I want to avoid this progressing any further as I saw what it did to my mother so I am looking at all sorts of treatment. The report suggested bisphosphonates as a treatment and I will discuss this later with my doctor but I am really alarmed at the side effects that I have been reading about on this site and elsewhere which seem to be denied by the medical profession. At the moment I am taking Calcium & Vitamin D and a supplement called Reosto which is an Indian Ayurvedic product - based on the ancient medical knowledge from India. I also exercise on a regular basis. I am going to consult a practitioner here when I can find one and try that route for a while. I have seen a new treatment mentioned on this site called Strontium(?) - does anyone know anything about this? I haven't heard of it here in the UK but want to investigate all possibilities. Good luck to everyone with treatment.

 
Old 01-11-2006, 09:30 AM   #2
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Aleta145 HB User
Re: Osteoporosis - strontium plus alternative treatment

Hi Suzie! Yes, there's been some discussion about strontium here. There are different types of strontium. You might have read about strontium ranelate: It's a synthetic substance made by a French company, and should be available in the UK under their brand name Protelos. Look up the TROPOS study to find out more about it. There are those who say strontium in its natural forms (strontium ranelate, strontium gluconate, strontium lactate, or strontium carbonate) works as well as Protelos, but since a natural substance can't be patented, the drug company had to alter the molecule somehow in order to make money off it. I'm just repeating here what I've read. I'd sure like to see a study that tests that hypothesis head-to-head.

Also, you may want to check out a book called "The Myth of Osteoporosis" by Gillian Sanson. I think she mis-named her book, for she doesn't say osteoporosis is a myth, rather there are many myths and problems associated with its diagnosis and treatments. Such as saying you should now avoid going skiing, or you should automatically take Fosamax, etc. She wrote the book based on some very in-depth research she did when her own teenaged daughter was diagnosed with it, and it helped me to decide on my own course of treatment.
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Aleta
Dx Osteoporosis 5/04, age 49
T-Scores: Spine -3.0, Hip: -1.9
Current treatment: Evista

 
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Old 01-11-2006, 02:03 PM   #3
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suzieuk45 HB User
Re: Osteoporosis - strontium plus alternative treatment

Quote:
Originally Posted by Aleta145
Hi Suzie! Yes, there's been some discussion about strontium here. There are different types of strontium. You might have read about strontium ranelate: It's a synthetic substance made by a French company, and should be available in the UK under their brand name Protelos. Look up the TROPOS study to find out more about it. There are those who say strontium in its natural forms (strontium ranelate, strontium gluconate, strontium lactate, or strontium carbonate) works as well as Protelos, but since a natural substance can't be patented, the drug company had to alter the molecule somehow in order to make money off it. I'm just repeating here what I've read. I'd sure like to see a study that tests that hypothesis head-to-head.

Also, you may want to check out a book called "The Myth of Osteoporosis" by Gillian Sanson. I think she mis-named her book, for she doesn't say osteoporosis is a myth, rather there are many myths and problems associated with its diagnosis and treatments. Such as saying you should now avoid going skiing, or you should automatically take Fosamax, etc. She wrote the book based on some very in-depth research she did when her own teenaged daughter was diagnosed with it, and it helped me to decide on my own course of treatment.
__________________
Aleta
Dx Osteoporosis 5/04, age 49
T-Scores: Spine -3.0, Hip: -1.9
Current treatment: Evista
Hi Thanks for that. I will buy the book I think. Have just come back from the doctor who has recommended Fosamax and given prescription. I feel I have no choice but to try but I am also consulting an Ayurvedic doctor next month. I will also look into this Strontium and ask my doctor to check it out - I have no idea if it is available in the UK. I see you are on Evista. Have you had any side effects? My T scores were spine - 2.8 and hips -1.8 and -2.0. I am 54, very active and have no outward signs, that is no loss of height or anything like that. But I know it could get much worse in the future. I probably would not have had a scan but for the fact that my mother had severe osteoporosis. Do you have any day to day problems?

 
Old 01-11-2006, 03:00 PM   #4
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Aleta145 HB User
Re: Osteoporosis - strontium plus alternative treatment

Quote:
Originally Posted by suzieuk45
I am 54, very active and have no outward signs, that is no loss of height or anything like that. But I know it could get much worse in the future. I probably would not have had a scan but for the fact that my mother had severe osteoporosis. Do you have any day to day problems?
I have no problems I can trace to osteoporosis, just the normal aches and pains of aging. I don't avoid any physical activity except for I won't do headstands in yoga class, but that's about it. The physical problems I have right now are a constant shoulder and upper backache - probably due to poor posture at my computer for many years - which I am trying to treat through physical therapy and the aforementioned yoga practice.

I only had the DEXA scan at the request of my oncologist, who wanted a baseline bone density on me as a prerequisite to prescribing a breast cancer drug known to cause bone thinning. Needless to say, after seeing my BMD I opted not to take it - and started Evista instead. I'm a 6-year breast cancer survivor, so Evista has the added advantage of preventing new tumors (knocking wood) as well as treating my osteoporosis.

Since you're planning on getting the book, I suggest you read it before you make any treatment decisions. I'm not saying don't take the Fosamax - just make sure you have looked at all the angles first. My husband (who is 55 and also has osteoporosis) takes Fosamax with no side effects. My grandmother (who is 92 and has the infamous Dowager's Hump) also takes it without any problems.

Bear in mind that people who are satisfied with a treatment don't normally go to forums only to say how happy they are with it. It's going to be those who are having adverse reactions who create the buzz that makes it seem horrific to all who try it. I did have that in mind when I decided on MY treatment, but then I am not in crisis mode when it comes to osteoporosis. Crisis mode for me would involve losing height due to compression or non-trauma fractures, or seeing much worse BMD scores at my next scan. Only then would I consider it.

 
Old 01-13-2006, 11:46 AM   #5
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Piano0105 HB UserPiano0105 HB UserPiano0105 HB User
Re: Osteoporosis - strontium plus alternative treatment

Suzie,

Before trying Fosamax, I would try either Protelos (by prescription) or the "natural" strontium citrate that you can purchase online. I know that Protelos is available in the UK at this time. I've used a product called Strontium Support, and another one called Strontium Bone Maker by Doctor's Trust.

The problem with bisphosphonates like Fosamax, Actonel, and Boniva is that, used long-term, they cause bones to become more brittle. In addition, they can cause jaw necrosis. If you do break a bone while taking these, the fracture takes longer to heal.

Make sure you read "The Myth of Osteoporosis" before deciding upon treatment. Your T-scores are just over borderline in the spine only. The others are osteopenia. However, if it runs in your family, you have to consider that risk as well.

Good luck.

 
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